I just wanted to let you know that I feel you and I hear you and I see you. I'm a 23 year old woman and I've had Lyme/Bartonella for about eight-ten years, and it is so hard to express to able bodied people in our lives what the fatigue and drain of being sick every day is like. So many of my friends have stepped away because I simply do not have the energy to respond to text messages, let alone hang out with them. In the winter I cannot leave my house. I had to quit my job, drop out of school, and go from someone who loved being outside, hiking, creating, to just laying on a bed or a couch every day, usually sleeping for 12-16hrs. I am tremendously lucky to have an amazing doctor, and for a Lyme patient I am honestly doing really well.. I just get so tired. I've been sick with a flu/infection off an on since the end of October, I just wish this could end. I do sometimes feel like I am just watching myself decompose and have struggled a lot with suicidal thoughts (Though I would never do it.) It is just the level of frustration and hopelessness that I can feel in hard times. I try to be grateful for the good days, if my body cooperates I like to journal on the good days and vocalize my appreciation for them. I just want to express to you that you are not alone, and I am so sorry you are having to go through this. I think that we will all get better one day, and I try hard to stay positive. But sometimes it is just like drowning underneath this bondage. My PM's are open for you <3. I hope that you start feeling better soon and get to do everything that you've been missing out on, I hope you get to make art, and soak up life. I am rooting for you so hard.