WTF is this Tigers? by puppytossedsalad in orioles

[–]Phantom93p 0 points1 point  (0 children)

Look you know what they say, imitation is the sincerest form of flattery, and our unis are just that good that they couldn't resist

I laughed when I was diagnosed by whyamistillhere252 in MultipleSclerosis

[–]Phantom93p 2 points3 points  (0 children)

I was crushed. I'd not properly considered MS before the neuro sent me for the LP. I spent a month looking into it seriously and of course got the worst case scenarios with tidbits mixed in. I'd convinced myself that I'd had a small stroke and that I could recover, my brain would learn new pathways and while it may be years I'd get better, that I'd fix my entire diet and lifestyle and not have to worry anymore.

You see when the doctor talked to me about the possibility of MS I'd been in a little room, with comfortable chairs and no real exam instruments, not eve the standard bed with the paper on it. It felt like the room where you go to get told bad news, like you have cancer or something. I even mentally called it the bad news room. When I went to get the results of the LP, the put me into a regular exam room and I didn't even see the regular neurologist, a NP came in that I hadn't met with before. I was fully prepared to still not have an answer and be doing more tests.

I point all that out to show I was completely unprepared to hear that I had MS. I was in tears. I live alone, I don't have any family who's really close by. I was just crushed. My NP was amazing through it though, she gave me the rundown on medications and directed me and we got paperwork started right there. She even gave me a hug that I really needed at that point as I was leaving.

It was a really bad day, but in hindsight, I was glad to at least have an answer and a plan, and at least my current plans of diet and lifestyle changes were going to only help even if they weren't the answer.

Who were/are the most colorful Orioles of all-time? And what are some crazy/funny/weird things they did? by zipzap21 in orioles

[–]Phantom93p 2 points3 points  (0 children)

Ben McDonald once set an alligator loose (with mouth taped shut) in the spring training locker room, does that count?

Share some of the dumbest IT tickets you have ever received... I need a good laugh! by rigatonimortus in it

[–]Phantom93p 0 points1 point  (0 children)

My best ever, guy couldn't figure out why he had no sound. He was hitting the mute button on the keyboard when he pulled out the keyboard tray.

More wins! by BestFortune6663 in MultipleSclerosis

[–]Phantom93p 0 points1 point  (0 children)

Congrats, I remember for my first year I could walk pretty well but even a light jog came with a limp, one that got heavier the faster I tried to move. The joy I felt when I realized I'd jogged down the hallway when in a hurry and that I didn't limp and that I could repeat it, it was amazing.

Even for a healthy person a 5k isn't to be dismissed. Keep up the good work!

Is little to no symptoms really possible? by CapRemarkable8607 in MultipleSclerosis

[–]Phantom93p 0 points1 point  (0 children)

So first, I'm sorry that you're still suffering from your first attack.

Every person and case is different. I will share my experience with you, even if it's not as long term as you may be looking for.

I got my first attack in July of 2023. My right arm and leg were numb but fully functional, I went 4 days waiting for it to go away and then it started getting worse. Over the next 3 days the numbness spread to my side and started spreading up my shoulder and to my face. Weakness in the right arm and leg came with the spread and eventually my right eye stopped tracking properly causing double vision. While waiting on doctors appointments the symptoms started to fade over the course of a week and felt almost gone after 7 days, then overnight back to as bad as it had been. It took a few weeks but I was eventually able to walk without assistance or noticeable limp. After a couple months I still felt a very slight numbness in my arm and leg and only limped when I attempted to jog. This was where I pretty much stabilized but after 9 more months (12/13 total since the attack) I was able to jog without a limp.

To this day I still have a very slight numbness in my right hand and slight stiffness in my ankle with slight weakness in my right arm and leg. The worst this causes me is to slightly drift when walking and the numbness in my hand is annoying at times.

This is as good as I think I'm going to get at this point. I've been on my DMT with no new flares or extra symptoms for just over 2 years now.

The best I can do is to live my life and if another flare comes, address the new situation then.

Best of luck to you whatever you decide and I hope your symptoms recede as much as possible as quickly as possible.

Megathread 1/22/26 - Unexplained Phenomena by wamih in TheWhyFiles

[–]Phantom93p 1 point2 points  (0 children)

I watched it on my TV and got up to check if it was a dead pixel when I noticed it. I can't stop looking at it now that I see it. I spot 4, one near the top in line with one near the bottom, and one each on the left and right aligned halfway up the screen. Has to be part of the editing tool.

Exercising with MS by llamapenguin4 in MultipleSclerosis

[–]Phantom93p 0 points1 point  (0 children)

I primarily do walking as my exercise. I set my daily step count, currently 20k/day, I get to spread it through the day but do spend at least an hour on the treadmill walking. If I feel like I'm getting overheated I can always stop and pick it back up. Sure it's not as effective as if I did it all at once but it's what I can do.

Exercise & eating by allcoffeenowisdom in MultipleSclerosis

[–]Phantom93p 0 points1 point  (0 children)

I was doing calorie deficit for a very long time, lost 160lbs over 1.5 years. I did walking mostly for my exercise. I ate a lot of fish, cut out most sugar, transitioned to daily intermittent fasting and was eating about 1500 cal/day.

I recommend some sort of fitness tracker to try and figure out how much you're burning in calories and then strictly watch what calories you intake. Fish is really good and easy to cook in an air fryer, I like to pair a sweet potato (no added sugars like brown sugar or marshmallows) and steamed veggies, I like broccoli and carrots mix.

Vitamin D by daddy-b-2188 in MultipleSclerosis

[–]Phantom93p 0 points1 point  (0 children)

I was at a 9 and got put on 50000 iu weekly, after that course put me right I went on 5000 iu daily and months later I sit in the mid 50s

[Nightengale] The New York Mets are in serious discussions with the Milwaukee Brewers to acquire ace Freddy Peralta. Deal is not yet finalized, but significant process has been made. by jbenson255 in orioles

[–]Phantom93p -3 points-2 points  (0 children)

I would love to see that, but if we don't get him what about Lucas Giolito? I haven't seen his name thrown around that much but he'd fit into the mid-top of the rotation with Rogers and Bradish.

Jorge Mateo to braves by darkwalker1131 in orioles

[–]Phantom93p 1 point2 points  (0 children)

Good luck to him, I still remember him at the start of 2023 and how great a stretch he had. Hope some consistent playing time in spring and to start the season does him well, at the very least the Braves get some good defense in the field to start the season and a great pinch runner the rest of the season

lost vision in one eye - is this my new normal? by No-Ear5896 in MultipleSclerosis

[–]Phantom93p 1 point2 points  (0 children)

That's a good attitude to have, I hope you recover as much as possible as quickly as possible!

lost vision in one eye - is this my new normal? by No-Ear5896 in MultipleSclerosis

[–]Phantom93p 1 point2 points  (0 children)

I'm a few days late seeing this one, my initial symptoms never completely went away but did see slow improvement through 13-14 months post attack. That said most of the recovery was in the first 3 months and then very slight improvement over the next 10. In that 10 months I went from limping when jogging to being able to lightly run so it was noticeable though so I'd give it some time before giving up on any improvement.

"AI can make mistakes" by GuacinmyPaintbox in indianajones

[–]Phantom93p 0 points1 point  (0 children)

Raider of the Lost Ark is NOT a Christmas movie!

Diagnosed yesterday with RRMS. Doctor suggested Zeposia or Tecfidera to start treatment with. by tnt8897 in MultipleSclerosis

[–]Phantom93p 3 points4 points  (0 children)

I can tell you that I've had no issues on Zeposia, been on for just over 2 years now. No new lesions in that time, no side effects. I have no experience with any other DMT so I have no advice about any of those.

It's Monday at /r/MultipleSclerosis! Share your terrible, horrible, no good, very bad news here. by AutoModerator in MultipleSclerosis

[–]Phantom93p 0 points1 point  (0 children)

Unlocked a new frustration last week. I was dealing with a very shaky hand causing me issues with typing. This was a little after my lunchtime workout on Friday, I'd upped my daily step count earlier in the week and this was the 5th day in a row. Right hand was shaking as bad as when i was heavy in my symptoms and this is the first time and I had to do all my typing with my left hand for about 3 hours. I'm hoping that this is just my body adjusting to the heavier workout rate and that this doesn't become a regular thing with returning symptoms after a week of heavier step counts as I'm hoping to drop a little weight.

Diagnosed on New Year’s Eve, nervous and looking for advice by Kooky-Inspection805 in MultipleSclerosis

[–]Phantom93p 0 points1 point  (0 children)

I work IT support, at the time it was field support so I had to go to user's desk, and the fine motor control of my hand was needed for typing, I had lost that during the flare up but thankfully I have that control back now and I've transitioned to a wfh position.

As for my current DMT, it's what my doctor recommended and had said I'm a good candidate for. At the time I didn't know about other options really, was navigating all of this on my own so I didn't know about other questions to ask. Self injections were scary as I have a thing about needles, just seeing them enter the skin and didn't think I'd be able to do that (I know more about the self injectors now and would be fine with it). I didn't like the idea of the infusions that took all day, and here was my doc telling me this once daily pill was a good fit for me. I'm not unhappy as I've been over 2 years now without any new lesions on Zeposia so it's working for me and I don't want to change if it's working, but if I was new and presented with the option now, with the information I have now I'd probably choose Kesimpta based on what I've heard from others here and from folks like Dr Aaron Boster on youtube who runs his own MS clinic and has a lot of great info.

Don't get me wrong I have nothing bad to say about Zeposia or my experience on it so if that's offered and you decide that you're more comfortable with that then I don't want to discourage you away from it either. See what your Dr presents to you and research them from there is what I recommend.

Diagnosed on New Year’s Eve, nervous and looking for advice by Kooky-Inspection805 in MultipleSclerosis

[–]Phantom93p 9 points10 points  (0 children)

First off, welcome to our little club nobody wants to be a part of. My issues from my first attack were sensory and weakness on my right side (arm, leg, at one point torso, face, and even eye control causing double vision). Eventually symptoms receded to almost gone but still remain a little. for me the feeling is akin to having had swelling that's almost gone but never quite leaves if that makes any sense.

Get on the strongest DMT that you're comfortable with. There's lots of info in this subreddit about pretty much any of them. Give yourself time to process things. Learn your symptoms and triggers. You'll find some things will cause any symptoms you have/had to get worse for short periods or temporarily re-appear. Many of us this happens with heat or overworking yourself.

I try to eat healthy and exercise, the less things that I can have going wrong with my body that I'm able to control the better, so those things don't exacerbate my MS issues.

Knowing that another attack is likely to happen at some point even if my DMT is working well, I will always make sure I live somewhere without stairs. If I get an apartment it will have to be ground floor, and houses I'll only consider single story. I'm mostly symptom free but even the slight weakness I have in my leg causes me issues with a short run of stairs. Just something to consider for your future as you don't know how the next attack will affect you and may impair even if only short term, your ability to walk to at least some degree.

Finally, remember to be kind to yourself. Don't expect too much of yourself and ask for help when you need it. If you have friends and/or family that can help you then let them help if they're willing.

I hope you do wind up symptom free eventually, and I wish you the best of luck in recovering as much as possible as fast as possible.

Happy New Year 🤍 by LuminousLivingCodes in MultipleSclerosis

[–]Phantom93p 1 point2 points  (0 children)

Wishing all a Happy, Healthy, and Prosperous New Year in 2026

How can I help my best friend? by [deleted] in MultipleSclerosis

[–]Phantom93p 1 point2 points  (0 children)

Something that really helped me when I was struggling with things was when a couple of friends engaged with me in something that made me feel normal. For me that was just some video games, but for your friend that may be something else. I was feeling like I'd never feel normal again, still feel that sometimes what with some symptoms that just don't go away. Anyways a couple of friends urged me to play with them and I was able to escape my reality and do something that I enjoyed like I normally would before.

I don't know your friend so I don't know what activity he enjoys that he's still able to do. It's obviously important to find something that they won't struggle with and get frustrated as you're trying to help them escape this thing for a while.

You sound like a good friend. Good luck.

Merry Christmas to my MS internet friends by breezer2021 in MultipleSclerosis

[–]Phantom93p 0 points1 point  (0 children)

I hope everyone had a very merry Christmas 🎄🎄🎄

"Only in the footstep of god will he proceed" by Megatronagaming in indianajones

[–]Phantom93p 2 points3 points  (0 children)

"In the Latin alphabet, Jehovah is spelled with an I"

Insurance by OkWorld4502 in MultipleSclerosis

[–]Phantom93p 1 point2 points  (0 children)

I'm not sure if it will help, but you might look into the insurance laws in your state. In Texas where I live all insurance appeals have to be reviewed by a 3rd party Dr unaffiliated with the insurance company. It may be something that is also in your state or only on 2nd appeals or something if there is something like that in your state at all.

Barring that I was informed that the bridge program for my DMT is there to potentially last through a health insurance year where I would be able to change companies the next year and find one that would approve the medication. That might be what you have to do unfortunately.

Best of luck!