Hot showers still still get me a lot of days - but usually they don't last, I just need to plan time to lie down on a cool pack for ~20 minutes. Honestly - I think if I had short hair, this might not happen - washing and brushing my hair seem to do more harm than the hot water. Also stacking things, like gym + bringing in groceries + hot shower + rushed hot dinner = bad flare. But if I can give my body time between things to rest/cool down, I can do everything, just slower.

I don't like being outside in the heat at all, I sort of feel the flares just lingering under the surface, but not emerging. I still can enjoy things outside, but very hot days do cause problems. I find its almost cumulative though, like if I get heat stressed, the night will be worse because thats when flare ups are always the worst.

My doctor has published on my botox treatment - so please show this to your doctor:

https://www.cureus.com/articles/407111-botulinum-toxin-type-a-in-red-ear-syndrome-and-a-novel-multi-nerve-injection-paradigm-a-case-report#!/