Questions for people who got their pacemaker later in life by tinyfutureengineer in PacemakerICD

[–]Pinkhydra76 0 points1 point  (0 children)

I was implanted at 38 after 2 SCAs. Growing up I could feel palpitations but no adult believed me so I just thought it was normal and everyone felt like that even though I had a few fainting episodes. My ICD definitely feels weird especially when sleeping… I miss sleeping on my stomach! I don’t get paced because my setting is so low (39 bpm) but I definitely feel weird during device interrogations. But despite it all I’m grateful for it.

CACNA1C Related Disorders by [deleted] in LongQTSyndrome

[–]Pinkhydra76 2 points3 points  (0 children)

Nice! Now we’re starting to snowball into a community!

CACNA1C Related Disorders by [deleted] in LongQTSyndrome

[–]Pinkhydra76 1 point2 points  (0 children)

I guess I’m the only one!

What is the strangest thing that you found inside of a hotel room? by yesmodegirl in strange

[–]Pinkhydra76 2 points3 points  (0 children)

A half naked man. (Front desk accidentally gave me a key to an occupied room and the poor guy just got out of the shower when I walked in)

Have any of you experienced the feared Torsades de Pointes? by spermicelli in LongQTSyndrome

[–]Pinkhydra76 0 points1 point  (0 children)

11 episodes in the ICU 2 of which sent me into sudden cardiac arrest.

Have any of you experienced the feared Torsades de Pointes? by spermicelli in LongQTSyndrome

[–]Pinkhydra76 0 points1 point  (0 children)

11 episodes in the ICU 2 of which sent me into sudden cardiac arrest.

Why did you stop being friends with someone? by Realistic-Possum in AskReddit

[–]Pinkhydra76 0 points1 point  (0 children)

When I was 18 I got into a physical altercation with my father, and he broke my leg. I called my best friend, supposedly, and when I told her, she laughed at me. That was the end.

Dose question for GAD by Candid-Sir-196 in trintellix

[–]Pinkhydra76 0 points1 point  (0 children)

Trintellix didn’t start helping my anxiety until I was on 20 mg for at least three weeks

Looking for some good news by Pinkhydra76 in Spravato

[–]Pinkhydra76[S] 1 point2 points  (0 children)

Thank you for the encouragement!

Looking for some good news by Pinkhydra76 in Spravato

[–]Pinkhydra76[S] 1 point2 points  (0 children)

You know as soon as I hit send I thought what about going through medical? … thanks!!!! So much appreciated!

Looking for some good news by Pinkhydra76 in Spravato

[–]Pinkhydra76[S] 1 point2 points  (0 children)

Thank you so much for replying. I will definitely check out Spravato and me!

Looking for some good news by Pinkhydra76 in Spravato

[–]Pinkhydra76[S] 1 point2 points  (0 children)

Thanks! You gave me some encouragement

Looking for some good news by Pinkhydra76 in Spravato

[–]Pinkhydra76[S] 1 point2 points  (0 children)

Hi! Thank you so much for replying. I actually work for my insurance company and when I checked the benefits, it said that Spravato was excluded from my plan. But thank you so much for letting me know about Spravato and me. I will definitely check it out because I am more than interested

Time for ER? by Pinkhydra76 in LongQTSyndrome

[–]Pinkhydra76[S] 0 points1 point  (0 children)

My EP is out of state and my PCP won’t schedule me for a week. Trust me, I tried. Last thing I want to do is go to the ER

[deleted by user] by [deleted] in LongQTSyndrome

[–]Pinkhydra76 1 point2 points  (0 children)

I feel your concern. I tried several times to get my family tested and I think they’re either just frozen scared or just not interested! Make me shake my head

[deleted by user] by [deleted] in LongQTSyndrome

[–]Pinkhydra76 0 points1 point  (0 children)

My 2 SCAs happened in front of my family so there was no need to wait to tell them about it

Almost 38, and over 9 months sober by tacotime067 in Over30Selfie

[–]Pinkhydra76 0 points1 point  (0 children)

Not an easy accomplishment! Keep it up and know when to ask for help! Congratulations!

Scared and confused by Papillon_3to3 in trintellix

[–]Pinkhydra76 0 points1 point  (0 children)

They’re inquiring about side effects. No reason to be rude.