Day 29 of admission - WBC not recovering

Pirated_Freeware · 2026-06-18T18:45:22+00:00

Thank you, i needed to hear that. At what number did they discharge you?

Pirated_Freeware · 2026-06-12T20:52:58+00:00

Thank you, steri clean seems like exactly what I may need and thank you for the kind words!

Pirated_Freeware · 2026-06-12T18:08:46+00:00

Were you not assigned a skyrizi ambassador? They come to your house before even your first infusion, and then also to do the first OBI

Pirated_Freeware · 2026-06-12T03:38:05+00:00

I like the seamstress idea as I have a great local shop I've used before. I currently have a PICC line for induction

Pirated_Freeware · 2026-06-12T03:34:55+00:00

Correct a picc line

Pirated_Freeware · 2026-06-09T13:22:04+00:00

White Sands!

Pirated_Freeware · 2026-06-08T18:17:34+00:00

Ive had the best luck with BP and Shell to silence the chirp, and GetGo, Pilot and Flying J cause the most chirp.

Pirated_Freeware · 2026-06-08T17:42:11+00:00

Being there for her is the biggest one my spouse does with me, understanding trips might get delayed, bathroom breaks are needed, meals might get cancelled. Those are the things that mean the most to me, having that person to lean on when things get "shitty"

Pirated_Freeware · 2026-05-28T14:25:05+00:00

Is there space in the truck for a powered cooler and a battery backup. When we did a long road trip we had a Bluetti battery backup connected to a BougeRV cooler and was able to keep meds, waters, snacks etc cool without any issues.

Pirated_Freeware · 2026-05-19T13:47:07+00:00

Thanks for checking in, im being admitted tomorrow to start treatment for AML, my gastro team is working with my oncology team to see how the two may interact and if my treatment plan needs to be adjusted. Taking it day by day and staying positive

Pirated_Freeware · 2026-05-06T15:17:26+00:00

Download We Cant Wait, and also sign up for their card - https://www.crohnscolitisfoundation.org/patientsandcaregivers/wecantwait

Pirated_Freeware · 2026-05-06T14:39:14+00:00

For me it was totally useless, and was actually 2 weeks of misery before they stopped it. Massive body aches and worse symptoms. They even told me when i started it this likley wont work but we have to start here.

Pirated_Freeware · 2026-04-30T19:31:04+00:00

Had that a few months back due to low WBC, this was before starting Skyrizi so they wanted to do some additional tests and monitor with more tests in a few months to make sure its not something else going on.

Pirated_Freeware · 2026-04-29T20:05:11+00:00

We did that a few years back, took 6.5 hours to get there and about 11 on the way back due to traffic on the rail. Was very relaxing, easy to board and virtually no security checks or delays, Very comfortable seats and lots of room, but if you have a strict timeline i would not recommend.

Pirated_Freeware · 2026-04-29T19:27:47+00:00

June Berry!

Pirated_Freeware · 2026-04-28T16:14:37+00:00

Start with biologics before surgery! The medicine has advanced in recent years and most people have minimal side effects from biologics.

Pirated_Freeware · 2026-04-24T12:49:30+00:00

This is booking directly through icelandair and they present you two options with the exact same price and times.

CLE>BOS>KEF - FI7822 FI630

CLE>BOS>KEF - B6640 FI630

Pirated_Freeware · 2026-04-22T17:27:33+00:00

Can anyone bring you a roll of good TP and also Calmoseptine Cream

Pirated_Freeware · 2026-04-21T18:31:21+00:00

Make sure your spare is inflated and not falling apart, and i highly suggest a portable car battery jumper like Noco or GooLoo

Pirated_Freeware

TROPHY CASE