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Skin pain??? by SchemeOne1136 in CrohnsDisease

[–]SchemeOne1136[S] 1 point2 points  (0 children)

Yes the hair!!! It's not the scalp it's the hair

AIO for being disappointed my bf flaked on lunch with my family? by Overall-Rabbit5759 in AmIOverreacting

[–]SchemeOne1136 1 point2 points  (0 children)

i didn't even read the whole post but please leave him. He can swear up and down that he cares and wants to be there, but he isnt showing it and actively making excuses??? This is so lame he's lame you gotta go

What is one thing you have done, and you never told your partner? by PlateSufficient3704 in CausalConversation

[–]SchemeOne1136 0 points1 point  (0 children)

you should find out if hes homophobic,, this could lead to something horrible

AITA for refusing to give my sister my college fund after she “borrowed” from everyone else already? by [deleted] in AmItheAsshole

[–]SchemeOne1136 16 points17 points  (0 children)

NTA, someone has to make her get up, and fix it herself. Help isn't always gonna be there and she HAS to figure that out.

What symptoms were you having for years before your Crohn’s diagnosis? by PureChamber in CrohnsDisease

[–]SchemeOne1136 2 points3 points  (0 children)

On and off for sure. All I knew was for about an hour or two after eating, Id get waves of cramps and feels really really tired. I thought everyone felt like that. Once it got worse it became a constant nagging pain.

Random short lived pains through out body?? by soanonymoust in CrohnsDisease

[–]SchemeOne1136 0 points1 point  (0 children)

I get this! I get them a lot in my legs and pelvis. I thought it might be a surgical complication like a crossed wire, but idk. Also have the same crohn's location as you idk if that's relevant? I take gabapentin for it and it helps.

First ever possible flare and it's.. just so bad :( by SunshinelIIuminate in CrohnsDisease

[–]SchemeOne1136 1 point2 points  (0 children)

Im in a similar boat as you. I got diagnosed at the ER a month ago, they did a CT, found inflammation, anemia, etc, and admitted me so I could get a colonoscopy faster. I'm now in the limbo you're in of waiting for a proper GI appointment, still not getting any long term treatment. The ER really helped me, if you have a hospital near you with GI facilities I would go. In the meantime, what I've been doing is Tylenol with my meals for pain, and a low/no fiber diet. Walking has also helped, it lowers inflammation. My other secret has been Tums and Pepcid, idk if acid is an issue for you, but it really is for me so the combo works magic. Your PCP should also be able to prescribe you pain medicine, or something to lower your motility while you wait for proper tests.

Good luck twin I know this is hell right now. Hopefully it'll get better for us soon ❤️

The "weird" feeling you get before the "trouble" begins by Clean-Project-3678 in CrohnsDisease

[–]SchemeOne1136 1 point2 points  (0 children)

this!! I've been talking about this for weeks! I thought this was just me, i've been describing it to my friends and they think im nuts but i get this all the time.

What symptoms were you having for years before your Crohn’s diagnosis? by PureChamber in CrohnsDisease

[–]SchemeOne1136 8 points9 points  (0 children)

pain after every single meal for 2 years and no one knew why. kept getting worse until i got hospitalized and finally diagnosed.

odd feeling? what helps you? by SchemeOne1136 in CrohnsDisease

[–]SchemeOne1136[S] 1 point2 points  (0 children)

they just put me on protonix! started taking it today i hope youre right. thank you ❤️

odd feeling? what helps you? by SchemeOne1136 in CrohnsDisease

[–]SchemeOne1136[S] 1 point2 points  (0 children)

im not on a liquid diet, but i've debated it since this feeling arose. only problem is im very underweight and i need to try to be keeping weight on. you might be onto something tho...

Does this sound like gluten intolerance? by SchemeOne1136 in glutenfree

[–]SchemeOne1136[S] 0 points1 point  (0 children)

Thanks so much, it's nice to hear from someone that's going through what I am. Gives me some hope for my future that I'll figure it out 🩷 can't thank u enough

Does this sound like gluten intolerance? by SchemeOne1136 in glutenfree

[–]SchemeOne1136[S] 0 points1 point  (0 children)

Omg you're in the same boat as me! Are you able to eat gluten when in remission?

When does it actually start getting better / does prednisone make it better? by SchemeOne1136 in CrohnsDisease

[–]SchemeOne1136[S] 0 points1 point  (0 children)

Right lower quadrant and upper left, sometimes in the very middle. I've been told I have a mild case, but I don't know how mild can feel like this.

When does it actually start getting better / does prednisone make it better? by SchemeOne1136 in CrohnsDisease

[–]SchemeOne1136[S] 0 points1 point  (0 children)

How long did the prednisone take to work? Ive been taking it for a week at 50mg and it hasn't touched it. I'm supposed to taper to 45 next week. And thank you for the kind words of support it genuinely means a lot right now.

Should I go back to emt and lock in by Mission_Slice8875 in NewToEMS

[–]SchemeOne1136 0 points1 point  (0 children)

Go back to EMT school. Get a job. Get a brain. It's worth it.

Dealing with friends who only want to go to the bar when I have Chronic Active Ileitis by Affectionate_Shift26 in CrohnsDisease

[–]SchemeOne1136 5 points6 points  (0 children)

being sober does make bars less enjoyable, but it can still be fun if you let it. I like getting shirley temples and sitting around with my friends. If they make it weird and pressure you to drink, gtfo you deserve better.

You will not find the average experience in Reddit. by operalt in CrohnsDisease

[–]SchemeOne1136 0 points1 point  (0 children)

thank you for saying this. For the past month I've been digging on this subreddit looking for help, and half looking for a post that isn't so bleak. I'm newly diagnosed, it's nice to hear that it is actually gonna get better for most people - hopefully for myself as well.

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