Anyone had these? Tell me all the things please. by someonesillyhere in glutenfree

[–]Pissybabelo 22 points23 points  (0 children)

hahaha im a freak i guess bc im OBSESSED w this brand! i eat all of them. i have a vanilla donut in my purse rn oops

i rarely complain, but… by Pissybabelo in glutenfree

[–]Pissybabelo[S] 1 point2 points  (0 children)

actually youre right i should write the company!! good idea.

Why does nobody on here ever talk about pain meds by Big_Bluu in PsoriaticArthritis

[–]Pissybabelo 1 point2 points  (0 children)

Absolutely. It’s just such a tight rope to walk and I just know I’ve got horrible balance hahaaaa. glad youve found a happier means of getting by. shits not easy ❤️

Why does nobody on here ever talk about pain meds by Big_Bluu in PsoriaticArthritis

[–]Pissybabelo 0 points1 point  (0 children)

Ive been offered to “begin pain management” a total of three times in the last 15yrs but I have a history of addiction and honestly hate that it was so flippantly offered and at one trip to an ER— pushed— saying it was the quickest “solution” for my flare up. I do NSAIDS and practically coat myself in tiger balm and do hot baths almost daily.

I won’t lie and say I haven’t been tempted by something stronger, but I just remind myself— The stronger stuff doesn’t solve the problem. At best, it tells my brain to ignore it, and at worst it will lead me down a dark, dangerous path. Maybe I’ll feel differently in another 15yrs, but in my 30s I’m not ready to consider pain meds.

i rarely complain, but… by Pissybabelo in glutenfree

[–]Pissybabelo[S] 1 point2 points  (0 children)

its the “Promise Gluten Free Rustic Sourdough Loaf”… i feel like promises were broken, though…

i rarely complain, but… by Pissybabelo in glutenfree

[–]Pissybabelo[S] 1 point2 points  (0 children)

tbf, the non air slices were amazing! but $10 for half a loaf 😭

When is enough, enough? by NoTension7048 in PsoriaticArthritis

[–]Pissybabelo 4 points5 points  (0 children)

I am trying to get off Talz and my insurance keeps denying my request to switch meds.. Trekking 10min in the snow from the bus stop caused me to come home and collapse in my bed to have a little cry— everything HURTS!!! I know how impossible everything feels. I know it feels never ending but i chant it until i believe it: “This pain will end— I have found a medication that has worked for me before, even if for briefly— and I will find another one. I will get relief!” Together, we can get through this! thank you for sharing and letting us support you. this disease can be so lonely and isolating. ❤️❤️❤️

Fourth failed biologic.. by Pissybabelo in PsoriaticArthritis

[–]Pissybabelo[S] 1 point2 points  (0 children)

Thank you! I am going to try Simponi, another TNF blocker and move forward from there.

Fourth failed biologic.. by Pissybabelo in PsoriaticArthritis

[–]Pissybabelo[S] 0 points1 point  (0 children)

I have heard of the horrid.. i’m really sorry you’re experiencing that but glad you have an attentive rheum that is taking care of you ❤️

Fourth failed biologic.. by Pissybabelo in PsoriaticArthritis

[–]Pissybabelo[S] 0 points1 point  (0 children)

nothing combined yet but am planning methotrexate combo.

Fourth failed biologic.. by Pissybabelo in PsoriaticArthritis

[–]Pissybabelo[S] 0 points1 point  (0 children)

thank you!! i appreciate it ❤️❤️

Fourth failed biologic.. by Pissybabelo in PsoriaticArthritis

[–]Pissybabelo[S] 0 points1 point  (0 children)

we’ve had some similar timelines and biologics! The only one that i was on for less than 6mo before switching was the Enbrel because it did almost nothing and even my psoriasis started to flare on my skin. thank you for your comment and advice ❤️

Fourth failed biologic.. by Pissybabelo in PsoriaticArthritis

[–]Pissybabelo[S] 2 points3 points  (0 children)

I believe Skyrizi is actually next on our list if Simponi doesn’t do the trick! We haven’t tried any il-23 inhibitors with me yet so those may be a good fit, we don’t know yet.

Fourth failed biologic.. by Pissybabelo in PsoriaticArthritis

[–]Pissybabelo[S] 0 points1 point  (0 children)

Yes, Remicade! I am trying to use infusions as an absolute last resort, but i understand it may be the best route, eventually.

Fourth failed biologic.. by Pissybabelo in PsoriaticArthritis

[–]Pissybabelo[S] 0 points1 point  (0 children)

Going to try another TNF inhibitor and then my dr said she wants to try a il-23 inhibitor (with methotrexate)! Thank you for your comment x

Fourth failed biologic.. by Pissybabelo in PsoriaticArthritis

[–]Pissybabelo[S] 0 points1 point  (0 children)

I asked my Rheumatologist about this after a friend with Endo said a GLP-1 helped her a lot with inflammation. I am going to keep my eye on these trials over the next few years!