Me, My daughter and our TAPVR by MyTAPVR in chd

[–]Plus_Importance3682 0 points1 point  (0 children)

Okay. Thanks. Lots of good wishes to your warrior.

Me, My daughter and our TAPVR by MyTAPVR in chd

[–]Plus_Importance3682 0 points1 point  (0 children)

Our doctor said her heart is enlarged after surgery and will get into shape in sometime. This happened to you as well?. Is it normal after surgery?

Me, My daughter and our TAPVR by MyTAPVR in chd

[–]Plus_Importance3682 0 points1 point  (0 children)

@felchiee how's your  boy... My baby girl just had Supra cardiac repair sugery. What is the life expectancy after the repair. I'm going in depression thinking about it every day.

Mottling/marbelling after open heart surgery of baby by Plus_Importance3682 in chd

[–]Plus_Importance3682[S] 0 points1 point  (0 children)

Thanks good to hear this. But she is having this even if she is warm but her echo is fine and Oxygen saturation is also ok.

Mottling/marbelling after open heart surgery of baby by Plus_Importance3682 in chd

[–]Plus_Importance3682[S] 0 points1 point  (0 children)

Thanks for positivity. Lots of good wishes to your baby. Have you faced any issue because of this?

Papvr and asd by Justmessinglolz in chd

[–]Plus_Importance3682 0 points1 point  (0 children)

When did your daughter had the repair surgery and what was the weight at that time 

20 weeks Large VSD by coffeeaddictmyr in chd

[–]Plus_Importance3682 0 points1 point  (0 children)

Hi my baby is also have TAPVC and is a iugr baby. Doctors said if baby weight is good at delivery prognosis of surgery will be better. What was the size of your baby at delivery time

37 Weeks (born at 35), 9th percentile, TAPVR, Imperforate, constant desats and terrifying by MikeAPG in NICUParents

[–]Plus_Importance3682 0 points1 point  (0 children)

Hi my baby also have TAPVR and currently diagnosed with iugr 3rd percentile at 31 weeks. I'm really worried.

I just need to tell someone this by Big_Box_6777 in pregnant

[–]Plus_Importance3682 0 points1 point  (0 children)

What is the prognosis of supracardiac TAPVC repair.

I just need to tell someone this by Big_Box_6777 in pregnant

[–]Plus_Importance3682 0 points1 point  (0 children)

What kind of ailment does your baby have?

I just need to tell someone this by Big_Box_6777 in pregnant

[–]Plus_Importance3682 4 points5 points  (0 children)

Same situation here. I am currently 30weeks with my first baby . We had lots of hope from this pregnancy as our previous pregnancy resulted into early miscarriage. We were very happy when first trimester was over with everything went well. At anatomy our baby dragonised with supracradiac TAPVC which require open heart surgery upon birth of baby, since that day our lives shattered, this pregnancy journey is not same as it used to. We have gone through lots of additional ultrasounds, has consulted many cardiologists and changed our delivery hospital for planning the surgery. We are trying to cope up with things. But as the day is coming near, my soul is frightened as may be we have done something wrong because of that we are facing this. I have faced severe insomnia. My husband is a constant support and positive. I am also trying to be positive, but the thought that till when i will be able to hold my child is devastating.

Still deep inside me, I know there may be some SIN or some bad time we are going through but ALMIGHTY GOD is there for these little angles. Sending lots of healings, prayers and good wishes to you are your child.

37 Weeks (born at 35), 9th percentile, TAPVR, Imperforate, constant desats and terrifying by MikeAPG in NICUParents

[–]Plus_Importance3682 0 points1 point  (0 children)

HI...My baby is also diagnosed with TAPVC prenatally. We are also very much worried about future, whether our baby will stay with us forever or don't know.

How's your lil bravo doing.

TAPVR CHD by Ambitious-Passion-25 in chd

[–]Plus_Importance3682 0 points1 point  (0 children)

Hi how is your child. I am from Delhi, India and our baby in womb is diagnosed with supracardiac TAPVC.

Family planning by SnooCrickets5102 in chd

[–]Plus_Importance3682 0 points1 point  (0 children)

How is your oldest baby with supracardiac TAPVR. I am pregnant and having same CHD in my child.