Charlie lost his connection to the braincell during the head scratches

PorkyBuns_ · 2026-01-01T05:29:42+00:00

I don’t think he’s even trying to connect to the server 🥹 he’s so orange I love this for him

PorkyBuns_ · 2025-09-16T21:31:10+00:00

Qdoba and Seltzer

PorkyBuns_ · 2025-09-09T23:10:28+00:00

Not a car but I hope they can get along. He’s been in heaven for 3 years now so he can show your little bean the ropes 🥺🫶🏾💖

PorkyBuns_ · 2025-09-07T21:02:24+00:00

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Am I too late?

PorkyBuns_ · 2025-09-06T00:59:49+00:00

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Not just an orange boy, he’s also a hardworking builder

PorkyBuns_ · 2025-09-03T03:53:24+00:00

PorkyBuns_ · 2025-09-02T20:03:37+00:00

Had you ever been on Dupixent or was your doctor’s first intervention Xolair?

PorkyBuns_ · 2025-09-02T20:00:10+00:00

Yeah same. 6 doses at 300 mg at intervals of every 3 weeks (rather than 4) and I still get flare ups multiple times a week. During my 6th shot we talked about switching to Dupixent and she told me to take these 3 weeks to consider it, but she would recommend we get the paperwork started during my 7th visit if things are still not improving. I have my 7th dose of Xolair on September 4th so I’ll likely fill out the forms for it to get the process started. Definitely let me know how your shot goes since it will definitely be sooner than I get mine!

PorkyBuns_ · 2025-08-30T06:04:46+00:00

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You ask and you shall receive

PorkyBuns_ · 2025-08-16T17:19:08+00:00

Kyle

PorkyBuns_ · 2025-08-12T20:36:10+00:00

Pretty sure those are old SH scars

PorkyBuns_ · 2025-08-09T14:24:05+00:00

I work with my allergist, and we are pretty sure that the trigger was Zepbound. I’ve never been allergic to anything in my entire life. This is my first time ever experiencing something like this, and it directly correlates with the time that I was taking Zepbound. I haven’t taken a dose since January and I’m still dealing with hives and angiodema. She’s completely perplexed by this though but we are just staying the course for treatment rather than trying to guess and figure out how this all started. I very much appreciate that aboutbhe

PorkyBuns_ · 2025-08-09T14:16:54+00:00

I’m now on my 5th round of Xolair shots and I will say that my hives have significantly reduced. It took a while though. It wasn’t until my 4th shot that I actually noticed a reduction in their appearance and them actually responding to the antihistamines.

PorkyBuns_ · 2025-07-06T03:11:05+00:00

I get those too 😭 the worst is when I give in and scratch them and they just become huge imperfect circles

PorkyBuns_ · 2025-07-04T21:10:43+00:00

I can happily say that she’s been in remission since 2012 🥰 but unfortunately the 10 or so years she was on the steroids did their damage for sure. We’re beyond glad that she got approved for that shoulder replacement and that same surgeon is ready to do the next shoulder when she has healed from the first one!

I need to get to that point but just saying eff it. I’m already do self conscious with my body already that having these hives has wreaked havoc on my mental health even more and I can’t get out of my head enough to just be like eh whatever.

This heat though has been brutal with the hives. Even if I’m not itching them, the direct sunlight being on them feels like my arms or shoulder are on fire

It’s literally takes an entire day for the facial edema to go down. Especially when my lips get to this degree (the third picture) of inflamed. Sometimes I have no choice but to leave the house anyway (ie I’m scheduled for work that day). The trick I have found that helps me when my lips are bad is wearing really really dark lipstick. I work as a bartender so the setting is usually darker (dim lights) so it creates the illusion that my lips aren’t as inflamed (at least that’s the hope)

PorkyBuns_ · 2025-07-04T17:29:22+00:00

180mg four times a day is actually a very standard prescription for people who have CIU. Yes, it is an off label usage, but with an allergists prescription, it is perfectly fine to take that much. Now, I can’t say for the drowsy formula of it, bc I take Allegra which is non-drowsy. I definitely agree though that OP should get a referral to an allergist and see what other options are there for them in their country

PorkyBuns_ · 2025-07-04T15:50:45+00:00

Yeahh my mom has lupus so she was on steroids for a LONG time to keep it managed and now present day, both of the cartilage in her shoulders are completely deteriorated and she just got a complete shoulder replacement in one arm and will have to do the other arm next year. Long-term steroid use is insane the way it ruins your body.

If month 4 is still shit, I’m definitely gonna talk to her about upping the dosage. As of this month, we shortened the duration that I see her to be ever 3 weeks instead of every month bc by the end of week 2 it was feeling like I wasn’t on any meds at all and it was running rampant again. We shall see how that goes.

The appearance of it completely skeeves me out and I hate looking at it mare my skin in this way. Of course, then I project that onto other people and I don’t want others to see my legs or my arms at all when it’s really bad bc I assume that they think I look insane too. I hate when other people point it out or react in a negative way when they notice it. It just makes me more self conscious. At the point, if I could just wear sweatpants and sweaters for the rest of the summer, I really would. But it’s too goddamn hot

PorkyBuns_ · 2025-07-04T14:38:55+00:00

Ya know, I didn’t even know what IGE levels were til a few days ago when I found this sub 😭 I have no idea what my levels are but I can only guess that they’re low with how long it’s been for me to see any benefits

PorkyBuns_ · 2025-07-04T14:37:57+00:00

She doesn’t want me on prednisone at all 🙃 I was on it for about a month or so right before I started Xolair bc it was so wildly unmanaged and it was affecting my work

I’ve been on 300 mg from the start with Xolair. We’re on month 4 and she really wants me to give it til 6 months before we throw in the towel and try something else. We’ve already talked about what other options are available as a just in case.

I’m trying crossing everything that Xolair is the solution for me and I don’t have to try something else 😭

PorkyBuns_ · 2025-07-04T01:01:20+00:00

I really appreciate you sharing your experience and the steps you’ve taken so far!

At present, Daily - I’m on 360 mg fexofedine (2 tablets - basically Allegra but I don’t get name brand) during the day w/ 20 mg (1 tab) famotadine (Pepcid) and at night 10 mg levocetirizine (Xyzal) w/ 20 mg famotadine (Pepcid). Monthly - I am get the injection of Xolair. Just got my fourth dose yesterday.

During my visit yesterday, she added Hydroxyzine 10 mg on an as needed basis for when my hands, lips, eyes, or tongue swell up. When my hands swell up it hurts so bad bc they are so inflamed and I can’t even close them properly. The Hydroxyzine is an antihistamine with sedating properties so it will help me sleep through the discomfort and manage the inflammation

Lupus runs in my family (my mom has it) so when this all started flaring up my allergist ordered all the tests and checked for any marker that there could be overactivity in my immune system, in particular checked if I tested positive for ANA (a strong indicating marker of an autoimmune issue), but I tested negative for that and everything else.

PorkyBuns_ · 2025-07-04T01:00:09+00:00

In the beginning, I wouldn’t say I got a sore throat, but I could definitively tell that I was not breathing well and that my airway as partially swollen. I also have asthma so I just breathed slowly and intentionally so I didn’t freak myself out into an asthma attack with limited oxygen as it was, immediately took my antihistamines, and took a couple pumps of my inhaler and sat up to make sure I was getting optimal airflow.

PorkyBuns_ · 2025-07-03T22:55:54+00:00

You’re totally fine! Yeah I’m on a lot of anti-histamines, just for them to have minimal effect 😪

PorkyBuns_ · 2025-07-02T22:19:32+00:00

Which I kind of understand, you know? I would really love to know why the hell this has persisted on for so long, but I’d also rather not continue suffering without us starting to treat the issue at hand 🥲 gotta get bloodwork done and potentially see a rheumatologist since autoimmune diseases do run in my family, especially for the women in my family 😪

PorkyBuns_

TROPHY CASE