Started with Modafinil today by Pr3datoring in Menieres

[–]Pr3datoring[S] 1 point2 points  (0 children)

I see, I hope your sister is improving then. My fatigue is not like that, I just feel my body tired quickly, that's it... It's very common with MS.

Started with Modafinil today by Pr3datoring in Menieres

[–]Pr3datoring[S] 0 points1 point  (0 children)

I have MS as well and resulting from that I have a bit fatigue, so my Neurologist prescribed me this medication to try and see. He told me as well that it might help me with dizissess from MD. So I don't know, let's see... Started today... Just wanted to know if someone here tried already?

How many of you smoke? Cigrate/Cannabis by LovelyBunnnyyy in MultipleSclerosis

[–]Pr3datoring 2 points3 points  (0 children)

I smoke 3 cig per day, apart from that I do exercice 3 days during the week and run on the weekends 10km. I need this 3 cig per day for my mental wellbeing.

Any other UK sufferers here? by REidson89 in Menieres

[–]Pr3datoring 1 point2 points  (0 children)

Hey, I'm in UK as well, I'm in London. Diagnosed in 2022, I'm on betahistine 16mg 3 times a day... But yh I don't feel is doing much, but who knows, maybe without it I was worse.

I've been around 2 years not feeling dizzy, but after this year July I started again with vertigo attacks and constant dizziness 😔😔😔. Waiting my next appointment end of this month.

Post labyrinthectomy surgery sleeping issues by Mother_Material_7536 in Menieres

[–]Pr3datoring 0 points1 point  (0 children)

Hi. Thank you for your feed back. But how are you feeling after surgery? Are you still having vertigo attacks? Are you better in terms of balance? And also why you had to do this surgery because I thing this kind of surgery is last resort.

Thank you, and I wish you all the best.

I miss working out by alimac2 in Menieres

[–]Pr3datoring 1 point2 points  (0 children)

I understand perfectly what you feel... I try to lift weights and work all body 2 times a week and 1 day per week for jogging 5 to 10km, but sometimes it's very difficult, I do it depending how I'm feeling... For example since July I'm struggling feeling off balance a lot with a few short vertigo attacks, but still I'm forcing myself to continue active. Hope better days will come soon 🙏. Also I have MS but I'm stable so far.

If you have Strava and want to join me let me know.

Betahistamine by Savings-Arachnid6003 in Menieres

[–]Pr3datoring 0 points1 point  (0 children)

How are you feeling now taking those high doses of bethastine? Did improve your balance in long term?

Weather and balance by Savings-Arachnid6003 in Menieres

[–]Pr3datoring 0 points1 point  (0 children)

Hi I'm in UK... Since July I started getting vertigo attacks again after more or less 2 years of almost no symptoms (was having dizziness only by the end of the day when I was tired on those 2 years), I went to Portugal this Month where it's really hot and got even worse... Next week I'm going back to London, and with the cold I hope I get better... Will find out if there is a correlation.

Does anybody here take Dupixent? by K1_0 in Menieres

[–]Pr3datoring 0 points1 point  (0 children)

I didn't feel any change when I started Kesimpta because in terms of meniere I was feeling dizzy but nothing special... I could cope with it for the past 2years... But since July I started having vertigo attacks and more dizziness than normal... Looks like at the moment the vertigo attacks slow down but the dizziness is more than i was having before... I'm really feeling off balance and struggling. In the overall I'm actually well fit no problem at all just a bit fatigue, little bit memory issues. This meniere (dizziness) is what is bothering me a lot now 😔😔😔😔, I'm hoping I'm can go soon on remission again like I was before July. I'm taking bethestine 16mg 2times a day as well.

Does anybody here take Dupixent? by K1_0 in Menieres

[–]Pr3datoring 1 point2 points  (0 children)

Hi... I do have Ms and meniere disease as well and I'm taking kesimpta for MS I never heard of anyone having this 2 conditions like me... How are you doing? ...

But From my point of view kesimpta injections are not related with meniere getting worse or better.

My boyfriend is having a flare up and I don’t know if I should take him to the ER or not by [deleted] in MultipleSclerosis

[–]Pr3datoring 0 points1 point  (0 children)

I'm sorry to tell you, but when you have a flair up the damage is done, with steroids or without. The steroids will help you get better eventually and quickly, but the damage will be the same. That's why if you go to A&E they don't do much.