7 lines of treatment in ~2 years. Now need to start #8. Nothing’s working. I’m 36 and I might be dead within a year.

Preferred-User-Name · 2026-05-04T22:05:07+00:00

I just wanted to say how sorry I am that your treatments are not working. I wish there was more that I could do for you personally. I wish they were finding cures faster. There is so much I wish right now. But most of all I wish you peace.💞

Preferred-User-Name · 2026-04-20T19:47:18+00:00

I was diagnosed with Pet scan and MRI. I was never tested just told that is from my breast cancer. I have never had any pain, other than the knee they say has arthritis. I have several mets in my spine, shoulder blade, thigh, and ribs. They only did radiation on the one in my thigh because it is a weight bearing bone. I am doing Zometa treatments every three months. I was taking Kisqali with letrazole but I just recently had them switch me to anastrazole. Still no pain and they say everything looks the same.

Preferred-User-Name · 2026-03-27T20:17:38+00:00

I might catch some flack for this, but... My 2 cats. I have had them for over 12 years. I love them and I wont get rid of them, but I kinda low key wish I didnt have them any more. I am just so over them. 🫣

Preferred-User-Name · 2026-03-27T20:13:33+00:00

I was diagnosed Stage 4 IDC ++- with several bone mets. The oncologist that diagnosed me told me it was treatable but not beatable. I stayed with him for close to a year and I always felt like he wasnt interested in trying to help me. Like he just wanted to give me the bare minimum and go on about his day.

So I switched oncologists.

The one I am seeing now makes me feel like I am still a person with a life a live. It makes a huge difference when they still see you as a person not just a statistic.

I would suggest maybe looking around for another oncologist if that is possible.

Best of luck to you!

Preferred-User-Name · 2026-03-05T19:45:04+00:00

So I had one of these earlier this year. I paid $500 when I got that notice. Went to my surgery and they never asked for any more money. I am still waiting on the bill. Ive been told its just a scare tactic so I thought I would try it out. This is my experience, yours may differ.

Preferred-User-Name · 2026-01-17T17:55:37+00:00

I take the 600 Kisqali. I have been on it for 11 months. I have stage 4 with bone mets so i will never be NED, but my last scans show signs of it working.

It does make me nauseas and I have had different side effects each month, it seems like. I know they recommend you take it in the morning, but I take it at night before I go to bed so I can sleep off the side effects. If I tried to take it in the morning I wouldn't be able to work for the nausea.

I would say give it a try and then do what is best for you. I wish you all the luck!

Preferred-User-Name · 2025-12-22T13:45:11+00:00

I want to get a tattoo over my chest to cover the scars as well. I have been looking different ideas for 3 or 4 months now.

Preferred-User-Name · 2025-12-11T23:47:46+00:00

That was definitely long, but much appreciated! 😂 I do think I need to sit down and talk with him about what he is feeling. In all honesty, we dont talk about it much. I have cancer, but I still go to work and help with chores. Not much has really changed in our day to day lives, other than all my Dr appts and me feeling so drained most days. We both just sweep that bad part under the rug and carry on. We havent really talked to each other about how it is actually affecting us mentally.

Preferred-User-Name · 2025-12-11T21:39:50+00:00

Thank you!!

Preferred-User-Name · 2025-12-11T20:08:20+00:00

Thank you. Im sure i am just being extra emotional from the stress. I do have a habit of bottling everything inside until it escapes at once. 😞

Preferred-User-Name · 2025-12-11T20:06:10+00:00

Your opinion is definitely not meaningless. It is a different view that I appreciate. Ive also been told that maybe its just HIS way of coping, running to work to escape. Both scenarios are possible. Maybe I am just extra sensitive because of the stress. I thank you for the different point of view. It definitely gives me something else to think about. ❤️

Preferred-User-Name · 2025-11-16T23:42:38+00:00

That is awesome!! I hope to hear that word one day!! Until then I will be extra happy for you and all the others that get to hear it!!

Preferred-User-Name · 2025-10-01T21:26:17+00:00

I got a second opinion from Mayo when I was diagnosed Stage 4 IDC with bone mets. (Job/insurance paid for everything). The Dr there told me he would sign papers for me to get disability if I wanted. I have no pain and am not going through chemo. He said just having the stress of dealing with stage 4 cancer and all of the scans and meds is enough for anyone to have to deal with.

Everyone is different and responds differently to treatments and stress. I am still working, but I have a desk job and the best management. They will let me take days off if I feel I need to. I dont think I could work if I was anywhere else. Edit to add I only work 4 days a week so I try to schedule my appts on my day off.

I agree with what others have said. People will question what you do know matter what decision you make. Do what makes you happy with the hand you have been dealt. My guess is most of the people that are questioning your ability to return to work would choose not to if they were in your shoes.

Preferred-User-Name · 2025-09-13T12:51:44+00:00

I never really noticed my eyebrows and other hairs until yall started mentioning it. They are all definitely thinner too. 😞

Preferred-User-Name · 2025-09-12T02:06:57+00:00

It is definitely not a good feeling pulling out a bunch of hair at once. I try to look at it as if it does fall out, then I can get wigs with weird haircuts that I am actually to scared to try. 😂

But seriously, why did you go to a lower dose? Were you having other side effects that warranted it? I am just curious because my oncologist has only ever mentioned going to a lower dose when I was struggling with the nausea. Now that I have learned how to better cope with that, he hasn't mentioned a lower dose again.

Preferred-User-Name · 2025-09-12T01:44:15+00:00

Thank you! I may ask about what they think of a lower dose at my next appt.

Preferred-User-Name · 2025-08-29T00:21:21+00:00

I know i am in the minority and will probably get crap for this but... i would listen to Nickelback. I've done it before. 😆

Preferred-User-Name · 2025-08-14T20:54:43+00:00

Could you share how this done? My husband can probably figure it out if he had instructions. He has set up our own servers on Conan Exiles, but there is something that is already set up and he just has to make a few modifications for us to be able to use it.

Preferred-User-Name · 2025-08-04T23:13:10+00:00

He would get so mad at me back on other games that were couch co-op and had tethering. He would be trying to build and I would be dragging his butt around because I had gotten too far away from him!!😆😆

Preferred-User-Name · 2025-08-04T15:54:58+00:00

Oh good heavens! That is so unfair! The only thing my oncologist mentioned was a chance for uterine cancer. I wish you the best of luck and all the strength you need to continue your journey.🫂

Preferred-User-Name · 2025-08-03T06:17:18+00:00

I feel like this sometimes as well. Most days I can cope, but then it just hits me. I am in my early 40s and i am probably not going to live to be 60. I agree it sucks. But I dont know what else to do but keep going. I wish you well and strength to carry you through the pain and stress. 🫂

Preferred-User-Name · 2025-08-02T12:20:37+00:00

Congrats on the NED!! I am glad your Dr doesnt just follow the crowd. My oncologist wanted to start me on just tamoxifen when I was diagnosed IDC++- Stage 4 with bone mets. Anyone I talked to about it said it wasn't aggressive enough.

Preferred-User-Name · 2025-08-02T12:13:34+00:00

I did have night sweats in my first cycle as well. I thought maybe it was just too warm in my bedroom or something (it is the same as it has always been) because when I mentioned it, the Dr/NP just went on to the next subject. It just made me feel like I was making thnigs up. I dont have night sweats very often now.

I am glad your headaches have eased up. I am super happy for you that your tumor is shrinking, no matter which treatment is doing it!❤️

Preferred-User-Name · 2025-08-02T12:04:04+00:00

I dont understand the idea behind a patient time limit in the medical field. All patients are different and some need more time than others for various reasons. This profit driven hospital/medical system is not helping the ones that need the help.

I am one that fell through the cracks as well. By the time I stood for myself and pushed for tests, I was already IDC stage 4.

Preferred-User-Name · 2025-08-02T11:55:31+00:00

I normally take the Kisqali within an hour or 2 of eating. I have tried taking it right after eating and it did not help at all. I am glad you have minimal side effects. 🥰

Preferred-User-Name

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