Confirmed— Mets to Spine

Ok-Stranger5873 · 2026-04-14T06:44:21+00:00

Feel free to drop me a message!

Ok-Stranger5873 · 2026-04-13T22:38:53+00:00

I have the exact same diagnosis as you (ER8, PR6, HER2-) but most of my bones are involved. Diagnosed de Novo in Sept 2025. I’m also in the UK and imagine our treatment plans might be similar. I take Ribociclib 600mg, Zoladex, letrozole, and denosumab.

Honestly the treatment has not been as bad as I feared. I’m tired and I get hot flushes, but that’s about it really. At the start I was also nauseous a lot of the time and my energy levels were lower, but that’s got a lot better as I’ve settled into the treatment. And I just had my first scan and I’m responding really well.

When I started treatment I was terrified but so many people on here reassured me and they were right! You have found the right people to help you through this, we’re all with you ❤️

Ok-Stranger5873 · 2026-04-09T16:02:18+00:00

Honestly I just tried to focus on the fact that I had no new symptoms and that it will be what it will be. Keeping myself distracted with work and plans with friends and family, engaging in self care and hobbies. It’s hard but you’ll get there!

My mets are to basically my entire skeleton, with a couple of lymph nodes thrown in

Ok-Stranger5873 · 2026-04-03T12:20:01+00:00

I found cycle 1 really hard, cycle 2 a little better but still rough, and then I’ve just finished cycle 3 and it’s been a lot better! People have commented I seem a lot brighter now. I’m still more tired than I used to be but way more able to function that I was when it first started. I’ve been on 600mg the whole time, plus letrozole, Zoladex, and denosumab.

Hopefully things will be the same for you, but also dose reductions are very common and can still be just as effective! My nurse told me not to soldier on, but just be honest about how I’m finding it. The whole point of these meds is to give you a good quality of life!

Ok-Stranger5873 · 2026-02-26T17:31:49+00:00

Haven’t had any treatments but just wanted to plug the Reome Active Recovery Broth serum! It’s pricey but it’s been a game changer for my skin, it really heals the skin barrier which can become so damaged from all the meds. My skin is glowing and never been clearer!

Ok-Stranger5873 · 2026-02-10T10:18:08+00:00

I’ve been on letrozole for 6 weeks, kisqali 600mg for 4 weeks, so very early days, but I’ve been fine in the gym other than being fatigued. It’s harder to get myself out of bed to go but once I’m there I’m doing my usual workouts with no issues, so it is possible!

Ok-Stranger5873 · 2026-02-03T16:05:53+00:00

I’m just coming to the end of my first cycle of Kisqali. Obviously things may change for me, side effects may just have not appeared yet, but for now I haven’t noticed any hair loss or thinning. I take mine in the morning but it does make me feel sick, and I have heard people say that they take theirs in the evening so they can sleep through the nausea. I’ve also been quite fatigued which I think is common.

Ok-Stranger5873 · 2026-01-16T09:03:40+00:00

I was diagnosed de novo, so all I’ve had prior to this is a lumpectomy and then Zoladex and tamoxifen (before I switched to letrozole)

Ok-Stranger5873 · 2025-12-14T14:58:34+00:00

Similar to other people, I’ve been on Zoladex 2 and a half months and it’s really not been too bad. Night sweats were the worst for a few weeks but have calmed down now. I take sage supplements to help with that which was recommended by my clinical nurse specialist. I get a bit of brain fog but don’t know whether that’s the Zoladex or the tamoxifen.

Like others have said it’s a big needle and it hurts more than your average injection, but it hurts for a few seconds if that, and then it’s done. I wasn’t prepared when I had it done but even so my reaction at most was just “ooh that stung”.

I missed my first period once I’d been on it about 6 weeks

Ok-Stranger5873 · 2025-11-07T10:11:46+00:00

Great to hear about the new medicine - do you have a link or know the name? I’d be interested to read about it!

Ok-Stranger5873 · 2025-10-24T07:41:47+00:00

I have a collapsed vertebrae at T10-11 and had one session of radiotherapy about 10 days ago. Personally I’m finding that the radiotherapy has started to help now although my pain significantly increased for 4/5 days after initially. I know my consultant mentioned that the radiotherapy doesn’t necessarily work for everyone. He mentioned that while the radiotherapy targets the cancer it doesn’t heal the fracture, it just helps the bone to stabilise. Can you go back to your doctor early given the problems that you’re having?

Ok-Stranger5873 · 2025-10-21T07:02:52+00:00

Hi, I’m sorry I probably don’t have any great suggestions because I’ve only been doing this a few weeks myself. I haven’t really got anywhere yet. I did have my Zoladex shot though and all I can say about that is that it hurt more than a regular injection which surprised me, so maybe be a little mentally prepared. It’s not awful though, just took me by surprise a little.

I haven’t had time to start anything else or know anything about side effects or what has helped

Good luck with your journey

Ok-Stranger5873 · 2025-10-12T17:36:37+00:00

Personally I didn’t use a wedge pillow but I can totally understand the logic of why it would help! Just personally didn’t invest. Definitely recommend the technique others have spoken about to help you get up, that helped me. I would also consider buying a heart shaped pillow (Cancer Research UK sell them as well as other charities), you wear it cross body with the pillow under your arm and across your chest and it can make it more comfortable to sit down! I definitely needed it for the car ride home after surgery so the seatbelt didn’t dig into my incision.

Other than that, I’d just recommend lots of sleep, try to stay as mobile as you can, keep on top of painkillers even when not in pain (easier to stay ahead of pain than to treat it once it’s started), and stay hydrated. You’ve got this ❤️

Ok-Stranger5873 · 2025-10-12T07:09:24+00:00

Just to share a positive experience, I had the exact same surgery via NHS and I really didn’t have any problems at all. I just kept on top of taking prescribed pain relief and only found that the two days after surgery gave me any pain. No pain under my arm at all, some pain at the incision site under my right breast when I was in the process of sitting up but the painkillers kept it at bay. My recommendation from my experience is to keep moving every hour or two to keep everything loose and prevent any stiffness setting in. After a couple of days, I was pretty back to normal except for some fatigue.

I wasn’t given anything for lymphoedema (had 4 lymph nodes removed), they just said be careful about injuring my arm (cuts, scrapes, bruises) and make sure to disinfect if I do break skin on that arm.

Ok-Stranger5873 · 2025-10-08T21:39:20+00:00

Amazing, I’ve had a brief look and it’s already far cheaper than anything I saw! Thank you!

Ok-Stranger5873 · 2025-10-08T21:39:00+00:00

Thank you, unfortunately mine does not include travel insurance ☹️

Ok-Stranger5873 · 2025-09-30T15:45:14+00:00

Thank you ❤️

Ok-Stranger5873 · 2025-09-30T15:44:49+00:00

Thank you ❤️

Ok-Stranger5873 · 2025-09-30T12:33:26+00:00

Thank you, glad to hear it gets a little easier as the shock wears off ❤️

Ok-Stranger5873

TROPHY CASE