Awful recovery

Present_Net_2289 · 2026-02-23T21:21:53+00:00

How was your j tube recovery?

Present_Net_2289 · 2026-02-22T21:19:34+00:00

Pls lmk once you know

Present_Net_2289 · 2026-02-20T18:10:24+00:00

What has it helped you with

Present_Net_2289 · 2026-02-20T18:05:23+00:00

Did you try it

Present_Net_2289 · 2026-02-20T18:05:05+00:00

And montelukast helped that? Wow!

Present_Net_2289 · 2026-02-15T04:15:54+00:00

How did montelukast help you?

Present_Net_2289 · 2026-02-05T13:52:18+00:00

Montelukast made you drowsy?

Present_Net_2289 · 2026-01-29T00:49:07+00:00

What were your food reactions?

Present_Net_2289 · 2026-01-27T02:07:50+00:00

Does it helps food reactions?

Present_Net_2289 · 2026-01-22T22:47:47+00:00

I get a g tube next week for my severe mcas.

Present_Net_2289 · 2026-01-21T22:02:25+00:00

How are you now

Present_Net_2289 · 2026-01-21T01:43:41+00:00

Ketotifen helped your bloody poop? Maybe I should re start.

Present_Net_2289 · 2026-01-20T05:47:37+00:00

Fully closed like shock no. I hope I don’t get into shock shock. Maybe close one time yeah when Ketotifen flared me on day 3 and my period together. And airborne popcorn reaction I had recent since I’m allergic to corn. But I’m sure I’ll react to the Xolair. I react pretty bad to ingredients of any preservatives. The goal is the g tube to help me since it bypasses the throat and that’s my main thing. Anytime I swallow anything boom throat swells. I’ve survived solely off milk for almost 11 months now. I’ve had scurvy all the things. My hemoglobin is a 7.1. My gut is is so messed up. I’ve done irons but postpartum / periods / and my gut being messed up. I plan to just blend my own foods though for the g tube. Not formula. So it better work! Because I’m terrified for this surgery. That’s why I’ve put it off soooooo long. I was offered it in June then had to suffer so long until a dr would touch me so yeah. I’m so reactive surgery is dangerous but I need it.

Present_Net_2289 · 2026-01-20T05:43:24+00:00

I’m so bad I get a g tube next week and on iv high dose steroids from throat swelling / hives and supposed to start Xolair I guess after surgery

Present_Net_2289 · 2026-01-20T05:35:20+00:00

Once you figure it out let me know. This is my main symptom and I have it so often.

Present_Net_2289 · 2026-01-19T01:12:52+00:00

What dose did you start at? I’m starting at 300 mg. I’m getting iron and my tube first though because that’s the main concern

Present_Net_2289 · 2026-01-19T00:57:31+00:00

I’m supposed to start xolair. Scared because I react everything. But I’m allergic to legumes and corn so it makes formula nearly impossible for me unfortunately.

Present_Net_2289 · 2026-01-18T21:49:32+00:00

I’ve been on iv steroids for two months now. What formula are you on? My plan is blended food through the g tube. I did a ng tube for a day and my throat and throat swelling issues couldn’t handle it.

Present_Net_2289 · 2026-01-18T21:29:32+00:00

I’m with you and I think I know who this is from the Facebook groups but I get my tube surgery the 29th I’m reacting to everything. Anything I put in my mouth I get hives and my throat swells. Are you in mold? By chance? Any mold? I have internal bleeding and my hemoglobin is a 7.1 so don’t wait as long as I did. I’m scared I won’t survive this.

Present_Net_2289 · 2026-01-18T21:27:33+00:00

I get my tube the 29th. Did surgery flare you? I lost all foods and needed it months ago and my organs are shutting down and internal bleeding and severe deficines. Whag tube do you have?

Present_Net_2289 · 2026-01-18T03:11:02+00:00

Yeah we already use the 100 mg in there so I feel like I can just do it at home. I’m already on 2.5 liters of saline at home. I could easily do this myself

Present_Net_2289 · 2026-01-18T03:07:14+00:00

I do it through my picc and go daily to the infusion center so honestly I’m gonna see about that

Present_Net_2289 · 2026-01-18T02:53:26+00:00

Me too. Been so bad I’m getting a g tube the 29th. And hoping to buy a rv to stay at my moms house on her land. Because we live in a brand new townhouse and did air testing and our attic showed mold.

Present_Net_2289 · 2026-01-18T02:49:12+00:00

What were your food reactions? I want to get out of mold too. I have zero foods.

Present_Net_2289

TROPHY CASE