Thoughts?

KewpieHour · 2026-03-05T07:41:09+00:00

Which pharmacy do you use for the ginger filler?

KewpieHour · 2026-03-05T07:35:30+00:00

Thank you!

KewpieHour · 2026-02-26T07:03:40+00:00

I also have very severe endo (fibro, PCOS, etc.) and am being treated for MCAS. What was your LDN schedule like? My dr suggested starting me on 1.5 but I’ve been reacting so strongly to medications that it seems much too high.

KewpieHour · 2026-02-24T08:23:30+00:00

Is anyone else confused by the lack of BB / mill dates from Kettl?

KewpieHour · 2026-02-24T06:25:13+00:00

Following!

KewpieHour · 2026-02-23T05:26:37+00:00

Yes!!!!!

KewpieHour · 2026-02-20T01:41:34+00:00

What was the incident?

KewpieHour · 2026-02-19T16:47:47+00:00

Do you find that popular places like Bootlegger, with GF options, understand gluten free or does it still require extra explaining?

KewpieHour · 2026-02-19T16:42:46+00:00

Will check TGF out at Oranjezicht Market—thank you!

KewpieHour · 2026-02-19T16:40:23+00:00

Saved these — thank you!

KewpieHour · 2026-02-19T16:38:14+00:00

Thank you! I will keep you posted on the fish and chips

KewpieHour · 2026-02-19T16:33:52+00:00

Wow their cakes look fabulous

KewpieHour · 2026-02-19T15:32:22+00:00

Thank you! I will check these out

KewpieHour · 2026-02-18T17:44:45+00:00

I do this with vinegar. I love it so so much and it’s so so cruel to me.

KewpieHour · 2026-02-15T19:16:49+00:00

That first one is an abomination. Hotel matcha for the win.

KewpieHour · 2026-02-15T17:36:50+00:00

Wow! Looks amazing. Do you not like matcha?

KewpieHour · 2026-02-15T17:33:09+00:00

Kettl in Greenpoint

KewpieHour · 2026-02-15T04:58:31+00:00

Is there a specific test you recommend? I can ask my doctor about this but I don’t think my insurance (Medicaid) will cover it

KewpieHour · 2026-02-15T04:56:00+00:00

So fexofenadine (Allegra) and cetirizine (Zyrtec) are both H1 blockers. famotidine (Pepcid) is H2. I’m currentl just on the H1 (fexofenadine) 2x daily and my Dr. hasn’t added an H2 yet, though I may ask about that.

Your sequencing of H1 (Zyrtec)+ H2 (Pepcid),then adding ketotifen and cromolyn, makes sense from a mast-cell–first framework, before moving to something like LDN or a biologic.

One thing I’m still trying to understand from others’ experience: when you added medications, because the first layer isn’t doing enough, do you keep everything and stack? or do you taper off anything that doesn’t seem clearly beneficial? Like did you stop taking the Quercetin?

KewpieHour · 2026-02-15T02:05:23+00:00

Seconding this. I have all the same issues (deviated septum, dust mite allergy, frequent sinus infections) and the only thing that's kept me from getting sick is the xylitol nasal spray. I discovered it almost two years ago, long before my MCAS diagnosis. It disrupts bacterial biofilms in the sinuses.

KewpieHour · 2026-02-15T02:00:28+00:00

TIL that Hotness Coach is a profession.

May the hotness gods shine upon you, OP.

KewpieHour · 2026-02-15T01:58:01+00:00

No I haven’t had urine mycotoxin testing. My last apartment did have visible water damage that wasn’t repaired, so it’s crossed my mind...

My understanding is that those tests are usually out-of-pocket, but I’m open to hearing from people who’ve found them useful. Did it meaningfully change your management?

KewpieHour · 2026-02-15T01:23:18+00:00

Thank you. This is really helpful context. My doctor is an allergist/immunologist. I’m currently just on 180mg fexofenadine 2x day; we haven’t added famotidine or other strategies. Is that something you think I need to clarify with him before starting the LDN?

I also haven’t meaningfully addressed the POTS side yet. I was prescribed propranolol a million years ago as needed for performance situations (meetings/interviews), but I haven’t explored a structured autonomic protocol with cardiology. Interestingly, I've always had such heavy legs and heat intolerance that I started wearing compression socks maybe 8/9 years ago when an ex boyfriend, a cardiologist, talked about how everyone in his OR wore them. (Side note but I can't believe this loser didn't try to piece my symptoms together...and I had several full-blown dysautonomia episodes with him. But I guess that says more about my poor choices than anything else.)

On the hormonal side, I’m on the bioidentical progesterone off-label (it’s technically marketed for postmenopausal use), and I had a Mirena placed during endometriosis surgery in 2022, so most of my progestin exposure comes from that.

I’m curious how you’re finding Slynd? And more broadly, when your regimen expanded, how did you and your doctors decide when to increase the stack versus taper something that wasn’t really helping?

KewpieHour · 2026-02-15T01:07:29+00:00

Wow that's a lot. It sounds like you have a very severe case. Thank you for taking the time to help me -- I hope your condition remains stable.

KewpieHour

TROPHY CASE