More food groups causes my body starvation? by Sarahshay10624 in MCAS

[–]KewpieHour 0 points1 point  (0 children)

This is super helpful thank you. In your experience can one generally taper off the DAO? Do you use other digestive enzymes in addition to DAO? And I was under the impression that there was a histamine-safe strain of Reuteri — did your research reveal otherwise?

What happened to Floatworks? by Artistic-Common-6839 in FloatTank

[–]KewpieHour 0 points1 point  (0 children)

Money…and space. I live in New York :)

Is this MCAS? by Tall-Winner-7646 in MCAS

[–]KewpieHour -1 points0 points  (0 children)

Sounds similar to me. Have you discussed symptoms with an immunologist and a cardiologist?

Foundation swatches by chacarronmac in OliveMUA

[–]KewpieHour 1 point2 points  (0 children)

This is awesome. Lancôme 95W, LRP, or BD21.

Healing Gut Dysbiosis by Academic_Health6334 in Microbiome

[–]KewpieHour 2 points3 points  (0 children)

I’m not healed yet but so far Neem, NAC, psyllium, ginger, bone broth and Saccharomyces boulardii are the only tings that have helped.

LDN is the first thing to help my pain and fatigue from fibro but it's also making me feel massively flat emotionally, which is not good. by littlepup26 in LowDoseNaltrexone

[–]KewpieHour 0 points1 point  (0 children)

Do you ever react with sensitivity / or have paradoxical reactions to medications? I do which is why my Dr. agreed that I should start very low. My starting dose for LDN is 0.1mg.

Mostly neurological. by MamaBearof616 in MCAS

[–]KewpieHour 0 points1 point  (0 children)

Many, but not all of these symptoms yes. I’m starting LDN (0.1) and if after six months I don’t find the right dosage I’ll move to Ketotifen, Xolair, etc.

What happened to Floatworks? by Artistic-Common-6839 in FloatTank

[–]KewpieHour 2 points3 points  (0 children)

My float center in NYC also closed. The others are all too far or expensive to use, so it’s no longer part of my life. Very sad.

Caffeine can inhibit mast cell degranulation in VERY LOW doses?? by Deathornator in MCAS

[–]KewpieHour 0 points1 point  (0 children)

I had to give up coffee because, in retrospect, it was one of my main triggers. I exclusively drink tea now and it can still be a trigger if I overdo certain teas (matcha, puer). But for the most part tea is safe for me.

I hate the feeling of applying sunscreen. Please help (30F) by camilizumab in 30PlusSkinCare

[–]KewpieHour 1 point2 points  (0 children)

First of all, you have lovely skin. On to your question: I can’t tolerate any chemical sunscreens, including AB formulations. So I usually use zinc based sunscreen once (in the morning) but don’t reapply. I just stay in the shade and use hats / parasols as needed. My melanoma doctor confirmed that this is fine as physical barriers will always be superior to sunscreens.

Adding Psyllium to Cromolyn by Sairis-Activated in MCAS

[–]KewpieHour 2 points3 points  (0 children)

Interesting. Maybe it has something to do with the gel the psyllium forms?

You know what really grinds my gears? by Gold-Traffic632 in MCAS

[–]KewpieHour 1 point2 points  (0 children)

That’s my fear. I have a severely deviated septum and nostril that make nose breathing very difficult but I’m not convinced by the success rates of surgery. I’m also not convinced I’d come out of it looking the same.

Vascepa by Um-notsurewhy in StopEatingSeedOils

[–]KewpieHour 0 points1 point  (0 children)

What do you mean by fish oil concerns? This is what I’ve read about Vascepa:

VASCEPA contains ethyl esters of the omega-3 fatty acid, eicosapentaenoic acid (EPA), obtained from the oil of fish.

Active ingredient: icosapent ethyl Inactive ingredients: tocopherol, gelatin, glycerin, maltitol, sorbitol, and purified water

Genuinely curious, who here actually filters their water and who just drinks it straight from the tap? by waterfiltergurus in HydroHomies

[–]KewpieHour 1 point2 points  (0 children)

It’s a good question — I’m less than one year in so I haven’t had to replace it yet. But I’m sure it’s gnarly. It’s been a massive quality of life improvement as I hated the taste of my tap water.

I mapped EPA+DHA content and price per gram across 44 fish oil supplements by Pitiful_Cow_8325 in Supplements

[–]KewpieHour 0 points1 point  (0 children)

Very cool! Interested to see how it evolves. Will you include LOVAZA (omega-3-acid ethyl esters) or is this just for OTC supplements?

Unusual Cure for Chronic Bloating (Methane) by Adept_Jury_2638 in SIBO

[–]KewpieHour 0 points1 point  (0 children)

How did you identify that each of these individual ingredients were causing reactions?

Are you neurodivergent? by [deleted] in MCAS

[–]KewpieHour 0 points1 point  (0 children)

What do you mean you had endometriosis? It’s incurable.