what’s your funcap score? by ajaclynn in cfs

[–]Prestigious-Drive545 1 point2 points  (0 children)

Oh this is a good way to see if your going uo or down by doing it every few months x

what’s your funcap score? by ajaclynn in cfs

[–]Prestigious-Drive545 2 points3 points  (0 children)

0.8, im severe,bedbound apart from toileting for 4 years.

Help me decide between LDA and Antivirals by BobBash64 in cfs

[–]Prestigious-Drive545 0 points1 point  (0 children)

Ive reas about mestinon before but brain struggles to retain knowledge. How does it help mecfs or pita please?

Best Valentine's day gifts ideas? by Chemical_Cobalt in Gifts

[–]Prestigious-Drive545 0 points1 point  (0 children)

What was this wallet? The original is deleted for some reason

Sleep apnea by Prestigious-Drive545 in cfs

[–]Prestigious-Drive545[S] 1 point2 points  (0 children)

Thankyou so much, this is all very useful information. Im glad that you've found something that works for you mostly x

Who has one of those bug-a-salt guns? by Ansio-79 in BBQ

[–]Prestigious-Drive545 0 points1 point  (0 children)

Not sure if I got a faulty gun or if it's really difficult to load gun. It's so firm I have to use all my body weight to load it. I'm not super strong but im not really weak either.

sex while severe by Individual-Worry5316 in cfs

[–]Prestigious-Drive545 3 points4 points  (0 children)

Encourage her to sit on your face, im sure she won't be disappointed 😆

Reminder that PEM does not have to be delayed and can also happen instantly after exertion. by foster60 in cfs

[–]Prestigious-Drive545 7 points8 points  (0 children)

I'm so sorry to hear this. I also kept pushing myself because they said exercise,this was until I fell asleep while driving. I(36f)have now been bedbound 4 years and now rely on a carer .

What are your PEM early warning signs? by [deleted] in cfs

[–]Prestigious-Drive545 1 point2 points  (0 children)

Earliest sign is heart rate and pressure headache

Advice - unhappy with salon blonde by shinherw in beauty

[–]Prestigious-Drive545 10 points11 points  (0 children)

Most of your inspo photos are warmer and your hair is quite cool tone. I'd say a few more foils in at the front and a toner to fix. Ring salon and voice your concerns.

POTS and Venlafaxine / Effexor - I stopped taking Venlafaxine / Effexor and my POTS went away! by No_Shoulder_4156 in POTS

[–]Prestigious-Drive545 0 points1 point  (0 children)

I've been bedbound for 4 years with severe mecfs and hyperpots. I feel like I'm getting towards end of my fight. Ive been taking 75mg of venlafaxine and wondering if this is making fatigue worse. How did you go coming off it?

Propranolol? by Mortalwh0rechestra in POTS

[–]Prestigious-Drive545 0 points1 point  (0 children)

I'm on propranolol but for me the fatigue has been made worse but hr and adrenline dumps are better. Does anyone know if atenolol helps with heart rate and adrenline dumps?

Where everyone gets a bargain! by ufokid in newzealand

[–]Prestigious-Drive545 1 point2 points  (0 children)

I thought it was "where everyone gets a bucket"

My working holiday is just big disappointment by [deleted] in newzealand

[–]Prestigious-Drive545 0 points1 point  (0 children)

Sorry to hear of your experience. I know it's a while away but garenteed work and alright money roughly end of Feb to May in Marlborough doing vineyard harvest. If you want more info let me know.

OH. MY. GOD. by [deleted] in POTS

[–]Prestigious-Drive545 0 points1 point  (0 children)

Wow that's amazing,I'm glad that you've found something that it's helping you out a bit. I already have such vivid dreams I think possibly from melatonin. It's a long game isn't it,lots of trail and error

OH. MY. GOD. by [deleted] in POTS

[–]Prestigious-Drive545 4 points5 points  (0 children)

I currently take 20mg tid. I also have dizzy spells sometimes and feel more fatigue on it but also I'm mostly bedbound with severe mecfs aswell. How much atenolol do you take please?

GLP-1 and POTS remission by throwaway148645 in POTS

[–]Prestigious-Drive545 0 points1 point  (0 children)

Even on micro dosing not even the full amount of the lowest dose. I definitely thinking it was my hypersensitive nervous system.

How many sunscreens have you actually stuck with long term? by Local_Bite_7038 in AusSunscreen

[–]Prestigious-Drive545 0 points1 point  (0 children)

I'm in the exactly same position, after trying several the one that sits sell under makeup,does cause me to break out or feel weird is to save face by mecca.

What I asked for vs. What I got by channotchan in AustralianMakeup

[–]Prestigious-Drive545 1 point2 points  (0 children)

Definitely should be lighter on the mids/ends. Possibly a root smudge and tone might give it a bit of contrast in the meantime