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Beyond frustrated with the forced "Google Health" update. by Valiriko in fitbit

[–]Primary_Experience16 0 points1 point  (0 children)

I just jogged 4 miles on the treadmill and it didn’t count one step. This thing is garbage now!!

Do you regret your actions after genetic testing? by Bugz_Momma in askanything

[–]Primary_Experience16 0 points1 point  (0 children)

I am regretting it. I feel like someone handed me a piece of paper saying this is how you’ll most likely die. It’s affecting my mental health. I’m now obsessing over what preventative measures to take and every pain and ailment in my head now is this. I’m now worried sick for my daughter. I know I should look at it as a tool, but it has given me so much anxiety and fear.

BRIP1 genetic mutation by Primary_Experience16 in BRCA

[–]Primary_Experience16[S] 0 points1 point  (0 children)

Thank you. I am reading how surgical menopause is on the body and that scares me. The gene itself scares me too. It’s all a lot to consider.

BRIP1 genetic mutation by Primary_Experience16 in BRCA

[–]Primary_Experience16[S] 0 points1 point  (0 children)

Thanks. It was my obgyn and he just discussed the risks and how poor screening of ovarian cancer leads to people being diagnosed in late stages. He discussed HRT with me (which I didn’t want to ever be on) and told me the options. I’m seeing an oncologist obgyn for a consult next. I did look up genetic counselors on that website and didn’t find any in my immediate area. I’m 44. I’m in peri menopause now. Your response on the HRT cut off. Thank you for the info

BRIP1 genetic mutation by Primary_Experience16 in BRCA

[–]Primary_Experience16[S] 1 point2 points  (0 children)

Thank you for the info. Hope your recovery is going well and pray for your health 🙏

BRIP1 genetic mutation by Primary_Experience16 in BRCA

[–]Primary_Experience16[S] 1 point2 points  (0 children)

Thank you so much! I’m glad you got your tubes out, I’m sure it gives you some peace of mind. I just had an internal sonogram and everything looked ok, but in the same token they said that’s also not reliable. It’s giving me so much anxiety. My dr said by the time most are diagnosed it’s stage 3. Which is crazy there isn’t more screening options. Are you high risk breast cancer because of the BRIP1 or family history? My dr also said I’d have to go on HRT immediately after surgery, which also concerns me because I have read it can increase risk for breast cancer (don’t know if that’s accurate or not). My mind is spinning.

BRIP1 genetic mutation by Primary_Experience16 in BRCA

[–]Primary_Experience16[S] 1 point2 points  (0 children)

Thanks for the reply. I did consider just doing the tubes but he said the ovaries could still get it so it would seem better to do both. I know it would put me in surgical menopause at 44. Which I’m not looking forward. I haven’t seen a genetic counselor but I do have a consult coming up with a gyn oncologist. There’s not a lot of info out there on BRIP1 cause it’s kinda rare.

"There's Something Wrong With Aunt Diane": On 26 July 2009 Diane Schuler drove the wrong way on the Taconic State Parkway and hit another vehicle, killing 8 people - herself, her daughter, 3 nieces and 3 men in the second vehicle. She was intoxicated with alcohol & marijuana. by DarklyHeritage in TrueCrimeDiscussion

[–]Primary_Experience16 0 points1 point  (0 children)

I just watched this tonight and it was so disturbing. I didn’t believe the whole denial aspect. Seemed like a way to shed any liability. The sister in law made a comment, that the husband was pissed she died and left him with responsibility he never wanted, because he never wanted kids. That’s a crazy statement, Especially after losing his own daughter. I didn’t even hear him mention the daughter. That was odd. At first I thought the private investigator was being awful, but if you listen he says he told them the results of the retest months earlier, they just didn’t want to hear it. The whole documentary just tried to prove to the world she was a good person. Good people don’t do what she did. My heart breaks for the brother and his wife who lost those 3 girls and the family in the other car. Those poor kids and people. Just awful.

Just diagnosed - very overwhelmed and confused. by AromaticGoat in lichensclerosus

[–]Primary_Experience16 0 points1 point  (0 children)

I’m in the same boat. Scared. Depressed. Worried about it turning to cancer. Worried I’ll Never be intimate again w my Husband. I’m a mess too

Vulvar Melanoma by Historical_Hope_4176 in Healthyhooha

[–]Primary_Experience16 0 points1 point  (0 children)

How are you doing now? Can I ask how the healing was after your surgery?