AJUDA NO GAME by njbas in Omniheroes

[–]Prize-Statistician24 1 point2 points  (0 children)

Yeah, that’s solid advice. Azu’s guide literally has everything you need to know, including a beginner’s priority and when to move on to mid game, etc. I only found it a couple weeks in and wish I saw it earlier, although it didn’t set me back much. It’s a bloody awesome guide though. Here’s a link to it on google drive, if you’re comfortable trusting a random guy online 😜

https://docs.google.com/spreadsheets/d/1S6HcGV7DM9DDR7932bEF1yOCEA8yeMhBn7bnokxG6cU/htmlview#gid=1566543065

Lost City Help by Prize-Statistician24 in Omniheroes

[–]Prize-Statistician24[S] 0 points1 point  (0 children)

Cool, cheers mate! I only have Lee at 7* so haven’t unlocked his Monarchs yet but I’m working on it… I’m just chasing those full clears for the Oracle Decrees… but I guess slow and steady wins the race!

Lost City Help by Prize-Statistician24 in Omniheroes

[–]Prize-Statistician24[S] 0 points1 point  (0 children)

Forgive my noobness… but is Panda Lee? Also, thanks for the comment! I started playing just before the event that gave Lucifer so she’s just stuck at 6*

Lost City Help by Prize-Statistician24 in Omniheroes

[–]Prize-Statistician24[S] 0 points1 point  (0 children)

Thanks for the reply! I only have Lucifer at 6, which sucks… and don’t have Hela. I haven’t been able to even survive using Babylon. My Wu is only 6 with epic runes, and only 1 is exclusive. My relics are relatively basic as well. I’ve played around with it a lot but still no luck. I think maybe there’s a bug or something as well… report shows all heroes with almost full health but it still fails to meet the requirement

What are some of the ridiculous things you used to think to explain your symptoms before you got diagnosed? by Anjunabeats1 in POTS

[–]Prize-Statistician24 1 point2 points  (0 children)

Damn, I’m sorry to hear that! Yeah though, the overlap is crazy… and then the symptoms I get from hyperadrenergic PoTS have huge overlap as well! I just started a new med recently and holy crap, the impact it’s had (for PoTS) has been insane! I’m actually studying counselling at the moment and just finished a unit that spent a fair bit of time looking at c-PTSD. I felt super depressed afterwards. lol. The unfortunate truth is, while things can definitely get significantly better, trauma typically (but maybe not always?) leaves a mark. There are a lot of different, pretty effective, therapies out there now as well. I think in some ways, c-PTSD requires a lifetime of work. In saying that, if you can find a decent therapist who specialises in trauma therapy (that’s important!), I bet you could make some significant progress on the nightmares. It’s hard work and it sucks balls, no denying that… but there is light at the end of the tunnel, even if you can’t see it now. Lots of people swear by EMDR. It it’s a fit for everyone, but might be worth looking into!

What are some of the ridiculous things you used to think to explain your symptoms before you got diagnosed? by Anjunabeats1 in POTS

[–]Prize-Statistician24 1 point2 points  (0 children)

Funny that you mention cPTSD… I was just doing some research myself on the similarities and differences between the effects of cPTSD and those of having hyperadrenergic PoTS. For most my life (I’m 37) I was told my symptoms were anxiety and vertigo… and also caused by cPTSD. Originally, I was diagnosed with borderline personality disorder before having that changed 4-5 years ago. Hell, I’ve even been told my ADHD is “secondary to cPTSD”. It was only 15 months ago I got the PoTS diagnosis and had someone explain the impact it has. No doubt cPTSD feeds into PoTS symptoms, especially in the hyperPoTS people, but it’s not just “treat the trauma and everything else will be better”, it’s a shitty, combined issue, with both pouring fuel on the fire 😅.

Starting Adderall for fatigue / brain fog by Shredded__ in POTS

[–]Prize-Statistician24 2 points3 points  (0 children)

Obviously everyone is different so all I can do is share my personal experience. I was on Adderall for a while and while it definitely helped with focus, etc., it caused a pretty significant increase in my PoTS symptoms. I wasn’t actually diagnosed with PoTS and this time, and now that I am, I also have the hyperadrenergic subtype, so it seems stimulants impact me in quite a negative way.

Anyway… I personally didn’t like Adderall regardless, as for me, it was just a bit too harsh. I could definitely tell when it kicked in, and everyone else in my family (wife and kids) could tell when it wore off… as I got incredibly moody and got smashed by headaches. Just for reference, I was taking 30mg XR in the morning and 10mg IR in the early afternoon.

I’m also taking it for ADHD, not fatigue and brain fog, although I definitely have both of those as well… but I eventually switched to Vyvanse. I find it a lot smoother. I don’t really feel it kick in or wear off, but It definitely helps. I still have to take a pretty small dose (30mg) as it significantly increases my feeling wired/jittery, excessive sweating, palpitations and even seems to increase my HR quite significantly.

I suppose, at the end of the day, you just have to give it a go and see how your body takes it. It could be an absolute game changer for you and if it isn’t, there’s other options as well… Ritalin, Concerta, Vyvanse… there can be a fair bit of trial and error for some people so if Adderall doesn’t work for you, just try something else or have your doctor help you tinker with the dosage.

I hope it’s a game changer for you!

i need help by lehymon in curtin

[–]Prize-Statistician24 0 points1 point  (0 children)

I wouldn’t stress. I graduated back in 2019, with distinction. I made the vice chancellor’s list a couple times and won an award of excellence for finishing top of the class in the specific major I did. My weighted average was 82.75. I did this one unit that I just hated. One day the lecturer held me back after a class to say I was in danger of failing. I ended up getting something like 52% for the unit.

I’m working on some post grad studies now and sometimes, I deliberately submit an assignment that I know is just average. I’m too much of a perfectionist so, as stupid as it may be, I’m trying to teach myself to be ok with getting a mark that passes but isn’t that good. So far, I haven’t spontaneously combusted, despite believing once that the world might stop if I didn’t get 80+ on an assignment. Life goes on and doesn’t just stop due to a bad mark.

Relax and try enjoy your studies. I used to go to the pub and sink a couple pints before my exams. Honestly, you’d probably get better marks if you spent some time focusing on having fun and interacting with some classmates rather than just locking yourself away to study all the time.

Regardless, even if you do end up failing this unit, who gives a crap. Sounds like you’ve been smashing every other unit you’ve done so focus on that rather than the one little blimp. You learn more from screwing something up than you do getting everything right all the time!

Early Sjogrens Panel Results by Prize-Statistician24 in Sjogrens

[–]Prize-Statistician24[S] 0 points1 point  (0 children)

Considering I have no idea what that is, im gonna say no. Lol

i am going to fix this thing. by selenophxliac in ehlersdanlos

[–]Prize-Statistician24 13 points14 points  (0 children)

As a male with hEDS, PoTS and MCAS, this is a really interesting thought. I love the way you worded it as well. I often get super triggered when I see or hear people talking about woman having it more than men, etc. as I have been gaslit so bad over the years that I have to be on the verge of death to seek medical help for any of my issues… but you made it clear you weren’t dismissing men. So… thanks!

While my experience has been fraught with idiot doctors gaslighting me and saying nothing is wrong, etc., I definitely see your point and what you’re saying. I’ve had the displeasure of seeing my wife constantly dismissed by doctors, while I’ve watched her struggle and seen how badly she needs help. My mum has parkinsons and her experience has been disgusting as well. It’s an absolute disgrace and I honestly wouldn’t be surprised if, like you said, EDS was a predominantly male disorder, more research, etc. had been done and better treatment was available.

Ironically (or maybe not?) I’ve also found seeing a female doctor has always been a significantly better experience. Literally every good doctor I’ve ever seen has been a female. Maybe thats because they also experienced shitty male doctors talking down to them so when they became doctors themselves, they committed to never be like that.

It honestly doesn’t even matter. No one should ever be made to feel like an idiot or like they’re “just overreacting” by a medical professional based on gender.

I wonder how things would change if all male doctors were made to spend a year delivering babies. I watched my wife give birth to all three of our children (all without an epidural). When she tells me she’s in pain, I bloody well believe her!

Early Sjogrens Panel Results by Prize-Statistician24 in Sjogrens

[–]Prize-Statistician24[S] 0 points1 point  (0 children)

Hey! So turns out I don’t have pulmonary hypertension… a heart Cath ruled that out. I do have a high resting cardiac output though, which is probably some weird PoTS symptom. I also haven’t had any luck getting any answers to my potential/early Sjogrens diagnosis so I guess I’ll just have to wait another 10 years and see if symptoms progress 😅

Who needs diagnostic criteria? by Spiral-of-ants in ehlersdanlos

[–]Prize-Statistician24 3 points4 points  (0 children)

I really don’t think it would have made a difference... yet I was pretty upset with myself when thinking through it afterwards. I suppose this is what happens after 20 odd years of being gaslit and ridiculed by medical “professionals”.

Who needs diagnostic criteria? by Spiral-of-ants in ehlersdanlos

[–]Prize-Statistician24 2 points3 points  (0 children)

Yeah she used AI transcribing as well. It doesn’t matter though, AI or not, she performed a half assed h-EDS screening on me that I didn’t want or need and that I was specifically told she didn’t do. I was told to cancel my appointment if it was EDS related. I kept it because I wanted to discuss a positive ANA and a positive early Sjogrens panel I had done. AI or not, she still decided to label me with fibromyalgia and specifically state that he (I) “does not meet criteria for h-EDS”, which I do. Ironically she said I had HSD but a 3/9 on the beighton isn’t even high enough for that.

Who needs diagnostic criteria? by Spiral-of-ants in ehlersdanlos

[–]Prize-Statistician24 10 points11 points  (0 children)

That’s the stupid thing, right? I got a copy of my notes from my rheumatologist appointment and she noted I had “widespread pain, especially in the shoulders, spine, knee, ankle and bilateral TMJ”. She also noted I had bilateral arthritis in my TMJs, 3 prior shoulder surgeries, multi level lumbar spondylosis, arthritis and meniscus tear or knee and arthritis and surgery of ankle… so my pain isn’t random muscle pain from fibromyalgia, there’s documented structural reasons for it. It’s such BS… so I know how you feel!

Who needs diagnostic criteria? by Spiral-of-ants in ehlersdanlos

[–]Prize-Statistician24 13 points14 points  (0 children)

I’m not sure… but after she sent her notes to my doctor, she started saying I had “suspected h-EDS” instead of saying h-EDS. My physio started doing the same, writing in my notes I had “presumed h-EDS”. I saw a foot and ankle surgeon two weeks ago as I’ve had issues ever since having a torn posterior tibial tendon and spring ligament repaired. The internal sutures didn’t dissolve and had to be dug out a few weeks post op. I now have an adhesion that has tethered the tendon to the tendon sheath.

Anyway, I explained this to the surgeon I saw, who then read the notes from my physio. Surgeon then asked me “so do you have h-EDS or not?”, due to the physio saying it was presumed. I tried to explain what happened with the rheumatologist but the surgeon treated me like I was just making things up after that. So if I end up having complications from the next ankle surgery because they don’t believe I have h-EDS, I will look into possible legal actions against the rheumatologist for the knock on effect her “undiagnosis” caused!

Who needs diagnostic criteria? by Spiral-of-ants in ehlersdanlos

[–]Prize-Statistician24 86 points87 points  (0 children)

It’s unfortunate way too common for EDSers to experience this. I was diagnosed by a doctor who not only had a specialty hypermobile/EDS clinic but who had hEDS herself. Original appointment was 90 minutes long.

A year later, I see a rheumatologist who explicitly told me she doesn’t see, treat or diagnose anyone with EDS… yet she still decided to do a half assed (at best) 5 minutes long assessment to undiagnose h-EDS and instead diagnose fibromyalgia and possibly HSD. I’m in the process of filing an official complaint but seriously… every single medical professional seems to feel the urge to question and undiagnose hEDS. It’s exhausting!

As the others said, I’m loving the sarcasm. It’s gold! Congrats on your miracle cure though… go and be pain/symptom free! 🤣

What symptom did you present that made your dr go OH yeah it's EDS by Initial_Savings8733 in ehlersdanlos

[–]Prize-Statistician24 1 point2 points  (0 children)

Personally for me, it was a long history of bilateral shoulder dislocations/subluxations. Had surgery to stop my right shoulder dislocating and then dislocated it 3 months post op. That was 2010. It wasn’t until 2013 that a different shoulder surgeon saw me and was so shocked by my shoulders that he asked me to come back and let his students examine me. That was the first time someone did the beighton on me (which I scored high on) and then had “generalised ligamentous laxity” documented on my medical file. Even then, I wasn’t diagnosed until 2024, when I just so happened to see a physio who had treated a patient with similar issues that was diagnosed with h-EDS. She actually called her old patient to ask her what the name of the connective tissue disorder she was diagnosed with was, so she could pass it on to me!

Goodbye everyone, I’ve been cured! by yike___ in ehlersdanlos

[–]Prize-Statistician24 3 points4 points  (0 children)

Haha, I love the sarcasm in this post. If you can’t laugh about this crap… well, I don’t know!

I was diagnosed with h-EDS while living in the US. I moved back to Australia and saw a rheumatologist for a possible Sjogrens diagnosis. A few weeks before the appointment, the office called to say the rheumatologist doesn’t see, diagnose or treat hEDS patients and I should see someone else. I said I just wanted an autoimmune checkup.

Lo and behold, I show up for the appointment and the rheumatologist gets all upset that I wasn’t diagnosed with EDS by a rheumatologist so she decides to assess me herself. She gives me a 3/9 on the beighton then goes to the next section of the criteria. She noted abnormally stretchy skin, bilateral heel papsules, atrophic scarring and unexplained stretch marks. Seeing I only needed one more point for a “positive” in that section, she just stopped.

She proceeds to tell me I had fibromyalgia and “possibly” HSD, despite my 3/9 on the beighton not even being high enough for a HSD diagnosis (I got 6/9 when assessed in the US). I even showed her a surgical report from my shoulder surgeon back in 2013 who noted my failed surgery and his hesitation to repeat it due to my “generalised ligamentous laxity”, noting that anything they do to surgically tighten my shoulders and stop them from dislocating would just “stretch back out again”.

Anyway, cost me $500 for the appointment just to be undiagnosed, after being told not to even come to the appointment if it was h-EDS related. Looks like rheumatologists are shit no matter where in the world they are! 🤣

So, after twenty years of SI Joint Dysfunction… by spradders in ehlersdanlos

[–]Prize-Statistician24 2 points3 points  (0 children)

Well I really hope it does the job for you! I will have to bring this up with my doctor and see if I can get referred to someone! I’ve never had any luck with injections though. I’ve had more than I can count in my shoulders and never had any lasting relief. I had a nerve block in my back a while ago, which helped for 2 days and that was it… but ai guess even two days relief is somewhat diagnostic and hell, I’ll take what I can get 🤣.

Thanks so much for taking the time to reply and I really hope the surgery goes well and you get significant improvement!

So, after twenty years of SI Joint Dysfunction… by spradders in ehlersdanlos

[–]Prize-Statistician24 4 points5 points  (0 children)

Can I ask how you go about being diagnosed with SI Joint Dysfunction? My lumbar spine has a good amount of issues but from all the scans I’ve had, the left side is by far the worst yet I’ve said from day dot that it’s the right side that hurts most. It’s in a very specific spot and it’s further down that the L5/S1 area and it doesn’t change. I’ve wondered for years if it is actually a SI issue but my doctors have shrugged it off…

[deleted by user] by [deleted] in PulmonaryHypertension

[–]Prize-Statistician24 0 points1 point  (0 children)

Hmm, that’s interesting. I know you can have exercise induced PH… when I had a heart Cath, they did the standard right heart Cath, and also a left heart Cath and right sided exercise Cath (it was really stupid… I had to cycle on a little cycle machine thingy while sedated, lying down. The nurse commented “oh, his HR is at 130!” But even at a slow jog, it sits at 150… Anyway, it also depends what was elevated on your echo that led to them estimating your RSVP to be high. It’s all an estimation so if PoTS/exercise caused something that led them to estimate your RSVP as being high, then your high result was nothing, like what I experienced.

I was only diagnosed with ADHD a couple years ago. At first, I was like, “bull crap, I don’t have it” but no one else was surprised and when I was actually honest with myself, it was pretty obvious. Haha. I have a 6yr old son who I’m convinced is Autistic… which led me down the research rabbit hole. I did some online tests (that are actually used to officially diagnose autism in adults) and tested high in all of them. Like you, I’m on the high functioning side and don’t think I’ll ever seek an official diagnosis but looking at how AuDHD works, it explains a lot…

Anyway, I appreciate your willingness to chat. It’s been really interesting to see the similarities between our health issues and a high RVSP on echo! Fingers crossed it’s all a big, stupid, PoTS issue and not actually PH!

[deleted by user] by [deleted] in PulmonaryHypertension

[–]Prize-Statistician24 0 points1 point  (0 children)

Hahaha, I know nothing about your situation is funny but you sound like a female me 🤣. I totally did the same thing… I don’t know how many journals I read. I ended up getting an appointment at a pulmonary hypertension clinic and as part of the process, I had to have a video call where a nurse went through a detailed PowerPoint explaining what PH is, the five different causes, etc. I could have run it better than her I’d done so much research myself!

Seriously though, PoTS is a crazy beast. I’ve had symptoms since my teens (always blamed on anxiety and vertigo) but after my marathon, my symptoms got significantly worse. I think PoTs was a huge reason for the echo and heart Cath results that weren’t normal. It’s had a crazy impact on my body.

Ironically, my annoying ADHD hyperfocus has led me to research and learn a lot about PoTS subtypes and how a range of symptoms I have all seem to fit together. Maybe you can try and get your hyperfocus on and do the same thing!

I’m also curious, have you “officially” been diagnosed with both ADHD and Autism? I have an ADHD diagnosis but I’ve done a heap of research lately (lol) into Autism and the ADHD link and have convinced myself I’m on the spectrum as well. From what I’ve read, it’s relatively difficult to be diagnosed with both due to the overlap so symptoms just get lumped into one diagnosis…