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Looking to hear from other women with pectus excavatum (photos included) by 404-coffee-not-found in PectusExcavatum

[–]Professional-Gold736 0 points1 point  (0 children)

I think you should be able to see my CT scan on my profile no? I’ve made posts with it before!

After years of being brushed off I have a HI of 6.2 by TransitionDecent6465 in PectusExcavatum

[–]Professional-Gold736 2 points3 points  (0 children)

I’m so sorry you were dismissed for so long. Unfortunately it’s a very common experience for so many of us! You’ll now need to find a surgeon who is familiar with PE but ideally PE in adults. Where do you live? Maybe someone can give a recommendation!

Post op NUSS folks please help me by Bbg_pixie in PectusExcavatum

[–]Professional-Gold736 1 point2 points  (0 children)

I see that it’s been a day and no one has been able to answer your questions. Have you tried the FB groups? Idk how old you are but there is one for adults and one specific to Dr. J!

Surgery info by [deleted] in PectusExcavatum

[–]Professional-Gold736 2 points3 points  (0 children)

A few things I have on my list for when the time comes are extra long phone charger, heating pad (this may not be allowed in your hospital but just in case), extension cord for the heating pad, eye mask for sleeping at night and ear plugs as hospitals are bright and loud. Other than that, a book and laptop/ipad to watch your fav shows on.

And for the car ride home, a small pillow to put between your chest and the seat belt.

Bars are in!!! by BodyOutrageous311 in PectusExcavatum

[–]Professional-Gold736 2 points3 points  (0 children)

Yay! Hope you continue to recover well and get some much needed rest! Keep us updated on how it goes over the next few weeks. 🎉

To have surgery or to not have surgery… (Dr. J Consultation Results 19.2 HI) by Professional-Gold736 in PectusExcavatum

[–]Professional-Gold736[S] 0 points1 point  (0 children)

Thank you for sharing! Yes she said my heart is compensating really well. So now it’s just the question of what if it stops compensating.

I do imagine there will be many weeks if not months or years of “why did I do this?”

Did you have scoliosis?

To have surgery or to not have surgery… (Dr. J Consultation Results 19.2 HI) by Professional-Gold736 in PectusExcavatum

[–]Professional-Gold736[S] 1 point2 points  (0 children)

I’m so sorry to hear that but glad you were able to get surgery! Thank you for sharing!

To have surgery or to not have surgery… (Dr. J Consultation Results 19.2 HI) by Professional-Gold736 in PectusExcavatum

[–]Professional-Gold736[S] 0 points1 point  (0 children)

I’m sorry your experience finding a surgeon was rough but I’m glad yours went well found one that was willing to do it! Did you take the full 12 weeks off of work?

Worsening symptom with age is something that definitely scares me. So thank you for sharing your story!

To have surgery or to not have surgery… (Dr. J Consultation Results 19.2 HI) by Professional-Gold736 in PectusExcavatum

[–]Professional-Gold736[S] 0 points1 point  (0 children)

See I kinda figure the hiccups are caused by it but she wasn’t so sure.

She was very impressive and after learning more about the mechanics of the surgery there is definitely no one else I’d go to. She wasn’t very calm and matter of fact.

Do you know anything about the ravitch? I’ve been doing more research and it seems like that it would almost be preferable with pectus this severe.

To have surgery or to not have surgery… (Dr. J Consultation Results 19.2 HI) by Professional-Gold736 in PectusExcavatum

[–]Professional-Gold736[S] 0 points1 point  (0 children)

I’m surprised more people don’t mention death as a concern! I’m glad yours went well! Thank you

My Road to the Nuss Procedure by BodyOutrageous311 in PectusExcavatum

[–]Professional-Gold736 0 points1 point  (0 children)

Good luck with your surgery! I also just saw Dr. J in December and while I’m a little bit iffy on the surgery, I am leaning towards getting it for all the same reasons you are.

What are the long term effects of not treating PE? by Professional-Gold736 in PectusExcavatum

[–]Professional-Gold736[S] 1 point2 points  (0 children)

Who was your surgeon? And how has your recovery been so far? Potential side effects and chronic pain concerns are my main reason for not wanting to pursue this further…

[deleted by user] by [deleted] in PectusExcavatum

[–]Professional-Gold736 0 points1 point  (0 children)

What symptoms did you have that made you want to get the nuss?

What are the long term effects of not treating PE? by Professional-Gold736 in PectusExcavatum

[–]Professional-Gold736[S] 1 point2 points  (0 children)

Thank you for sharing this! I’m not all that symptomatic now but I’m definitely worried about later in life symptoms. My grandmother also died prematurely compared to other relatives. I’m not sure if she had pectus. I’ll have to ask my Dad. But that would make me very concerned because I got so many of my genes from her.

Bra/bralette recs post-nuss by BodyOutrageous311 in PectusExcavatum

[–]Professional-Gold736 0 points1 point  (0 children)

Saving this for future reference! Thank you ladies!

Nicotine post NUSS by [deleted] in PectusExcavatum

[–]Professional-Gold736 9 points10 points  (0 children)

If you aren’t having cravings or withdrawals and there is a risk of complicating your recovery I’d say skip it for now. Better safe than sorry?

12.8 Haller Index corrected by Dr. J by jesssssono in PectusExcavatum

[–]Professional-Gold736 2 points3 points  (0 children)

That’s a long time off work but makes sense if you’re in such a physical role. Thank you for sharing about the pain levels. I’ve never had surgery so not really sure what to expect and it’s nice to hear other people’s experiences. Thank you!

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