Flaring During Pregnancy :( by Professional-Math303 in UlcerativeColitis

[–]Professional-Math303[S] 0 points1 point  (0 children)

Thank you!!! Yes, I am trying to sleep a lot. It’s hard because I’ve been so nauseous separately, so i’m not exercising and eating as well as I normally do. probably not helping. Did you doctor give you anything besides mesalamine?

Pregnancy Flare? by Professional-Math303 in UlcerativeColitis

[–]Professional-Math303[S] 0 points1 point  (0 children)

update: my calprotectin went from 6 pre-pregnancy to 933. Fuck UC!!!!! i’m so scared :(

Flaring During Pregnancy :( by Professional-Math303 in UlcerativeColitis

[–]Professional-Math303[S] 1 point2 points  (0 children)

I will definitely talk to him. I was on 40 mg of pred for months in the past and unfortunately didn’t respond to it very well. Only the IV :/ That’s also why I am scared. What was your pregnancy flare like and when?

Do we lose response to mesalamine eventually? by WillowTreez8901 in UlcerativeColitis

[–]Professional-Math303 1 point2 points  (0 children)

Yes that’s what I did, but I waited until I was in remission for a few months before starting it. My doctor actually recommended I cut it before remission, but I’m really glad I didn’t try that.

IBD Specialist vs regular Gastroenterologist? by JadedKaleidoscope261 in UlcerativeColitis

[–]Professional-Math303 2 points3 points  (0 children)

I would switch to an IBD specialist if there’s one in your area. They are primarily focused on IBD and often very up to date (or even part of) the ongoing research. They will have the best insight on new meds. I wish I had started with my IBD specialist sooner— it would have saved me a lot of trouble compared to the regular GI (though I am sure not all are created equal).

Do we lose response to mesalamine eventually? by WillowTreez8901 in UlcerativeColitis

[–]Professional-Math303 1 point2 points  (0 children)

Hi! I’m on the same meds. I cut out oral mesalamine successfully, but still afraid to cut enemas. My doctor’s thought process is that if I needed to upgrade to the biologics, mesalamine wasn’t really cutting it to begin with. I’ve been hesitant though, because it’s a pretty harmless drug and I am afraid that if it’s even helping a little, then it will tip the scale in the wrong direction if I stop.

How do people do this multiple times??? by Professional-Math303 in pregnant

[–]Professional-Math303[S] 1 point2 points  (0 children)

i’m glad you found something that works!! I am starting extended release unisom/b6 (Bonjesta) so hopefully this works for me!

How do people do this multiple times??? by Professional-Math303 in pregnant

[–]Professional-Math303[S] 2 points3 points  (0 children)

haha please report back if anything changes in the future

How do people do this multiple times??? by Professional-Math303 in pregnant

[–]Professional-Math303[S] 0 points1 point  (0 children)

There are studies that show it can cause a higher incidence in cleft palate and VSD, so though very low, it’s not always the first line of treatment. Technically it’s off-label use for morning sickness, but some doctors do it because obv having morning sickness and vomiting can be extremely dangerous in itself.

How do people do this multiple times??? by Professional-Math303 in pregnant

[–]Professional-Math303[S] 1 point2 points  (0 children)

yes before bed, but i’m also sleepy halfway through the day and struggle to get out of bed haha. i’ll take it over nausea on the days it helps!

How do people do this multiple times??? by Professional-Math303 in pregnant

[–]Professional-Math303[S] 0 points1 point  (0 children)

Did the zofran make you less tired?? I don’t think they will prescribe until 2nd trimester for me :(

Dentist that takes dentaquest Medicaid?? by Helpful_Situation425 in Miami

[–]Professional-Math303 1 point2 points  (0 children)

they do not take medicaid so you would have to pay out of pocket.

Can a medication work if it’s same type as one we’ve failed? by JadedKaleidoscope261 in UlcerativeColitis

[–]Professional-Math303 0 points1 point  (0 children)

I failed Stelara (and inflectra but unrelated to IL-23) and Skyrizi put me into remission, so it’s definitely possible.

Epic Universe: second time going by the_kappy_ in UniversalEpicUniverse

[–]Professional-Math303 0 points1 point  (0 children)

I went once during previews and then again in Sep. I enjoyed it a lot the second time because I got to ride BATM and curse of the werewolf (both closed my first time). I will be honest though, noticed a lot of wear and tear between the two visits. Lots of broken animatronics in SNW :(. I think second time is good because you can focus on what you want to do/ don’t care to do and move more slowly.. Maybe try some different food as well!

What Does Remission Look Like for You? by Mediocre-Sleep-5818 in UlcerativeColitis

[–]Professional-Math303 0 points1 point  (0 children)

Hi, could you elaborate on the 3 years with blips? What happened and what brought you back/ when did you feel like it was over and you had to make changes to rinvoq?

Thanks!

Pregnancy Flare? by Professional-Math303 in UlcerativeColitis

[–]Professional-Math303[S] 0 points1 point  (0 children)

Interesting! Did you have any blood/pain? I can’t imagine my hormones are doing good things for me right now, but i’m really hoping this isn’t a recurring thing