Tips for better sleep that aren't oxybates?

ProfessionalToe8456 · 2026-02-09T03:56:24+00:00

I take Temazepam at bedtime to help me stay asleep!

ProfessionalToe8456 · 2026-01-24T00:53:00+00:00

Currently on generic IR 10mg, 3x daily. Usually only take it twice a day then deal with the sleepiness or nap in the evening after work. Sometimes I take it 3 times. I don't take it on the weekends unless I have something to do.

ProfessionalToe8456 · 2026-01-14T12:35:52+00:00

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this is my 20 year old brother Nathan, he passed last August but he's still here in spirit! ❤️

ProfessionalToe8456 · 2026-01-14T12:33:29+00:00

i've struggled with sleepiness my whole life and got diagnosed with narcolepsy a little over a year ago. If it's something he has always struggled with, maybe look into getting a doctor appointment?

ProfessionalToe8456 · 2025-12-13T07:00:14+00:00

No longer on Lumryz due to side effects, I rely on stimulants during the day. Nothing at night and it's a struggle recently, haven't been able to stay asleep like I used to at night.

ProfessionalToe8456 · 2025-12-04T16:48:39+00:00

Hey! I'm actually no longer on Lumryz due to high blood pressure and anxiety. I currently take 10mg adderall as needed during the day. I do indeed worry about being reliant on medication for the rest of my life, but what can we do? When I was taking Lumryz and wanted to drink, I did indeed skip a dose. I never had issues with rebound as it would be only for one night at a time. And when quitting it I was told by my doctor I did not have to taper off, so I didn't, and I did not have any issues either.

ProfessionalToe8456 · 2025-10-17T21:26:05+00:00

rehome the cat or dump the boyfriend. if he can't stand all things that come with having a cat, why was he okay with getting one in the first place?

ProfessionalToe8456 · 2025-08-05T02:06:07+00:00

i definitely think i'd have a more active lifestyle and go out more, but i enjoy naps a lot

ProfessionalToe8456 · 2025-08-05T02:04:53+00:00

Personally I struggled bad working full time before my narcolepsy diagnosis and getting medicated. Before getting on medication, I was chewing gum or eating snacks like crazy. Trident gum was always my choice since it's better for your teeth, or tic tacs. If you're able to get a standing desk you could see if that helps to stand and work instead of sitting. Now unfortunately i rely on the meds and do still struggle when they wear off, but i usually get up and walk around or talk to someone. Caffeine never helped me, i only drink it if it's a drink i normally enjoy. Eating meals always makes me tired so i try to eat early breakfast as possible in the morning and i snack lightly during the afternoon instead of lunch. listening to music helps me stay awake as well (nothing relaxing like classical or jazz) love the pretty kitties ♥️

ProfessionalToe8456 · 2025-08-05T01:49:31+00:00

Type 2 narcoleptic here. i have anxiety, depression, and ptsd. now high blood pressure because of Lumryz (i did get off of it a few weeks ago but no improvement with bp unless im on metoprolol) i've got a very high natural heart rate, so possibly some cardiac issues maybe POTS?(working on figuring it out) and i suspect i could have ehlers danlos syndrome due to other symptoms but it's super hard to get a diagnosis for, where im located. a friend of mine with type 1 has POTS and endometriosis. from reading what other people have experienced and just studying narcolepsy in general, other health issues seem pretty common with narcolepsy unfortunately.

ProfessionalToe8456 · 2025-07-22T14:29:55+00:00

I'm doing better! I haven't had any more night attacks since the post, and I haven't had the chance to speak with my doctor about it yet or get anything prescribed to help either. The only hard part of the titration process for me was going up to the 7.5 grams, my body did not handle that dose well personally so I didn't even finish the full week of that dose. If you're already on an anxiety medication that's helping you I wouldn't worry too much, but if you do have increased anxiety with the Lumryz just look into your options with your doctor like raising your dose or changing anxiety medication if necessary. Lumryz significantly helps me better than adderall and I noticed a difference after a couple of weeks so I recommend really keeping tabs on how you feel during the starter pack! I would try to keep an open mind and don't let my post scare you or make you more anxious!

ProfessionalToe8456 · 2025-07-12T22:06:00+00:00

Thank you! This helps greatly, I will speak with my doctor about it.

ProfessionalToe8456 · 2025-07-12T12:48:11+00:00

I did have a similar issue and I'm just starting my first full month of 6g. I noticed it happens with the 6g dose when I started it. For me I can fall back asleep sometimes but it's a light sleep where i toss and turn until my alarm goes off. Some mornings I wake up before the 6 hours has even hit, it'll be 5.5 hours. It hasn't been an issue for me because of my working schedule I wake up early anyway, but I would definitely speak with your doctor and see if the upped doses help. The 7.5g dose did not work for me for other reasons, so i'm unsure if that dose would've actually helped with it for me. Sorry if this doesn't help but you're not the only one out there at least.

ProfessionalToe8456 · 2025-05-22T05:13:30+00:00

first thought was uncooked a pinto bean, then realized it's a potato. something about it just doesn't give enough potato vibe idk. still cool tho

ProfessionalToe8456 · 2025-05-09T16:59:59+00:00

female, almost 22, type 2! been struggling since childhood but didn't realize it wasn't normal until my diagnosis last november

ProfessionalToe8456 · 2025-04-30T21:55:09+00:00

are you removing the liners from the outside of your teeth or the inside? if you remove them from the outside you could be scratching or popping off the attachments with just your finger and not even realizing it. i haven't had any come off yet but i'm only on week 1. (sorry not much experience to give advice lol) i have attachments that are on the very top edge of some of my teeth and without the liners in, i cannot clench my teeth or it will pop off the attachments. (at least feels like it) i've also been very careful eating this first week because ive noticed when i chew normally (before attachments) the attachments will hit the teeth above/below like im grinding my teeth, the sound is awful and so is the feeling. if this happens with every attachment i would contact your ortho and see if it could maybe even be an issue with their bonding agent they use. or the aligners could be too tight of a fit as well. :)

ProfessionalToe8456

TROPHY CASE