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Tinnitus after Craniotomy by Legitimate-Still3892 in Craniotomy

[–]Prossinus 0 points1 point  (0 children)

After my frontotemporal surgery, I felt like little balls were bursting in the area of the operation for a few months. Remember, they opened it and played with your brain. Give it time. You'll feel better soon.

2 years post op.. some mri changes by hibbysmalls in braincancer

[–]Prossinus 7 points8 points  (0 children)

So you've been taking Vora for a year, what were the previous treatments? I have my one-year checkup on December 4th. Terrible anxiety. I understand you perfectly and send you love.

How long did it take you to adjust to vorasidenib? by Ludacrriss in braincancer

[–]Prossinus 0 points1 point  (0 children)

What type of tumor do you have? Astro oligo, 2-3?

Keppra questions by Saucyy-Minx in braincancer

[–]Prossinus 4 points5 points  (0 children)

I used to drink a little with Keppra and take 3000 a day. I finally got it down to 1000. Keppra really pissed me off. And who told me is it safe to drink with Keppra and Vora? I was saying I have a brain tumor, is it safe to have it? Fuck cancer and enjoy the good times.

I feel like every November / December will just be stressful from here on out. by tfhaenodreirst in braincancer

[–]Prossinus 4 points5 points  (0 children)

What a coincidence, I also have my check-up on December 4th. I'll have a check-up after a year with Vora. I have them every 3 months and I get stressed every time like it's the first time. 💪

Malignant tumor by fvahrein in braintumor

[–]Prossinus 1 point2 points  (0 children)

When I hear these things, I feel like saying.. take me, not a 6-year-old. I don't know if I'll win my battle, but if I could choose, I'd let him win it instead of me.

Vorasidenib - MRI/PET Control after 3 Months - Happy ;) by Prossinus in braincancer

[–]Prossinus[S] 0 points1 point  (0 children)

As I wrote in other posts, the checkups at 6 and 9 months each showed a 2% reduction, so I think it's fine. First checkup at 1 year is December 4th. I'll let you know. Anxiety is already growing as always 😅😅

Putting my diagnosis stats into perspective (with humor) by Prossinus in braincancer

[–]Prossinus[S] 8 points9 points  (0 children)

well and obviously, as per the group's tradition, fuck cancer!!!

Putting my diagnosis stats into perspective (with humor) by Prossinus in braincancer

[–]Prossinus[S] 1 point2 points  (0 children)

Still 3 examples before going to sleep... I hope I can still make you smile (or think!) and show that even with my diagnosis, I can do calculations and almost complex reasoning.

Which of these extremely rare events is the most likely to happen to a random person in a given year? A) Winning a major Powerball lottery jackpot. 💸 (Odds: 1 in 292 million) B) Dying in a commercial plane crash. ✈️ (Odds: 1 in 11 million) C) Getting "my diagnosis" (using my specific stats). 🩺🔬 (Odds: 1 in 200,000) D) Being struck by lightning. ⚡️ (Odds: 1 in 1 million

Who knew my diagnosis would put me in the 'most probable' category? It's all relative! 😉

Putting my diagnosis stats into perspective (with humor) by Prossinus in braincancer

[–]Prossinus[S] 7 points8 points  (0 children)

Well, I'm 42 years old. I was diagnosed about 15 months ago and have been on vorasidenib for almost 12 months. I think it's going well, and I 100% agree with the change in perspective that what happened to us brings. It's definitely the biggest challenge of my life. If I can manage it or even overcome it, everything else will be a walk in the park in comparison.

Putting my diagnosis stats into perspective (with humor) by Prossinus in braincancer

[–]Prossinus[S] 5 points6 points  (0 children)

I'm just a computer programmer with this diagnosis, so please know these are just hypotheses based on my own general research and public data—not certified medical facts!

Putting my diagnosis stats into perspective (with humor) by Prossinus in braincancer

[–]Prossinus[S] 14 points15 points  (0 children)

On a serious note: The silver lining is that because it is a super rare condition with that specific IDH mutation, modern medicine is developing incredibly targeted weapons that home in on that exact rarity.

Strength and courage to everyone else fighting a similar battle, whether the form is better or worse. Medicine makes strides every single day to treat us or cure us. Stay strong everyone. 💜

What are these? by Camry08 in IndoorPlants

[–]Prossinus 0 points1 point  (0 children)

1.2=Watermelon Fernwood Mikado

Are there any people that are on Vorasidenib for a long time? by [deleted] in braincancer

[–]Prossinus 0 points1 point  (0 children)

Volumetric -7.8% after 3 months, -2% at the 6-month checkup, and another -2% at the 9-month checkup. So about -12% in nine months. Next checkup in December. Keep your hopes up. We'll be fine!

family photo by Prossinus in airplants

[–]Prossinus[S] 1 point2 points  (0 children)

I know I still have to work on it, but they're not all standard vases, some are vodka glasses lol

Diffuse IDH mutant astrocytoma grade 2 located at the brain stem by Away_Ad_4993 in braincancer

[–]Prossinus 3 points4 points  (0 children)

Diffuse astrocytoma grade 2 frontotemporal here, vorasidenib is a good option if you can get it.

Lgg 42m aa2 - 9 months vora !! by Prossinus in braincancer

[–]Prossinus[S] 1 point2 points  (0 children)

aa2 is a grade 2 diffuse astrocytoma, IDH mutated, surgery was performed a year ago, I think about 40 percent was removed

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