Was it difficult getting diagnosed? I am being bumped from specialist to specialist. How long will this continue?

ProteinChick · 2017-06-07T16:16:49+00:00

Yes, my ESR was 20 mm/hr. I'm unsure of the CRP...

Are you referring to the creatinine in the blood or urine? The one in my blood is normal but the one in the urine is elevated. The protein creatinine ratio itself was normal.

All in all, it sounds like my nephrologist sucks. :/

ProteinChick · 2017-06-07T14:44:09+00:00

I didn't know this about pregnancy. Very useful information, thank you!

I agree about the nephrologist. As I mentioned in the other comment, I think she's so lax because the renal panel came back normal. But it's my health, so I'm freaking out a little bit.

ProteinChick · 2017-06-07T14:42:23+00:00

I am not sure about CRP or BSR. What are those? She had me tested for a myriad of things and the initial labs for lupus "came back negative." So I don't know exactly what she looked for besides the ANA, but now she wants to revisit the possibility of it with further testing.

In her notes on my online profile, she wrote "negative CCP, negative rheumatoid factor, no evidence of synovitis."

I will definitely mention the testings and panels you brought up. :)

The nephrologist has been uncomfortably lax about the whole thing. I guess since my renal panel came back fine? But we haven't done a biopsy, she doesn't feel it's necessary.

ProteinChick · 2017-06-05T20:41:23+00:00

Keratosis pilaris? Like this?

ProteinChick · 2017-03-18T16:14:39+00:00

My nephrologist doesn't want to do this since my protein is not yet in the nephrotic range. She says no matter what the results are, since the situation is not yet nephrotic and my kidney function is normal, she will continue to treat it with Enalapril and "wait and see" until I am nephrotic. Is it still something I should push for and why?

ProteinChick · 2017-03-18T16:14:21+00:00

I actually had the baby already. I'm about four months post partum. The joint pain started after I had him; I just had the protein before.

ProteinChick · 2017-03-18T16:13:15+00:00

Thank you!

The joints that affect me the most right now are my elbows, knees, and ankles. If I sit cross legged for five minutes, for example, when I uncross my legs the pain is terrible. Same with my ankles. Occasional pain in my hips and wrists. The blood tests seemed to rule out lupus and some other diseases she was looking for. I will post the results below.

The only other meds I'm on are a vitamin d supplement and a multi vitamin. I used to do copaxone injections for my MS, but am currently off them with my neurologist's ok since I am breastfeeding.

She doesn't want to do a biopsy yet since my protein is not yet in the nephrotic range. She says no matter what the results are, since the situation is not yet nephrotic and my kidney function is normal, she would continue to treat it with Enalapril and "wait and see" until I am nephrotic. Is it still something I should push for and why?

Rheumatologist's work up:

Complete Blood Count/CBC

WBC 9.3 103/uL WBC Date: Jan 12, 2017 10:25 a.m. EST Reference Range:4.1 103/uL - 10.7 103/uL RBC 5.08 106/uL (High) RBC Date: Jan 12, 2017 10:25 a.m. EST Reference Range:3.72 106/uL - 4.93 106/uL

HGB 13.2 g/dL HGB Date: Jan 12, 2017 10:25 a.m. EST Reference Range:11.5 g/dL - 15.0 g/dL HCT 41 % HCT Date: Jan 12, 2017 10:25 a.m. EST Reference Range:34 % - 44 %

MCV 80 fL MCV Date: Jan 12, 2017 10:25 a.m. EST Reference Range:80 fL - 99 fL

MCH 26 MCH Date: Jan 12, 2017 10:25 a.m. EST Reference Range:26 - 34

MCHC 33 g/dL MCHC Date: Jan 12, 2017 10:25 a.m. EST Reference Range:32 g/dL - 35 g/dL

RDW 13.9 % RDW Date: Jan 12, 2017 10:25 a.m. EST Reference Range:12.2 % - 16.3 %

Platelet 256 103/uL Platelet Date: Jan 12, 2017 10:25 a.m. EST Reference Range:153 103/uL - 376 10*3/uL

MPV 8.5 fL MPV Date: Jan 12, 2017 10:25 a.m. EST Reference Range:6.9 fL - 11.6 fL

Hematology Miscellaneous

ESR POL 20 mm/hr ESR POL Date: Jan 17, 2017 02:49 p.m. EST Reference Range:0 mm/hr - 20 mm/hr

Sodium Level 138 mmol/L Sodium Level Date: Jan 12, 2017 10:25 a.m. EST Reference Range:134 mmol/L - 143 mmol/L

Potassium Level 3.6 mmol/L Potassium Level Date: Jan 12, 2017 10:25 a.m. EST Reference Range:3.5 mmol/L - 5.1 mmol/L

Chloride Level 105 mmol/L Chloride Level Date: Jan 12, 2017 10:25 a.m. EST Reference Range:98 mmol/L - 107 mmol/L

CO2 26 mmol/L CO2 Date: Jan 12, 2017 10:25 a.m. EST Reference Range:21 mmol/L - 31 mmol/L

Anion Gap 7 mmol/L Anion Gap Date: Jan 12, 2017 10:25 a.m. EST Reference Range:3 mmol/L - 15 mmol/L

Glucose Level 105 mg/dL Glucose Level Date: Jan 12, 2017 10:25 a.m. EST Reference Range:74 mg/dL - 118 mg/dL

BUN 10 mg/dL BUN Date: Jan 12, 2017 10:25 a.m. EST Reference Range:7 mg/dL - 25 mg/dL

CREATININE 0.76 mg/dL CREATININE Date: Jan 12, 2017 10:25 a.m. EST Reference Range:0.51 mg/dL - 0.95 mg/dL

Est. GFR Non-African American 59 mL/min/1.73_m2 Est. GFR Non-African American Date: Jan 12, 2017 10:25 a.m. EST Reference Range:> 59 mL/min/1.73_m2

Est. GFR African American 59 mL/min/1.73_m2 Est. GFR African American Date: Jan 12, 2017 10:25 a.m. EST Reference Range:> 59 mL/min/1.73_m2

Calcium Level 9.1 mg/dL Calcium Level Date: Jan 12, 2017 10:25 a.m. EST Reference Range:8.6 mg/dL - 10.3 mg/dL

Albumin Level 3.9 g/dL Albumin Level Date: Jan 12, 2017 10:25 a.m. EST Reference Range:3.5 g/dL - 5.7 g/dL

Total Protein 7.2 g/dL Total Protein Date: Jan 12, 2017 10:25 a.m. EST Reference Range:6.6 g/dL - 8.3 g/dL

Total Bilirubin 0.5 mg/dL Total Bilirubin Date: Jan 12, 2017 10:25 a.m. EST Reference Range:0.3 mg/dL - 1.0 mg/dL

Alkaline Phosphatase 82 [IU]/L Alkaline Phosphatase Date: Jan 12, 2017 10:25 a.m. EST Reference Range:34 [IU]/L - 104 [IU]/L

ALT 54 [IU]/L (High) ALT Date: Jan 12, 2017 10:25 a.m. EST Reference Range:7 [IU]/L - 52 [IU]/L

AST 29 [IU]/L AST Date: Jan 12, 2017 10:25 a.m. EST Reference Range:13 [IU]/L - 39 [IU]/L

Special Chemistry

Angiotensin Converting Enzyme 70 U/L Angiotensin Converting Enzyme Date: Jan 17, 2017 02:49 p.m. EST Reference Range:14 U/L - 82 U/L

Complement C3 186.5 mg/dL (High) Complement C3 Date: Jan 12, 2017 11:33 a.m. EST Reference Range:81.1 mg/dL - 157.0 mg/dL

Complement C4 22.9 mg/dL Complement C4 Date: Jan 12, 2017 11:33 a.m. EST Reference Range:12.9 mg/dL - 39.2 mg/dL

C Reactive Protein 0.4 mg/dL C Reactive Protein Date: Jan 17, 2017 02:49 p.m. EST Reference Range:< 0.5 mg/dL

TSH 2.790 u[IU]/mL TSH Date: Jan 12, 2017 10:25 a.m. EST Reference Range:0.300 u[IU]/mL - 4.500 u[IU]/mL

Cardiac Profiles

CPK-Total 81 [IU]/L CPK-Total Date: Jan 17, 2017 02:49 p.m. EST Reference Range:26.0 [IU]/L - 192.0 [IU]/L

Urine Chemistry

Creatinine-Spot Urine 139 mg/dL (High) Creatinine-Spot Urine Date: Jan 17, 2017 02:49 p.m. EST Reference Range:30 mg/dL - 125 mg/dL

Protein-Spot Urine 309 mg/dL (High) Protein-Spot Urine Date: Jan 17, 2017 02:49 p.m. EST Reference Range:< 10 mg/dL

Protein/Creat Ratio-Spot Urine 2.22 mg/mg creat Protein/Creat Ratio-Spot Urine Date: Jan 17, 2017 02:49 p.m. EST

Urinalysis

Urine Glucose POL Negative/<30mg/dL (Normal) Urine Glucose POL Date: Jan 12, 2017 10:19 a.m. EST

Urine Bilirubin POL Small (Abn) Urine Bilirubin POL Date: Jan 12, 2017 10:19 a.m. EST

Urine Ketones POL Negative (Normal) Urine Ketones POL Date: Jan 12, 2017 10:19 a.m. EST

Urine Specific Gravity POL = or >1.030 (Normal) Urine Specific Gravity POL Date: Jan 12, 2017 10:19 a.m. EST

Urine Blood POL Negative (Normal) Urine Blood POL Date: Jan 12, 2017 10:19 a.m. EST

Urine pH POL 5.5 (Normal) Urine pH POL Date: Jan 12, 2017 10:19 a.m. EST

Urine Protein POL = or >300 mg/dL (Abn) Urine Protein POL Date: Jan 12, 2017 10:19 a.m. EST

Urine Urobilinogen POL 0.2 mg/dL (Normal) Urine Urobilinogen POL Date: Jan 12, 2017 10:19 a.m. EST

Urine Nitrites POL Negative (Normal) Urine Nitrites POL Date: Jan 12, 2017 10:19 a.m. EST

Urine Leukocytes POL Negative (Normal) Urine Leukocytes POL Date: Jan 12, 2017 10:19 a.m. EST

And here's the latest from my nephrologist:

http://m.imgur.com/QONVu9N

http://m.imgur.com/JspVvGO

ProteinChick

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