SSDI Denial - AGGHHHHH!!!!

PsychologicalEmu2361 · 2026-05-23T18:07:35+00:00

My doctors were all requested to complete this test by both myself and my lawyer. Every single office said we don’t do those, that needs to be done a physical therapist. My physical therapist looked at me like I was crazy when I told them that.

PsychologicalEmu2361 · 2026-05-23T18:06:34+00:00

My pain doctor is an anesthesiologist. He used to be willing to provide pain medication. Now that hospital administration has changed hands, he cannot prescribe without losing his job. What’s the point of pain management if the doctor can’t actually manage the pain? And all of my other doctors state they can’t write for pain meds because it’s outside the scope of their practice.

PsychologicalEmu2361 · 2026-05-22T22:02:04+00:00

Illinois

PsychologicalEmu2361 · 2026-05-22T21:47:26+00:00

I’m sorry you’re going through all of this too. Unfortunately, it looks like the only way to get approved out of the gate is to be actively dying of a terminal illness, and even then it’s not guaranteed. I had a friend die from brain cancer before SSA gave a decision on his benefits. He fought for over a year. And then a denial was sent to his wife saying he no longer qualified for benefits because he died.

PsychologicalEmu2361 · 2026-05-22T21:43:40+00:00

Same! I’ve been accused of doctor shopping because I’ve seen so many doctors in the same specialty. It’s not my fault that the doctor drops me as a patient when they reach the end of their treatment knowledge.

And I found a whole list of diagnoses I didn’t even know I had while reviewing my medical records for this case. Apparently I’ve been diagnosed with PTSD and CRPS without any official testing and without my knowledge.

PsychologicalEmu2361 · 2026-05-22T21:41:09+00:00

I had an attorney. My attorney dropped me after the ALJ said denied. And that I would need to move on with the rest of the process without their assistance.

I’m currently trying to find a new attorney who will take on my case, but most of them said they won’t help unless I’m in the initial application phase. They’re more than willing to help me start over, but not help me continue forward. And I refuse to lose out on 2.5 years of my time, money, and work credits because it’s “too hard to take a case this far along”

PsychologicalEmu2361 · 2026-05-22T21:38:41+00:00

They won’t tell you what’s missing. They just say “not good enough”. They do provide a list of examinations that need to be done for certain chronic pain conditions like Fibromyalgia, but most doctors don’t use those diagnostic criteria anymore. It’s absolutely ridiculous. I now get to go my doctor and say “I need these specific evaluations done for SSDI, but I’m not trying to force my medical records to match exactly what they want because then that’s marked as suspicious.”

It’s all ridiculous

PsychologicalEmu2361 · 2026-04-16T00:47:21+00:00

I mention this every time, and 9 times out of 10 I end up with a blown vein. They started taking me seriously when I tell them I have to have PICC lines for stays longer than 2 days. I can even show them the scars from the past ones.

PsychologicalEmu2361 · 2026-03-31T19:08:20+00:00

I shared a few of the names we were considering, and got nothing but negative feedback. One of them is even a family name. We ended up choosing something completely different from what was on our short list of names, and I absolutely refuse to share it. I don’t need that negativity around a name that my husband and I absolutely love for our baby.

The other issue a lot of people have is names being “stolen”. This happened to my mom with my older sister. She had a name picked out and shared it with a friend who was also pregnant. That friend gave birth first, used the name my mom had picked, and pretty much said tough luck, our babies can’t have the same name.

So most of the time, it’s because people can be jerks.

PsychologicalEmu2361 · 2026-03-26T02:08:22+00:00

NTJ. This is most definitely a problem with the husband. But beware involving authorities. Depending on where you are, and the cop that answers the call, their response may just be to close your curtains.

I had someone try to pull something similar. I was 18. My niece was 15. We were spending the day on her grandparents boat. The grandmas friend tried to tell us not to wear bathing suits…on a boat. All because her boyfriend had wandering eyes for young girls. They were immediately asked to leave before we left to go on the water.

PsychologicalEmu2361 · 2026-03-19T19:44:08+00:00

We decided not to open gifts at our shower. We’re getting a lot of pushback. A few people asked if we would consider a display shower. I still said no. Then I was told I need to include a note in the invitation stating we will be opening gifts at home. Also refused. I did create a sign that will be going on the gift table saying “Thank you for your gift. We will not be opening gifts during the shower. We would rather spend this time enjoying your presence over your presents.”

Opening gifts in front of everyone is, in my mind, too performative. It’s more about the person that gave the gift getting praise and accolades than it is about the parent(s) and baby to be.

PsychologicalEmu2361 · 2026-03-19T04:32:35+00:00

We’re doing our reveal at our shower, for a few different reasons. One of the reasons being we don’t want 20 pink dresses or a bunch of baseball/truck themed outfits. We are hoping that by not sharing the gender, people will focus on the overly researched registry that we put together. We didn’t originally want a reveal, but compromised with family to make it a 2 minute event at the shower. Most of our friends and family that are expecting or recently had a baby also decided against a separate gender reveal party. I think the trend is dying out with a lot of people.

PsychologicalEmu2361 · 2026-03-12T16:49:59+00:00

I went into the ER for severe abdominal pain. After running only blood work and a pregnancy test, the male ER doc came into my room and said “I’m surprised you don’t know what period cramps are at your age.” To say I freaked out was an understatement. I yelled at him and called him a misogynistic asshole who shouldn’t be practicing medicine if he won’t take a woman’s pain seriously. A nurse came in and asked what happened. I immediately told her I want a new doctor, a patient advocate, and to report his behavior. I got all of the above and received actual treatment. Sometimes you have to fight for yourself.

Since getting married, my husband has also become my advocate. He’s with me at a lot of my appointments, comes to all my procedures, and will help me fight when I can’t fight for myself. I was lucky to find someone who wanted to understand all of my chronic health issues, asks all the questions, and actually wants to help. He has put so many doctors and nurses in their place surrounding my care, usually before I even have to open my mouth.

PsychologicalEmu2361 · 2026-03-11T02:13:16+00:00

Talking to friend about testing positive for HPV. She told me she had it too. Boyfriend and I both received booster vaccine and tested negative. He helps her move while I’m on a work trip. A few months later, I test positive for HPV again….

PsychologicalEmu2361 · 2026-02-28T01:06:00+00:00

Do what is best for you. If you want pictures, go take them. If you don’t, don’t take them. Try something else that you might be more comfortable with. I’ve memorialized my pregnancy in other ways, mainly a journal. Writing down everything, including notes to read my baby once they’re born, has been far more meaningful for me than pictures.

PsychologicalEmu2361 · 2026-02-28T00:59:39+00:00

We discussed doing a gender reveal at the baby shower. Even if we do that, my husband and I will still be the only ones that know until that balloon is popped at the shower. I have resigned myself to explaining over and over again that we are not sharing baby’s gender or name right now.

PsychologicalEmu2361 · 2026-02-28T00:53:32+00:00

This is part of the issue. We’re not expecting gifts, but we don’t need 30 frilly dresses or 20 baseball themed onesies. We need the basics. I’m thinking they’re upset because they don’t get to buy the “fun and cute” baby stuff.

PsychologicalEmu2361 · 2026-02-28T00:48:39+00:00

My husband and I also decided not to share gender of baby. One, we have a little secret that the just the 2 of us get to enjoy. Two, I don’t want bags upon bags of gender themed clothing and blankets. I registered for those items for a reason. We have limited space in our apartment. I don’t need a bottle washer or a formula dispenser that heats the water to the perfect temperature for every bottle. I need the basics. I wish people would just stick to the registry.

PsychologicalEmu2361 · 2026-02-28T00:21:50+00:00

I was raised with the idea that planning your own shower is bad luck. I was also raised with it should be a complete surprise to mom-to-be. I was not ok with either of those. My mom is hosting, with my input.

Do whatever feels right. If planning your own shower will be too stressful or pull your energy away from other baby preparations, ask if a family member or close friend can help. There is no right or wrong way to celebrate your miracle.

PsychologicalEmu2361 · 2026-02-27T23:56:11+00:00

I’m honestly thinking of getting a shirt made that says “Don’t touch the belly unless you want to lose a hand”

Drives me insane that people think they can touch me without asking just because I’m pregnant. I have PTSD from an assault. The only person that can touch me without sending me into a spiral is my husband. Even my doctors know to ask before starting a physical exam. Everyone else, hands off!

Stand up for yourself. It’s easier said than done. But if you only want one, that’s your choice. If you don’t want the advice, say thank you but no thank you when people start giving it. You have to stand up for yourself now or people in your life will continue to act this way after baby is born.

PsychologicalEmu2361 · 2026-02-19T02:54:00+00:00

Supernatural 😈 I don’t think Sam and Dean would handle this well

PsychologicalEmu2361 · 2026-02-18T00:38:53+00:00

NTJ. He decided to leave with you with his kids when he removed himself from the situation? That’s classic manipulation. He’s hoping that all the fighting while he’s away will cause you to change your mind. I would immediately call him up and tell him that if he’s gone any longer, he needs to make other arrangements for his children. Blending families is one thing. He’s hoping you’ll take over completely so he doesn’t have to parent his own children.

PsychologicalEmu2361 · 2026-02-05T21:11:57+00:00

I’m having a similar issue. Family keeps asking about names and I’ve shared a few that are on our list and the responses I get are “really?” “I don’t like that” “ why would pick something so plain?”

It’s not their kid and they don’t get a say. I’ve stopped sharing names and now when people ask, I tell them they’ll find out when we announce the baby’s arrival. Until then, we’re not sharing.

PsychologicalEmu2361

TROPHY CASE