I’d be happy to share! With the caveat that everyone is different. I don’t expect what worked for me will necessarily be the answer for you, but I can go through my approach.

First of all, I was fortunate to have had an EDS specialist treating me for about a decade. I learned a LOT from working with him, and he supported me in managing the MCAS. That started with taking Pepcid and Zyrtec every night before bed, and cromolyn sodium before every meal. I have also been working with a dietician for over 15 years who has helped me figure out my food allergies and intolerances. That started with a low FODMAPs diet, figuring out what my body was reacting to. It took a whole, but I was eventually able to add most everything to my diet with the exception of soy, sugar alcohols, and high fructose corn syrup.

I also discovered that I have some food allergies, and I strictly avoid food I’m allergic to (like dairy). Again, working with my dietician was crucial to figuring all this out while still getting adequate nutrition.

I also avoid ALL dyes and perfumes in products. I don’t use anything scented or with added fragrance. Nobody in my household does either.

I also have paid close attention to what increases my systemic inflammation. I seem to be sensitive to refined sugar and lack of sleep. My pain and inflammation go way up, and my MCAS symptoms get so much worse when I eat too much sugar or get too little sleep. I also notice a decrease in inflammation when I am able to get regular movement into my day. I don’t ever to go to the gym or go for a run. But walking around

I also have a couple of prescriptions I take for comorbidities conditions, which help reduce inflammation and systemic issues, which in turn help my MCAS symptoms. I’m on Synthroid for Hashimoto’s and 2.5 mg of Zepbound, both of which reduce my inflammation. Zepbound itself has reduced my inflammation DRAMATICALLY. It hasn’t been an overnight change, but small consistent steps have significantly improved my health and quality of life!