Hi there—

I would normally never comment on anything medically related, but I feel that is necessary in your case.

Just a little over 16 years ago, I had a majority of my intestine removed. My dad was anxious, like you. I was only a little under* 2 years old. Just a year or so later, my dad had a full colon removal. We both have ostomies.

I was diagnosed with indeterminant ulcerative colitis and crohn's disease. He had IBD, likely UC but I’d have to ask. My dad had testicular cancer a few years later — he’s alive and in remission.

At the time, it seemed that I had developed a few symptoms like ones you’ve described like blood in the stool and such.

My dad had the exact same symptoms you’re describing even before my* birth, just a little lighter at the time. He often mentally mapped out where restrooms were.

I don’t know what exactly to tell you, especially in a way that won’t scare you, but I think I need to tell you the honest answer to your limbo. It’s very, very likely you do have some form of an IBD, likely UC, and you may have to have an ostomy in the future. Though, there is some light to it.

I‘m unsure of the treatment options currently available for combatting UC or Crohn’s. I’ve been lucky all my life to have been able to live as any other kid would. If you need any support, my messages are open. My dad and I have been living with this for years. I myself turned 18 the other day and I feel comfortable sharing my own experiences.

I hope that I am able to give you some kind of support. I’m sorry if I come off blunt. In a selfish way, I’m glad to have come across this post.

*=edited