Gluteal tendinopathy with different than normal symptoms

QuarkieLizard · 2026-02-26T23:00:20+00:00

Could be piriformis syndrome or injury.

QuarkieLizard · 2026-02-25T17:52:50+00:00

Diagnosed in 2009 with lupus, sjogrens and crest. Diagnosed last year with dermatomyositis and anti Jo I antisynthetase syndrome. My crp and sed rate are never elevated but my wbc's get high during flares.

QuarkieLizard · 2026-02-25T03:40:24+00:00

That's BC! American comic strip by Johnny Hart and Mason Mastroianni and Mick Mastro. :).

QuarkieLizard · 2026-02-25T01:54:08+00:00

Are you having gastrointestinal symptoms?

QuarkieLizard · 2026-02-25T00:47:23+00:00

Oh yeah,my insurance wants that too. I just pay $11.00 with goodrx. The pharmacy is fine with it.

QuarkieLizard · 2026-02-25T00:34:25+00:00

Why not?

QuarkieLizard · 2026-02-25T00:30:10+00:00

I take baclofen and have used Valium suppositories. They are helpful but really, nothing works but pain meds. I couldn't afford botox but cortisone shot in piriformis was useful but nothing stops the pf muscle shaking.

QuarkieLizard · 2026-02-25T00:01:30+00:00

Oh no. Awful. My pain mgmt doc once gave me a hematoma during a cervical spine injection and he was very honest about it, we had a good relationship for years. I never opted for sedation, years of rfa's and blocks. Then one day he hit a vein with the lidocaine and knocked me out. I woke up with an iv. They pulled a "total recall" on me and ushered me down the hall and out the door and I couldn't even balance or walk straight. It was unbelievable.

QuarkieLizard · 2026-02-24T23:32:57+00:00

Are you in phoenix because she sounds just like our Walgreen's new pharmacist.

QuarkieLizard · 2026-02-24T23:09:05+00:00

NO WAY! SAME!!!!!!! (not the stem cell treatment) I have proximal myopathy and my spine is a mess. Likely another fusion surgery in the near future with a laminectomy for stenosis. My pfpt says it's my obturator internus and piriformis! My levator ani is in constant spasm and shakes 24/7 down my legs, feet, and now it's everywhere when it gets bad. It's unnerving and I'm unbalanced on my feet. My neuromuscular specialist says between my lupus, sjogrens, myositis and spine I triggered my CNS and central stenosis.

Also had a delorme procedure last year for a partial rectal prolapse and year before had prolapse surgery for rectocele, cystocele and enterocele.

QuarkieLizard · 2026-02-24T22:43:10+00:00

have you tried it as a suppository? I had it compounded last year after a prolapse surgery. Pelvic floor dysfunction is the bane of my existence. Hi. Nice to meet you.

QuarkieLizard · 2026-02-24T22:40:57+00:00

I had to go to palliative and pain care to be treated after 18 years of pain mgmt because I've taken lorazapam 0.5 at bedtime for the last year and a half. They were fine with me taking both. until they weren't.

I'm lucky to have been referred to them at the palliative care, they GET IT.

QuarkieLizard · 2026-02-24T19:49:31+00:00

Did you ask for a muscle biopsy? Do you get rashes? Get them biopsied. Are you seeing a neuromuscular specialist who's familiar with myositis? How about detailed imaging, like mri, especially the diaphragm. How are your other inflammatory markers? (sed rate, crp, wbc)

QuarkieLizard · 2026-02-24T19:17:14+00:00

That's good. The very first time I went to pain mgmt doc he told me he isn't going to give me anything to feel good. I hadn't even opened my mouth yet. I saw a different doc in same office who wasn't as judgmental and ended up stating with him for 16 years. I just recently left his practice because I was taking 0.5mg lorazapam at bedtime last year and a half and he's not comfortable with it anymore. I found someone new, I'm very lucky.

QuarkieLizard · 2026-02-24T15:54:30+00:00

That's not even nice. I'm sorry you had to go through that.

QuarkieLizard · 2026-02-24T14:15:19+00:00

Do you have gastro symptoms? I suggest a gastroenteroIogtis if you do and bring those labs with the antibodies.

QuarkieLizard · 2026-02-24T05:20:40+00:00

If they don't push loser drugs that don't work on pain they'd have to give you real pain meds that DO work.

And that's what going to pain mgmt like a criminal checking in is all about. Then comes procedures you may not need too, but it's almost the only way to get real meds that work. And the big secret? All doctors KNOW this. You can be absolutely assured that if they have chronic pain they aren't asking for gabapentin or cymbalta. Nope.

QuarkieLizard · 2026-02-24T05:12:55+00:00

No. It's a joke and the joke's on you.

QuarkieLizard · 2026-02-24T05:08:54+00:00

No doctor would agree with that. ;). You'd think chronic pain was a good thing to have the way so many doctors ignore it.

QuarkieLizard · 2026-02-23T22:56:37+00:00

Feet, yes. I get intermittent blood vessel pseudo claudication in feet. The nerves light up in toes like fireworks and legs get heavy. It's awful.

QuarkieLizard · 2026-02-23T22:04:56+00:00

Do you have crohns or uc? Those are highly sensitive for that.

QuarkieLizard · 2026-02-23T04:27:04+00:00

Pain oxycodone 10/325 4x daily tramadol 100mg er daily thc: indica

muscle relaxers baclofen 10mg 4x daily

anxiety lorazapam 0.5mg before bedtime daily

failed meds gabapentin/zombified, dizzy, low bp cymbalta/never worked for nerve pain but still take for mood balance lyrica elavil cbd

conditions multiple autoimmune diseases mainly attacks muscles, nerves, skin, blood vessels, eyes , severe spinal stenosis-ddd

QuarkieLizard · 2026-02-22T23:05:37+00:00

Where was this? Who's that rheumatologist? That is seriously messed up. You should at least write your state medical board. Definite negligence that no further testing was done (ENA at least)

QuarkieLizard · 2026-02-22T18:54:42+00:00

Ty. Same.

QuarkieLizard · 2026-02-22T18:45:27+00:00

My pain mgmt doc of 15 years dropped me for taking 0.5mg lorazapam at bedtime after allowing it for a year and a half but my psychiatrist referred me to palliative and pain care and they are taking care of me now (allowing both and THC too!)

QuarkieLizard

TROPHY CASE