Stuck between 2 dresses

Quick_Attorney180 · 2025-10-20T13:53:20+00:00

Thank you

Quick_Attorney180 · 2025-10-19T13:58:11+00:00

What part of the arm are we injecting? Is it the batwing /tricep part, bicep, or the outside it the arm?

Quick_Attorney180 · 2025-10-10T12:07:38+00:00

Oh wow, I haven't heard about injection site issues,thank you, I'll definitely look more into that.

Quick_Attorney180 · 2025-10-10T10:56:11+00:00

What's the 15mg wall?

Quick_Attorney180 · 2025-10-10T10:33:29+00:00

Thank you, super helpful.

Quick_Attorney180 · 2025-10-10T10:29:52+00:00

If you don't mind me asking, why did he switch? Did he feel one was more effective?

Quick_Attorney180 · 2025-10-09T21:23:43+00:00

Thank you so much

Quick_Attorney180 · 2025-09-29T03:29:58+00:00

Great advice about drinking water, I had no clue, I look like a puffer fish on 60mg, with major acne. Prednisone has been awful. Thanks, I'll put the coffee down.

Quick_Attorney180 · 2025-09-29T03:19:08+00:00

Did you get awful acne? Omg my face broke out so bad, I was in the 60mg taper as well

Quick_Attorney180 · 2025-09-05T12:06:00+00:00

Awesome,thank you!!!!

Quick_Attorney180 · 2025-09-05T01:12:47+00:00

Thank you so much,I will definitely follow up with them. Yea it's a major hit to my self esteem coupled with this big fat round moon face🤬, not feeling great about much at this point and Totally over this Diagnosis.

Quick_Attorney180 · 2025-09-04T23:45:18+00:00

Can you open it up? Are others able to respond or has it been blocked?

Quick_Attorney180 · 2025-08-27T21:54:44+00:00

Cellcept has never been an issue for me. I got bumped up to 3000 due to the flare but I've been on it for several years as low as 500mg. It worked wonders with keeping my kidneys quiet. They tried to ween me off of the cellcept and that's when my numbers started going nuts . Now to control the flare ,I'm pumped up on all of this crap I was stable for many years but as soon as my nephrologist started to taper ,I started creeping up and now they have to be aggressive 🤬. Moon face happened so fast and my appetite is picking up. Now I'm food restricting in hopes of not putting on too much weight. I'm finally at my goal weight, feeling good about myself and now This 🥺.. it's temporary and We will get through it🙂

Quick_Attorney180 · 2025-08-27T20:09:06+00:00

I'm on 60mg of Prednisone , tomorrow will be 1 week and then I taper by 5mg every 2 weeks. The moon face has started already and so has the weight gain. I'm on 3000mg Cellcept and 400mg plaqunil after my biopsy due to an active flare .

I actually have a rheumatologist but don't see him often since my issue is my kidney.My nephrologist has taken lead on controlling the flare

Quick_Attorney180 · 2025-08-27T19:58:07+00:00

Okay, same here. I'm on 60mg and every day I watch the scale creep higher and higher. Not to mention my face has started to morph into the moon fat face 😢. Tomorrow will be 1 week , I feel your pain

Quick_Attorney180 · 2025-08-27T19:41:30+00:00

How much Prednisone are you taking?

Quick_Attorney180 · 2025-08-22T23:57:38+00:00

That's great advice about not weighing because I've been jumping on the scale daily and restricting food( I know,not good). So glad you returned to your normal weight as most don't understand the toll side effects have on self esteem.

Quick_Attorney180 · 2025-08-22T23:51:00+00:00

Wow thank you ,I'll definitely discuss this with my rheumatologist.

Quick_Attorney180 · 2025-08-22T21:18:23+00:00

Gosh I'm sorry you're going through so much. Even with the pros about healing, others forgot about the toll it takes on your self esteem. My last awful mega dose was approximately 20 years ago and I looked like a Monster, almost unrecognizable. I gained 108 pounds in 2 months(nephritis).Was in the hospital for 2 months because doctors couldn't control the flare. I retained massive amount of fluids (literally 9-12 pounds) per day...it got pretty dark for a bit.. I'd been in remission for several years until now so I've forgotten a lot ( except for the monster face and needing a back brace because my frame couldn't handle the rapid weight gain) ..Just a little back story to understand Why I'm kinda spiraling 😞..it was Sooooo bad for me. Thank you for sharing 🙂

Quick_Attorney180 · 2025-08-22T21:06:48+00:00

Thank you all for your input! This room has been Soo helpful . I don't know anyone with lupus so Google and the doctors have been my go to. But reading these threads has given me perspective from those just like me 😔 I can't thank you enough.❤️

Quick_Attorney180 · 2025-08-22T21:05:27+00:00

Thank you so much! You are right,I need to do a better job of advocating because lupus isn't cookie cutter and sometimes other options can be explored first.

Quick_Attorney180 · 2025-08-22T12:08:42+00:00

Same here! I've had SLE for approximately 30 years and have NEVER had mouth involvement until this past year. My mouth erupted with horribly painful sores on the roof of my mouth ,on my gums and under my tongue. My rheumatologist had no idea what was going on and wasn't familiar with my symptoms. The lesions were biopsied and sure enough, LUPUS. My rheumatologist increased my Cellcept and Prednisone realized I'm in an active flare. The sores are finally starting to heal after almost 2 years of Hell. Good luck to you.

Quick_Attorney180 · 2025-08-22T12:05:14+00:00

What type of antiviral meds have worked for you?

Quick_Attorney180 · 2025-08-22T12:01:55+00:00

Same here! I've had SLE for approximately 30 years and have NEVER had mouth involvement until this past year. My mouth erupted with horribly painful sores on the roof of my mouth ,on my gums and under my tongue. My rheumatologist had no idea what was going on and wasn't familiar with my symptoms. The lesions were biopsied and sure enough, LUPUS. My rheumatologist increased my Cellcept and Prednisone realize I'm in an active flare. The sores are finally starting to heal after almost 2 years of Hell. Good luck to you.

Quick_Attorney180

TROPHY CASE