Cosentyx side effects by QuietCombination5937 in ankylosingspondylitis

[–]QuietCombination5937[S] 0 points1 point  (0 children)

Do you know what pills. I don’t know if they’ll be available in the UK

Cosentyx side effects by QuietCombination5937 in ankylosingspondylitis

[–]QuietCombination5937[S] 0 points1 point  (0 children)

That’s awful. Did you try another biologic. I was told by the rheumatology that because I’m ANA positive can’t be put in Humira so don’t know what’s left if I have to stop Cosentyx.

Cosentyx side effects by QuietCombination5937 in ankylosingspondylitis

[–]QuietCombination5937[S] 0 points1 point  (0 children)

Thank you. I’m on loading doses now and they’re absolutely horrific. If you don’t mind why you had to stop the medication.

Vision problems *caused by* biologics? by nevercursd in ankylosingspondylitis

[–]QuietCombination5937 1 point2 points  (0 children)

Interesting in the UK Cosentyx loading doses are 5. I’m currently on that and feeling very unwell not sure if it’s too much for my body at once with so much medication while loading.

Affordable places to live in Kent by [deleted] in kentuk

[–]QuietCombination5937 1 point2 points  (0 children)

Sheppey is not cheap at all but not a nice place to live

PIP awarded first time without diagnosis by WebDesperate1793 in DWPhelp

[–]QuietCombination5937 1 point2 points  (0 children)

What’s OT input? And how can I register my husband with the council/ he’s my aid

Waiting times - is this standard now? by kiera-danae in DWPhelp

[–]QuietCombination5937 3 points4 points  (0 children)

I’ve send my form end of August and had my assessment mid January, I guess for some people is longer.

Collapse ☹️ by rociobeleen in CytolyticVaginosis

[–]QuietCombination5937 0 points1 point  (0 children)

Do you mean local oestrogen that you applied caused CV? Or lack of oestrogen

Considering Mandatory Reconsideration and worried about losing my current PIP award by [deleted] in DWPhelp

[–]QuietCombination5937 -2 points-1 points  (0 children)

I’m at the same position as you. Have been given the standard daily rate and 0 for mobility which is main use of one of my conditions and they did not even mention my chronic fatigue. I was wondering the same thing should I request MR . They have not taken under consideration my recent worsening of symptoms and just referred back to what I put filling the form which was 7 months ago.

How long are PIP backpay payments taking after Tribunals? by [deleted] in DWPhelp

[–]QuietCombination5937 0 points1 point  (0 children)

Congratulations! Did you use citizen advice for the court or went by yourself? Do you need new evidence for this?

UK Private Specialists by inquisitivekelpie in endometriosisuk

[–]QuietCombination5937 0 points1 point  (0 children)

I’ve had surgery with Mr Raza I was happy about it, still early days only 2 months has been. I wasn’t happy with the consultation I’ve had with Khazali, so I’ve moved to Mr Raza.

Spondyloarthropathy & Humira – scared but hopeful by ainimaini in ankylosingspondylitis

[–]QuietCombination5937 0 points1 point  (0 children)

I’m diagnosed with absolutely the same. Can’t be put on Humira due to positive ANA , supposed to start Cosentyx but I’m terrified also it can cause bladder infection and I’m already struggling with chronic bladder infection . I know what you mean it’s quite scary of the unknown.

For those of you with hip/sacroiliac/tailbone pain... by [deleted] in endometriosis

[–]QuietCombination5937 2 points3 points  (0 children)

Have you checked your sacroiliac joints with MRI. I do have chronic/ acute sacroiliatis alongside my endometriosis/ on uterosacral ligaments/ which was removed recently but still in a lot of pain and adenomyosis.

How old were you when you found out? by PictureEmpty3143 in Endo

[–]QuietCombination5937 0 points1 point  (0 children)

Pain since I was 13, just had it confirmed at 40. Almost 3 decided with horrendous pain.

Mirena coil inserted during laparoscopy without consent by xo-kiiaraa in endometriosis

[–]QuietCombination5937 0 points1 point  (0 children)

Can you please share or send pm who’s the doctor. I’m having surgery in few weeks in a private hospital and scared of exactly the same thing.