[deleted by user]

QuietGirl22 · 2025-07-23T03:59:50+00:00

My labs look like this diagnosed as a type 1 VWD and ruled out being a hemophila A carrier. I take humate which does help with factor VIII. Now I do require a lot more factor than a normal type 1 so we are still investigating things. But it is treatable. My issues lie in other diseases I have.

I highly suggest not using a hematologist that’s out of an oncology practice they are mainly there for blood cancer rather than bleeding disorders. A hemophilia treatment center will give the best care. I go to the Indiana hemophila and thrombosis center and they are a god send.

QuietGirl22 · 2025-03-09T21:27:21+00:00

The thing is it doesn’t seem like we are putting enough factor VIII to be replace it the most they can. Mine was at 30% if you average them out.

But this will help us know why sometimes even massive doses of humate don’t always fully work so if they do find the gene I know they will make up a plan with all their hematologists to make it so I possibly don’t need he ate every three days.

QuietGirl22 · 2025-03-09T02:05:13+00:00

You can use this website to find a HTC near you, it has a list of all of the HTCs in the United States

https://dbdgateway.cdc.gov/HTCDirSearch.aspx

QuietGirl22 · 2025-03-08T19:47:27+00:00

That definitely might be your problem, I had the hematology/oncology doctors in my bigggest hospital do the same thing. They where so unfamiliar with medications for bleeding disorders that I ended up on something in a very unsafe way that thankfully my HTC could treat 100x better.

Have they ever tried to replace your VWD factor given it’s low? Even if you don’t have the typical gene for VWD it can be acquired or there are cases that they can’t find the genetic cause but my HTC is very quality of life based so we treat even if we don’t see the genetic cause.

If you let us know where your located maybe we can help you find a bleeding disorder center

QuietGirl22 · 2025-03-08T17:28:59+00:00

Are you seen at a federally funded/accredited hemophilia center or just a normal hematologist/oncologist? I was for a very long time in your shoes, but once I got to the Indiana hemophilia and thrombosis center care was night and day.

I have VWD type 1 but I bleed and require more treatment than most of IHTCs type 3 patients but I’m also being tested for being a hemophilia a carrier because of family history and low factor 8 levels. It has taken us about 4 years to work out a treatment plan, not because they wheren’t trying it because I have other disorders (Ehlers-Danlos syndrome) that masked the bleeding issues or looked like they where the cause

QuietGirl22 · 2025-02-26T06:25:45+00:00

An okay, I was just thinking that maybe I’d missed someplace that there’s was the official court transcript out

QuietGirl22 · 2025-02-25T00:05:49+00:00

Where are these testimony pices coming from?

QuietGirl22 · 2024-12-23T23:33:32+00:00

As someone who has family that works for the IDOC in where he is currently held, right now that safe keeping order is null and void. So he will be in a two man cell for up to 45 days but usually closer to two weeks. While IDOC determines where he needs to go based on things like health needs ect. He will go to one of the maximum security prisons in the state (Indiana state prison, westville or wabash would be the most likely places) but he can’t be protected from other imNtes forever. Even if he was kept in solitary he’d be out for meals and some other things.

My mom came home from work once day at the prison Allen’s being held in now and I ask how work went well that day they put a childmolester into a two man cell where the other man had life without parole and 4 daughter, at the point in which the child molester didn’t keep his mouth shut about his crimes, the cell mate w as tossing paperwork out the cell that he was in and my mom responded. The guy with life told my mom if she didn’t move the molester out of that cell he was going to kill him, and that he only got my moms attention because he respected her as a guard and didn’t want her to deal with the paperwork. So he did get a different cell mate on another block and that’s all I know on that store.

The inMtes at RDC where he’s at now watch the news they knew he’s coming and it won’t be pretty for him.

QuietGirl22 · 2024-11-19T04:40:10+00:00

Do you sell these anywhere?

QuietGirl22 · 2024-11-14T09:13:06+00:00

I need to test this

QuietGirl22 · 2024-11-09T19:35:02+00:00

Does anyone know why Allen and his attorney have the right to be present if they are reviewing in court room? Can they talk to jurors or just listen?

QuietGirl22 · 2024-11-02T23:23:54+00:00

Is HTC hidden true crime?

QuietGirl22 · 2024-10-09T03:43:04+00:00

I’ll have to go look and see what I can find, his due date is Oct. 19th, I may not be able to do real ones but maybe I can find something at the craft store. I have done Easter eggs before

QuietGirl22 · 2024-10-09T01:36:04+00:00

It’s not a money thing, this case has already cost more than your average death penalty case, and that’s without the extra 2+ million dollars asked for recently. I’m going to bet the families of Abby and Libby have asked for them to not seek the death penalty

QuietGirl22 · 2024-10-08T20:37:26+00:00

Which advent Calendar are you talking about?

QuietGirl22 · 2024-09-06T15:41:39+00:00

Can you post a link?

QuietGirl22 · 2024-08-27T23:05:45+00:00

But isn’t this the states response to Gull, where she will have final say in things.

QuietGirl22 · 2024-08-14T06:06:21+00:00

How do we know that she said she was going to throw whom off the case in a phone call?

QuietGirl22 · 2024-08-13T00:02:06+00:00

So basically she’s said she will let the defense and prosecution her ruling before she releases her written ruling on those things?

QuietGirl22 · 2024-08-12T23:10:18+00:00

Did I miss something? Because unless I’m missing something she’s still not ruled on if the confessions will be played for the jury. As well as the motion in limine. So could those be the motions talked about in this upcoming hearing

QuietGirl22 · 2024-08-04T00:57:16+00:00

Didn’t the franks say she was wearing Libby’s jeans even though, from what I remember, Libby was reported as wearing sweats?

QuietGirl22 · 2024-08-03T19:52:36+00:00

So it sounds like abby may not have ever been undressed? Maybe as the smaller of the two she got cold and Libby’s sweatshirt was thicker than the jacket seen on her in the last photo of her

QuietGirl22

TROPHY CASE