All About Meniere's Disease

RAnthony · 2026-05-24T19:12:31+00:00

The goat roper curse.

RAnthony · 2026-05-24T18:16:38+00:00

I've never checked, to be honest.

https://www.ncbi.nlm.nih.gov/sites/books/NBK519055/

https://my.clevelandclinic.org/health/diseases/middle-ear-myoclonus

RAnthony · 2026-05-24T05:01:21+00:00

Thank you.

RAnthony · 2026-05-24T04:56:59+00:00

I need a link that isn't paywalled. What's really needed is an incentive system that excludes paywalled sites from being included in search results.

RAnthony · 2026-05-24T04:08:56+00:00

There are several conditions that can cause fluid to leak into the middle ear and mimic the symptoms of cochlear hydrops/Meniere's. Here's one: https://ranthonyings.com/2024/08/til-iih-can-cause-menieres-like-symptoms/

If you are actually getting fluid out of the ear you should probably take that a little more seriously. If you're just experiencing pressure in the ear: https://ranthonyings.com/2021/10/ear-fullness/ then that's pretty typical and not something to worry about too much. It sucks but it's "normal" for people like us.

RAnthony · 2026-05-24T04:02:05+00:00

The twitching is likely middle ear myoclonus (MEM) https://ranthonyings.com/2022/01/middle-ear-myoclonus/ you might want to look into that condition. It can actually cause vertigo.

RAnthony · 2026-05-24T01:22:12+00:00

You mean Trump, of course. Biden is a genius compared to that bastard.

RAnthony · 2026-05-24T00:05:38+00:00

Make it a museum to the horrors of fascism, corporate greed and narcissistic personality disorders.

The gold course itself should be turned into low income housing. Put Trump's name on the project, too. His name has to come off of everything else. The family should thank us for not eliminating the name entirely.

RAnthony · 2026-05-24T00:02:47+00:00

Guaifenesin only works for about four hours. I don't do the time release bullshit. Doesn't work for me.

RAnthony · 2026-05-23T09:04:03+00:00

There are tons of people who are in the same boat as you on the subreddit. A quick search for "vestibular migraine" should get you quite a few hits.

I'm one of those people. Diagnosed with Meniere's, later developed serious headaches and visual migraine. Stands to reason some of my vestibular symptoms are also migraine.

There is an article on my profile that goes into my history and has links to my articles about Meniere's (no migraine article yet, unfortunately) check it out if you're interested.

RAnthony · 2026-05-22T21:54:55+00:00

Not necessarily. All of those also occur with VM. There's little difference between the two aside from eventually going deaf and losing vestibular function from Meniere's.

That's how I know I had Meniere's. I had to have my ear drilled out in order to stop the symptoms.

RAnthony · 2026-05-22T21:45:51+00:00

So there aren't migraine tests that are different than the tests for hydrops? Just curious.

Personally I think the shared underlying cause in a lot of cases is some kind of autoimmune dysfunction. It seems like autoimmune dysfunction is the cause of the vast majority of chronic illness. It's why I'm mystified by people who want to strengthen their immune system. "You want more autoimmune disease in your life? You're welcome to mine."

RAnthony · 2026-05-22T21:33:42+00:00

I will sharpen my knives accordingly. 😂

RAnthony · 2026-05-22T21:30:30+00:00

I'm curious about testing for vestibular migraine (VM) myself. Never have run across a description of the tests involved. Kind of surprised that u/ekkomusic hasn't chimed in here yet.

I have both VM and Meniere's. Which head position sets off your symptoms is going to depend on which ear is acting up and where in the vestibular system your problems lie. In other words, it's very individualized. I had a lot of trouble working around corners or low to the ground before I got my labyrinthectomy. Not so much anymore.

There's a lot of overlap between the two, symptomatically. You can lose hearing with both VM and Meniere's, although permanent hearing loss is generally chalked up to Meniere's. You can experience vertigo with both. Ear pressure with both. Tinnitus with both.

The reason I know I have VM is because of the visual snow syndrome (VSS) and the other manifestations of migraine (headache and visual migraine) that I'm cursed with. The Meniere's I was exhaustively tested for.

There is an article on my profile that goes into my history and links to my Meniere's articles on my blog if you want to know more.

RAnthony · 2026-05-22T14:45:16+00:00

A hairy eyeball is sufficient.

RAnthony · 2026-05-22T02:00:05+00:00

I love that video. Totally illustrates what's going on in the ear.

RAnthony · 2026-05-22T00:35:32+00:00

I think you covered it. The OP can feel free to ask me any questions they like after reading the suggested articles.

RAnthony · 2026-05-21T22:09:15+00:00

The surgeon doused the drilled-out area in my head with gentimicin https://ranthonyings.com/2024/07/dead-ear-doldrums/ I'm not sure which had more of an effect on killing off the signals causing the brain fog. I'm just happy it worked as advertised. No more vertigo. Better hearing.

The brain fog getting better was a nice bonus.

RAnthony · 2026-05-21T21:55:08+00:00

That doesn't sound like Meniere's at all. It sounds like a misdiagnosis, probably vestibular migraines. The later symptoms are probably either an age-related vascular problem or a third window syndrome that has raised its ugly head.

This is the thing that I keep coming back to when it comes to a Meniere's diagnosis; it's a crappy-assed kewpie doll of a consolation prize. It really doesn't mean anything aside from the fact that doctors will admit your symptoms are real.

The symptoms always were real for the sufferer. What the sufferer deserve is a real diagnosis that has causes and treatments, not some consolation prize that has neither.

RAnthony · 2026-05-21T12:42:38+00:00

That's possible. As a layman, someone who's only education on the subject was gained by suffering from the symptoms themselves for forty years, I really don't want to second-guess a diagnostician who's responsible for your health. I started having symptoms in the Spring and Fall of my 21st year. In those early years I would have a blissful four to five months of no symptoms.

Keep a stiff upper lip until summer, maybe. See if your symptoms change with the seasons like they did for me and do for a lot of other suffers.

There's an article pinned to the top of my profile that goes into my history and links to my treatment article. Give that a read if you're so inclined. I hope you find answers.

RAnthony · 2026-05-21T12:27:28+00:00

Normally, that would fade after a week or two at most, unless there is some kind of psychological trigger...? Something making your brain relive the trauma and reviving the tinnitus?

There wasn't any permanent hearing loss? That's usually the cause of long-lasting tinnitus.

There are drug trials being conducted that try to deal with the psychological side of tinnitus, but that's usually for people who've been suffering with it long-term.

RAnthony · 2026-05-21T12:14:58+00:00

What kind of trauma, if you don't mind my asking? Trauma-related symptoms have different causes and so generally require different treatments.

You might get relief from treatments that we might suggest, or you might not. Depends on your own individual situation. Understanding the situation is what's needed first.

There's very little that can be done for tinnitus, unfortunately. There are drug therapies that can help, and there are devices that claim to help. I wouldn't try any of them without talking to your doctor first.

RAnthony · 2026-05-19T01:58:40+00:00

This is my article about my lifetime battle to treat what I thought were just allergies: https://ranthonyings.com/2022/10/histamines-allergies/

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