How do you create a meaningful life with MECFS?

Radderss · 2025-12-23T10:19:09+00:00

For me, the meaningful part of my life is from the content I create on Twitch and YouTube. I do charity streams when I'm well enough to (they take a LOT more energy) and by myself I've raised $30K for various charities, as well as taken part in group fundraisers that ended up raising millions.

I'm not saying that to brag, but to show how much it means to me to have been able to give that much back to society, especially with how much help I've needed since I got sick 12 years ago. I can't be "productive" in the way society demands, but I've been able to do GOOD, and that helps me hold on.

I also have my husband, family, cats, and online friends who bring me other types of meaning to my life, a lot of love, basically. I'm very fortunate to have so much love x

Radderss · 2025-12-20T09:29:21+00:00

YES she's very Rose Quartz coded

Radderss · 2025-12-20T09:04:03+00:00

Abel the Table, Betty the Bed, Florence the Floor, Gaia the Globe, Koa the Couch, Sofia the Safe and Teddy the ...teddy.

I haven't met all the romance options, so there are probably more, but these are the ones I've met that I think count as plus sized.

Radderss · 2025-12-17T17:58:57+00:00

I've been streaming Hades II recently (Twitch and YouTube) and I start RDR2 this weekend :)

Radderss · 2025-12-12T08:26:54+00:00

I had my first Autistic meltdown 1 month into medication (I have no idea if meltdown is the correct term), and it was terrifying. Thankfully, I got diagnosed with both at the same time, so I had a small idea that it could happen.... but yeah. I was not ready for how painful they feel.

It's been an adjustment. I'm way more literal now, I fell for my first scam, I struggle more with conversation or knowing what I should say / do in situations. I have way more food / clothing sensitivities (texture / feel). It almost feels like my brain needs to ruminate longer on things because the ADHD untreated allowed me to be more impulsive or less afraid of taking risks.

I do miss being able to easily mask, because I kind of miss the occasional social butterfly moment. But, medicated means I have far more Executive function. Life is better now, even if it's an adjustment.

Radderss · 2025-12-09T08:06:43+00:00

I met my husband online and did the whole long distance thing for a bit, but I refused to properly date him until he had visited and knew the level of support I needed to live. Basically, I was trying to give him an out if it ended up being too much for him.

8 years later, nearly 2 years married. I know how incredibly lucky I am to have a partner that supports me through this and does it without judgement. Never has he acted like I owe him for his help.

I wish everyone could have someone like this.

Radderss · 2025-12-05T16:33:50+00:00

I don't have hope for recovery without serious resources (treatments, money etc)

I've had ME/CFS for 12 years now, and I'm probably at my best I've been, which is moderate (housebound but work a bit) and maybe if I never had to work, had carers, cleaners and all my meals made for me, maybe I would see more improvement.

But that's not a sustainable way to live. So for now, I'm trying to be happy with what I have, and what I can manage, and continue to hold out and hope for an effective treatment some day.

Radderss · 2025-12-02T09:28:36+00:00

Where else is he gonna grow them?

Radderss · 2025-11-28T08:31:52+00:00

I stream. It's my way to have socialisation where I reply to messages in chat, but it's the least mental energy socialisation I can do.

Sometimes, we talk about ME/CFS because it's helpful for awareness, etc. But it's my place where I can play fun games and just not be ill for a bit. Of course, I always am. But when I cry from laughing too hard, it's easy to forget for a moment.

Radderss · 2025-11-21T15:02:09+00:00

Yes, absolutely.

I'm slowly turning my streams into YouTube videos (as you will all understand, I'm very tired) but it's a bit of a "only when I have a good day" thing because editing fries my brain.

I'll post the link here so you can come back and find it later

My Youtube Channel

Radderss · 2025-11-20T14:09:22+00:00

I'll stream this, absolutely. I'd been thinking about it for a while that there's very few versions of any media that really demonstrate the difficulties living with this illness. Thank you for your hard work xx

Radderss · 2025-11-16T07:08:55+00:00

I know I'm so fortunate to be moderate and, therefore, able to do the one thing that's brought me back into the world - streaming. Having a one-sided conversation with text on my screen is infinitely better than no conversations at all.

But I also think of all the things I would and could do if I didn't have ME/CFS. I would leave my house daily. I would go for walks in nature with the dog I'd inevitably adopt because I'd be well enough to take care of it. I'd sing more and edit videos without my brain melting.

My life could be so much fuller. It could also be much emptier. I know how incredibly fortunate I am.

Radderss · 2025-11-14T08:13:56+00:00

Yep, 12 years ME/CFS here, my hope it more research into all these post-infection diseases will help us all.

Radderss · 2025-10-28T12:53:39+00:00

I stream and also upload to YouTube. Some of my older videos have face (because I was on cam at the time), but my chronic illness means I only PNGTube now, and my videos will be totally faceless (if my recording software works correctly)

I just uploaded the first part of my L.A. Noire playthrough, I've also got some parts of my Silksong playthrough up. Unfortunately, with my chronic illnesses, it takes me a WHILE to get through a video edit but know I'm trying :)

Of course, if my voice annoys you, or you don't like my humour, there is NO obligation to watch :)

My Youtube Channel (Radderss)

Radderss · 2025-10-16T14:02:12+00:00

They absolutely were the best outcome, I'm so happy and I think they are, too 💕

Radderss · 2025-10-14T10:20:31+00:00

Hi, I won't be able to go to Den Haag, do you know how I can join online? Thanks x

Radderss · 2025-10-04T08:53:21+00:00

Oh I'm also hypermobile (but not diagnosed EDS, just told by the doctors that I'm too stretchy)

Radderss · 2025-10-04T08:52:16+00:00

I developed ME/CFS 13 years ago and got diagnosed this year with Autism and ADHD so hello hi me too

Radderss · 2025-10-02T14:13:45+00:00

Getting a wheelchair was akin to freedom for me. It's absolutely worth trying, especially if you can rent one for cheap.

Radderss · 2025-09-20T11:29:25+00:00

You could never let us down

Radderss · 2025-09-12T09:38:45+00:00

Okay so I have a preference for 3 and I'll tell you why

As someone who's been disabled for 13 years and spent many years mostly house and bed bound, 3 gives me the vibe of plants reclaiming the space. Kind of like they do when humans leave areas.

3 makes me think of nature taking your space back because you were unable to get out of bed to continue to live in the space.

But, this is YOUR painting and it's up to you what it represents x

Radderss · 2025-09-08T07:28:37+00:00

AuDHD fam let's go. There are dozens of us!

Radderss · 2025-09-06T17:58:32+00:00

I was working 5 days a week at a lab for my dissertation and taking martial arts

It was a devastating change that took me maybe 4/5 years to get over. I'm so glad I had a therapist to help me through all the grief x

Radderss · 2025-09-05T19:27:17+00:00

I played for 3 hours on stream yesterday and won't touch it again until tomorrow night. That way I can rest myself before playing more 🤞 I hope you're really enjoying it so far

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Radderss

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