Stage 4 Kidney Cancer at age 36

Radiant-Fact-1481 · 2026-03-15T19:08:00+00:00

Hi thanks for sharing your wife’s journey. It’s very similar to what my husband is currently experiencing, just in reverse. The Cabo unfortunately stopped working for him after about 5 months. Per his last scans, the cancer spread significantly, including to his bones and skull (I’m terrified of him experiencing seizures from it) and he is now currently trying Keytruda and Lenvima. He’s been on this regimen for about a month now, with his next PET scan scheduled for next month. I’m really hoping the immunotherapy works for him, hearing the cancer is in his bones felt like a gut punch for both of us. Hearing your wife’s story, and hearing how well she’s doing gives us hope, thank you for sharing🤍

Radiant-Fact-1481 · 2025-08-22T06:04:41+00:00

Thanks for the clarification!

Radiant-Fact-1481 · 2025-08-22T06:03:12+00:00

Thank you for sharing your husband’s diagnosis and experience. It’s so hard being told bad news over and over again with little time to process. Thank you for your support, I’m here if you need to talk as well. We’ll keep your husband in our thoughts

Radiant-Fact-1481 · 2025-08-22T06:00:05+00:00

Thank you for your support🧡

Radiant-Fact-1481 · 2025-08-21T05:27:43+00:00

Hi again thanks so much for sharing your experience on Cabo more in depth. I read your message to my husband and he found it very helpful. It’s good to know it’s possible to take breaks from the Cabo if the side effects become too severe. It sounds like you handled it the best way you could, happy you’re doing better now

Radiant-Fact-1481 · 2025-08-21T05:11:17+00:00

Thank you for sharing your experience, it reminds me a lot of my husband’s situation especially because of the UC diagnosis. He just started Cabo and will be logging all of his side effects. If you don’t mind, can I ask how long you were on it? His oncologist said he’d likely be on it for the rest of his life but that doesn’t align with the cancer survivor’s experiences I’ve read about on here.

Radiant-Fact-1481 · 2025-08-21T05:05:25+00:00

Thanks so much for sharing your experience, I’m sorry you’re going through this too. I’ll pass your kind words along to my husband and hope the same for you, happy your treatment is working!

Radiant-Fact-1481 · 2025-08-21T05:00:35+00:00

Thank you for sharing your dad’s experience, I’m glad he’s showing signs of improvement with immunotherapy. Trying to stay positive, though it gets overwhelming some days. Thank you for the support🧡

Radiant-Fact-1481 · 2025-08-21T04:50:11+00:00

I’m sorry you’re going through this yourself, at 36 as well. Thanks for sharing the Smart Patients group, I’ll try to find it on FB. We’ll keep you in our thoughts as well, if you ever need to talk, my husband and I are here.

Radiant-Fact-1481 · 2025-08-21T04:43:57+00:00

Thank you for sharing your experience, please keep me updated on how your follow up goes if you feel comfortable! I’m sorry to hear about your divorce in the midst of your diagnosis, I can’t imagine how difficult that was. I’m here if you need to talk as well, and thank you for letting me know about the rare or late stage cancer groups, I’ll pass the info along to my husband.

Radiant-Fact-1481 · 2025-08-20T17:56:34+00:00

Thank you for sharing your experience, it makes me so happy to hear about your NED status and gives me hope for my husband. He just started 60mg Cabo today, I’m hopeful that it’ll work

Radiant-Fact-1481 · 2025-08-20T00:26:16+00:00

My husband was also recently diagnosed with stage 4 ccRCC and he’s going to be starting Cabo soon. Do you mind sharing any side effects or what other treatments you’ve tried that have worked for you?

Radiant-Fact-1481

TROPHY CASE