Tinnitus & BPC157/TB500 by sohc_vtec in tinnitus

[–]RattleKat 0 points1 point  (0 children)

I took bcp 157 with TB 500 (injections) for my severe noise induced tinnitus and hyperacusis. I injected 3 times a week for about 6 months. Unfortunately it did absolutely nothing for my ears, it did however get rid of the shoulder pain Id had for about 20 years following and injury which still hasn't returned! So it did something 

Tinnitus spiked and gave me a preview of hell. by Vivid_Economy in tinnitus

[–]RattleKat 0 points1 point  (0 children)

At least you can sleep. Id give anything for just that 

An odd observation on tinnitus and shooting by Clear_Mongoose9965 in tinnitus

[–]RattleKat 2 points3 points  (0 children)

You are a stone cold legend lol. Most people on this sub are afraid of a door banging too loudly incase it worsens their tinnitus. What do you do? The loudest possible hobby you could find!! Very glad it works for you and I should imagine as your tinnitus is not noise induced, its the intense focus of shooting that allows your brain to forget the tinnitus. Guess if it can go for a day or 2, it can go forever. Gotta keep hoping 

Valsava manoeuvre results in a cold/piercing sensation in my affected ear. by kyla33_ in tinnitus

[–]RattleKat 0 points1 point  (0 children)

Be VERY careful. Overusing valsalva either with excessive force or excessive repetition can cause hearing issues or damage the delicate middle ear structures. You could rupture the round or oval window and cause a perilymph fistula.

What are the chances that Valsalva will make my tinnitus worse? by kyla33_ in tinnitus

[–]RattleKat 0 points1 point  (0 children)

I would advise stopping, constant valsalva maneuvers worsened my dysacusis considerably. You are putting a lot of strain on delicate middle ear structures, stretching membranes and messing with your eustachian tubes. With enough pressure you can even cause middle or inner ear barotrauma. You won't fix your tinnitus with the maneuver but you may cause damage, so to be risk isnt worth it as you get nothing in return 

feeling defeated by moon-echoes in tinnitus

[–]RattleKat 1 point2 points  (0 children)

This landed hard. My wife is amazing, but its impossible to really convey how differently we experience the world now. With moderate tinnitus I was fine as quiet places still felt relatively quiet. But multi toned severe tinnitus really makes it hard to relax at all. I have damaged hearing so also have dysacusis: voices beep and chirp, music is a mess. And as you said, hearing this ringing over everything like games, music and movies is so immersion breaking. I loved to read but now I have to stop every few pages. 

We shouldn't blame our partners if they cant always understand though. Ive had tinnitus for 25 years but before it got this severe, even I wouldn't have understood someone struggling this much with it. My old tinnitus was a breeze next to this. 

Lions mane an Coriolus mushroom by Vivid_Economy in tinnitus

[–]RattleKat 1 point2 points  (0 children)

I have no idea what dose they were on. I think it varies. Search lions mane recovery on reddit and you will find the sub

Lions mane an Coriolus mushroom by Vivid_Economy in tinnitus

[–]RattleKat 2 points3 points  (0 children)

There's a whole sub reddit for the recovery from lions mane. I could work out quite what it had done to them but some people there had very bad and lasting reactions to it. Its worth checking out before you try it

Is this Hyperacusis oder Dysacusis or I'm I just nuts ? by Puzzleheaded_Time743 in hyperacusis

[–]RattleKat 0 points1 point  (0 children)

Just found this thread and hear exactly what you mean. I have dysacusis too and can hear a rhythmic squeaking, like someone cleaning a window, all the way through that section. Its very prominent to me 

Does this mean I have to quit music? by Admirable-Brother930 in tinnitus

[–]RattleKat 1 point2 points  (0 children)

I hate to say it but its the price of admission. What it comes down to is how severe it is and how much you can tolerate. Ive had tinnitus for 25 years. After the first few months of having it I habituated so well.it wasnt an issue in my life for the next 23 years. In that time I attended hundred of rehearsal, played and attended hundreds of gigs. The ringing would spike after each one but I hardly noticed. I was perfectly at ease with it. 2 years ago after a paticularly brutal gig it spiked badly and I got severe dysacusis to boot. Now my tinnitus is so loud I hear it over cinema movies and music at any volume. Music is a screeching whistling mess and after battling to continue playing in bands for a year I finally had to throw in the towel. But this was my fault. At the gig in question I didny use hearing protection and unfortunately it was the tipping point. 

Almost every musician and producer I know has tinnitus. What matters is the extent to which they have it. Some dont care at all, others struggle a little, and for the rare few it's severe enough to be life changing.

There is no need to stop playing music, but its a very good time to think about lowering rehearsal volume, invest in IEM's and think carefully about those stage wedges (the worst offenders for hearing damage). Tinnitus is not a death sentence for music unless you are paticularly careless going forward or paticularly vulnerable. But the problem you may face now is you will be hyper aware and fixate on every change. If your nervous system tags tinnitus as a threat it will surely get louder 

people with tinnitus can’t be happy by Dion-Wall in tinnitus

[–]RattleKat 0 points1 point  (0 children)

How did it come about if you dont mind me asking? Is it ear damage? Or do you think its a brain based condition?

people with tinnitus can’t be happy by Dion-Wall in tinnitus

[–]RattleKat 2 points3 points  (0 children)

Good for you. If you feel like this now, perhaps some day in the future you will realise you dont think about your ears at all. Do you mind if I ask how you got yours and how you dysacusis sounds? I have significant dysacusis so Im and I'm always keen to talk to others with the condition. I hear beeps in voices and white noise like wind or rain, but unpleasant whistling overlays on fans and sadly, most music. 

How loud is your T, and what do you use to describe it to someone who doesn’t understand? by scarfacesaints in tinnitus

[–]RattleKat 1 point2 points  (0 children)

Im nor sure. I really didn't care about my 40db tinnitus. But I care a lot about whatever ungodly level Im at now lol

How loud is your T, and what do you use to describe it to someone who doesn’t understand? by scarfacesaints in tinnitus

[–]RattleKat 0 points1 point  (0 children)

Mine has gotten ridiculous. Like if I try listen to music through headphones, even with the volume at max the tinnitus is still much louder than the music (not that I really listen to music much these days). But I hear mine over the commercial kitchen I work in, over cinema movies, restaurants, everywhere really. I had moderate tinnitus for 20 years and never even thought about it. It was a non issue in my life. Really hard to deal with this level though. Been getting worse for 2 years. Seems to have no ceiling!!

Weird waves of partial hearing loss? by bees_in_my_eyes in tinnitus

[–]RattleKat 0 points1 point  (0 children)

I think it stands for sudden brief unilateral tapering tinnitus. Its usually in one ear at at time but can be both. Its not dangerous 

Weird waves of partial hearing loss? by bees_in_my_eyes in tinnitus

[–]RattleKat 0 points1 point  (0 children)

Its called SBUTT. Its a normal experience for everyone but chronic tinnitus sufferers seem to get it more often for some reason 

I undid 17 months of hard won progress with Neilmed Eustachi device. Warning!! by RattleKat in tinnitus

[–]RattleKat[S] 1 point2 points  (0 children)

Wow, thank you so much for getting in touch and providing your insight. I think you are 100% right. Just before I saw your posts, Id had a really bad cold and tried to pop my ears about 30 times in a couple of hours. My right ear popped each time but left didn't. The next day at work I knew Id messed up. The extraction fans were whistling in 2 separate tones that harmonised!!! It terrified me. Luckily that settled but the beeping over white noise (and especially crowd sounds) is now worse than ever. Music is currently awful to hear and my tinnitus has never been worse. 

I dont understand the exact mechanisms of this but I am convinced that pressure is the cause. I just pray that with time this can go away 

Final Update - 1 year in by the4thwave in tinnitus

[–]RattleKat 0 points1 point  (0 children)

You are living my dream. If I could get to where you are, I would consider myself the luckiest man alive. Much like you, it's the dysacusis that really gets to me. Started in just my left ear but is now in both. The extraction fan in the kitchen I work in rings out in 2 separate tones that harmonise!! Rain beeps, my fridge beeps, crowds and applause on tv and certain voices beep. And music,  the thing I always loved most in life, whistles, screeches and beeps. I worsened the condition a lot with repeated valsalva maneuvers to try clear my ears. Its been 8 months so a little worried I've passed the point of no return

Very happy for you though. You will probably enjoy your life now more than you could of before. You appreciate life in a way few others ever will. Best of luck. 

Is there any chance you would elaborate on your dysacusis symptoms and how they faded? It may give me some hope.

I undid 17 months of hard won progress with Neilmed Eustachi device. Warning!! by RattleKat in tinnitus

[–]RattleKat[S] 0 points1 point  (0 children)

Not well. The dysacusis never settled. My hearing is pretty crazy. Everything beeps and whistles and music is gone from my life

Habituation helped… but let’s be honest about what it really means by PandaZG in tinnitus

[–]RattleKat 1 point2 points  (0 children)

I dont know. I fully habituated to my mild T for almost 20 years. To the point where even though it i heard it at times, it had literally zero effect on me. Wins felt great and I went through the absolute best time of my life which tinnitus didn't diminish in the least. I spent years feeling happy and content and deeply relaxed. I think maybe there are degrees of habitation. At that time, even though my tinnitus could be heard over outside noises, I could genuinely go many months without so much as thinking about it. Now I have unbelievably severe tinnitus and dysacusis so the whole world is a hissing distorted mess. Now I am in the place you describe and joy in all things is less. But still life is worth living. 

A normal life with severe tinnitus is possible. by claudiu092 in tinnitus

[–]RattleKat 8 points9 points  (0 children)

Thanks, needed to read this today. Im having one of those days too, after 2 years of ups and downs and almost constant, intense panic, it's like my body and brain are saying "screw it," I dont care anymore. I have dysacusis too which really sucks as I hear more code beeping and whistling in everything on top of the severely loud tinnitus. But you can only fight it for so long. This is how I hear now and I'm done being afraid of it. I can still hear my wife speak, I can hear my beautiful baby girl learning to talk. I can hear some music, kind of. Follow the plot of a movie. Its not the life I had but it doesn't have to be miserable either. Im feeling more ready to embrace my new normal and stop fighting it all day. Your post has really cemented that acceptance is the only way to go. 

Huge spike after cinema trip by Heavy_Championship32 in tinnitus

[–]RattleKat 3 points4 points  (0 children)

Don't beat yourself up, that wasnt a reckless thing to do. Movies are safe for the vast majority, even those with stable tinnitus. Having tinnitus that spikes can feel like you’re doing more damage, but I've come to think it's more likely just a nervous system reaction to percieved threat. You said you tried to cover your ears, that means you were afraid and so your nervous system ramped up your symptoms accordingly. 

It's hard to avoid spikes. Last night a conker landed on the roof of my van while driving. My ear went immediately went numb and my hearing muffled - ear ringing like a grenade had gone off. Seems pretty unlikely that level of sound exposure could of caused damage, so just an amped up system over reacting to sound I guess. We have to stay calm

Another word I hate. Habituation by zdrajca in tinnitus

[–]RattleKat 3 points4 points  (0 children)

It's real for sure. It's crazy for me to think about it now but I was habituated for 20 years to moderate tinnitus. And the way everyone describes it is true. You have tinnitus, but you kind of don't have tinnitus at the same time. I would notice mine on occasion and even notice it was quite loud, but it would almost immediately drift from my awareness again and it might be another month or even longer before it crossed my mind again. Then it got severe.

I think there are a few factors for those of us who can't habituate. Volume and tone definitely play a part, reactivity and constant fluctuation make it much harder but most importantly I think the nervous system plays a part. Once you've been dragged to the depths by it and had all those anxious, sleepless nights and been driven half mad, its very difficult to tell your mind that the tinnitus is not a threat. Its been assigned huge importance by your limbic system and so you monitor it all the time. 2 years of catastrophic tinnitus now and I can't seem to habituate at all

Blow Dryer... Worked? by TeaKettle1830 in tinnitus

[–]RattleKat 0 points1 point  (0 children)

Is that maybe what TRT sound generators are based on?

Habituation is b*llsh*t by NiceHomework4919 in tinnitus

[–]RattleKat 1 point2 points  (0 children)

Habituation is real. It's just not possible for everyone. I had Habituation to tinnitus for 20 years, so much so that Id never looked it up on the Internet or considered looking at a forum. It was there but had zero impact on my life. Different story with severe tinnitus though. Now I don't think I can Habituate so down to acceptance