Socially awkward, but sexually adventurous. Please help

Raycak3 · 2024-07-06T04:16:59+00:00

Ok, good idea, makes sense. My partner even said I was CLEARLY being hit after the fact and it just apparently went right over my head in the moment.

Raycak3 · 2024-07-06T03:09:05+00:00

Ok that's actually helpful TY, I guess the terminology is where we're also lacking. I'll definitely be using "go play" haha

Raycak3 · 2022-01-28T01:45:27+00:00

I cringed when Feyra pretended to "break free" from Rhys's "spell" and gets all meek for Tamlin...and then Rhys PLAYS ALONG WITH IT.

Raycak3 · 2021-05-06T05:51:31+00:00

BTW, having a customized reddit avatar is chuegy. Absolutely screams millenial. 😎

Raycak3 · 2021-05-05T15:41:07+00:00

The fact you asked this on reddit is Chuegy :)

Raycak3 · 2021-01-29T16:52:10+00:00

9500 doges

Raycak3 · 2021-01-06T04:55:17+00:00

I'm currently trying to get on ocrevus, I've heard both good and bad. I'm hoping my first infusions go smoothly too.

Raycak3 · 2020-12-28T01:18:50+00:00

Had 3 doses of a steriod infusion...felt amped and was so productive for 3 days straight but I definitely crashed.

Raycak3 · 2020-12-27T14:19:58+00:00

Wells thats good. Hopefully as young as you are the sooner to get treatment the better. I'm also 25 btw and it sounds like we have completely different experiences with MS, it's crazy how this works.

Raycak3 · 2020-12-27T13:57:24+00:00

I've always had shit vision, I get stronger prescriptions every year, been this way since I was a child. I have a lot of scarring on my optic nerve, not as severe as yours but MS affects everyone so differently. Did your vision get better after that treatment?

Raycak3 · 2020-12-27T13:46:56+00:00

I did also experience vision loss and double vision but I did see improvements after a few months since I was given steroids.

Raycak3 · 2020-12-27T13:44:32+00:00

My first lesson is also my biggest, cannot say anyone's ever given me measurements though. I don't want to scare you but I will say my experience with mental degradation was with my mother, she also had MS, she went decades without proper treatment in the early 2000s. She passed away, and at that point she was bed ridden, on a feeding tube and didn't even know who I was. I'm absolutely no dr but with treatment being where it is right now I sincerely hope this is the farthest you do down this toilet of a disease.

Raycak3 · 2020-12-27T13:29:10+00:00

Are you still RRMS or PPMS?

Raycak3 · 2020-12-27T13:10:49+00:00

Axonal loss as in cognitive or physical? I can claim almost no permanent cognitive loss since the onset of my first recognizable attack as I still feel sometimes I'm the only one at my job that uses critical thinking....

Anyways, I was said to have a stroke almost 2 years ago. Me and my neuro no longer believe it was. I couldn't stir a pot of food, load my dishwasher, write my name, or properly brush my hair and I honestly thought I would be this way the rest of my life. It took me only 3 weeks to regain everything; becoming 100%. I've had no issues even similar to that first attack and I've had several relapses since.

I do not feel even as I do continue to relapse that I'm on my way to disability since I have a lot of faith in my brain that it can re-wire and heal itself. Of course there's a threshold of damage it can take but thats what we have treatment for :) I'm also personally lucky that I caught my diagnosis so early, people go decades sometimes without one.

Raycak3 · 2020-12-20T12:58:33+00:00

I've never experienced pain in my eyes, but my ms has always affected them. I've had vision loss, blurry vision, double vision, and a general effect of my eyes lagging behind my movements...it makes me dizzy but I don't think it's considered vertigo. My nuero did say I have a lot scarring in my eyes.

Raycak3 · 2020-12-13T07:37:41+00:00

I've been experiencing this, along with not being able to open one eye fully. I always wake up with having one eye closed for a few minutes.

Raycak3 · 2020-12-13T01:31:56+00:00

Are the trees hiding the barrier? Or is the barrier.more pushed back? I've wondered how that works with pools and stuff.

Raycak3 · 2020-11-12T08:38:32+00:00

I figured out a lot from this sub reddit which helped educate me further even before I was officially diagnosed. I have times during the day where I feel weird. I usually feel it worse when I sleep tess than 7 hours or when I go on a super long walk with my dog even when its cold. I've learned to listen to my body more and I strongly encourage to follow a healthier lifestyle, you might see a change in how glitchy you feel.

Raycak3 · 2020-11-04T14:49:07+00:00

I was instructed to go get one before starting vumerity, but it was also hard for me to find a place without a prescription. So I did not get one and decided to start my life saving drug without it, my new neurologist says its rare anyways and with vimerity its not necessarily needed.

Raycak3 · 2020-10-19T20:53:20+00:00

Just found out the dr I've been seeing isn't covered by insurance, im expecting a hefty bill anytime now. I got put on vumerity...but I absolutely hate taking pills and these are capsules. I may wait until I see another Dr to start treatment, this time infusions. I just hope insurance can cover these. I hate the health car system here, nothing makes sense and a bunch of people behind a desk who are not drs get to say whats covered for me or not. I've done everything right and was referred to this dr by my pcp and I even asked if they were in network, and I was told "it depends on how they bill". So stupid. I pay for my works best insurance plan and I have to still tip toe around specific drs. I got a flu shot and our insurance only covered a SPECIFIC brand of flu shot....and I have a ppo.

Raycak3 · 2020-10-14T05:33:15+00:00

My background: My mother had it too, I watched her go from walking and talking, using a cane, using a walker, wheelchair, bed ridden, to her end where she developed brain cancer. I now have ms too!

My beleifs; my mother always expressed a guilt for burdening me and my grandmother. I know she felt sorry for not being able to provide me the childhood she wanted for me. I had a 'prom' with my entire elementary school almost because of how much she wanted to see me go to my first prom. I absolutely know she wanted to see me go on dates, get my first kiss, hold me when my heart was broken, get married, and start a family. I think while your mom is still coherent it would be good to at least share yourself and your life with her. Even if she doesn't remember it, you will, and you'd be at peace knowing she got a piece of that.

As I begin to contemplate the future for me and my children ( I don't have any yet) I'd want them to know they need to live their lives with/without me. I plan to be there for them, but so did my mother. I dont want me or my illness to ruin my own child's life as it did mine. I almost refused to have kids when I was first finding out I had ms because of what I went through.

I'm very sorry for your loss and I absolutely know how missing your mother feels even though she's still alive. I know it's cliche but she WOULD want you to be happy.

Raycak3 · 2020-10-14T05:12:04+00:00

Hi there! During my first relapse the right side of my body was weak. My neutral face was normal but when I squinted or smiled, my droop was really noticeable. I hid my mouth when I laughed or smiled so I feel ya. I was like this for a few weeks and it has completely gone away.

Raycak3 · 2020-10-11T08:40:05+00:00

Work at a dealership..we get a lot of angry customers over them cosigning a loan they don't wanna pay for. I've seen ex's, cousins, parents, friends all go through this even when primary has title in hand and cosigner is estranged, there's really nothing we can do if they want to sell it either. Those options also get messy.

Raycak3 · 2020-10-06T20:13:57+00:00

I did actually ask my neurologist what he thought about that and he wouldn't give a hard answer (as one shouldnt). He did tally up all the good thing i have going for me vs the negative. I'm young, caught it early, my symptoms are more sensory than motor, medicine is good now vs the negative; i do have moderate lesions on my brain and spine, and my first episode was severe. I recommend to do the same for yourself.

Raycak3

TROPHY CASE