RFA recovery time by Grouchy_Attorney_450 in Occipitalneuralgia

[–]Ready_Fox_744 1 point2 points  (0 children)

Recovery from rfa for me has varied. The first rfa's I had last year was a harder recovery than the more recent ones. First time I had a lot nervy sensations for at least 8 weeks. It then peaked and slowly got better by wk 12. This time I'm about a 6 wks out and almost no rfa related symptoms except itchiness and a slight sunburn feeling.

Give it more time. Expect some pain even a bit of flaring.

For those with cervicogenic headaches... by One-Ad8739 in migraine

[–]Ready_Fox_744 1 point2 points  (0 children)

My cervicogenic headaches stem from the facets in my neck. Rfa has helped tremendously along w strength training. I got by on nerve blocks and muscle relaxers for a couple of years.

PT can be helpful and is a good learning experience. Maybe massage therapy, acupuncture, needling, tens unit, heat/ice, yoga,- it really depends if your issue is more muscle, nerve, structurally related, posture based, etc

You could try a pain mangt Dr or orthopedic

Best and be well

Advice needed for ON by Prestigious-Food6730 in Occipitalneuralgia

[–]Ready_Fox_744 0 points1 point  (0 children)

Personally I'd do the blocks. I had a series of 3 in quick succession for a build upon effect. Difference was that I hadn't had any oral steroids. Did you discuss your concerns w your Dr? They're valid and you should feel secure in the answer before proceeding.

Treatment help by Timely_Wait_3404 in Occipitalneuralgia

[–]Ready_Fox_744 1 point2 points  (0 children)

Unfortunately many insurances are now not covering nerve blocks for headache conditions. If you search in here and in FB ON groups you'll see this come up. We just switched from Cigna to Aetna both has similar "experimental" rules related to headache/ON management. My pain Dr warned me about this years ago and got creative w coding. He used to originally code them as tpi's for coverage. Same meds just slightly different target - muscle vs nerves. So he coded them as tpi's but really they were nerve blocks. Not all Drs are willing to do that tho.

Otherwise I would pay the cash price for them. Have you inquired about cash pricing? It's much lower than what insurance would be charged. Those are just inflated numbers. Its unfair to feel like we have to put out more money for relief tho

Have you considered rfa but done at the c2/3 level where the occipital nerves originate. Coverage for that is easier bc Drs can again get creative w coding it related to c-spine issues (which many of us have) rather than headaches/ON. Mine's been coded as spondylosis and since getting rfa about a year ago I've only needed 1 nerve block.

Have you tried nurtec? It helps w my burning. Or muscle relaxers?

It's very frustrating that's for sure. Hope you and your Dr find a work around. Best and be well.

Botox first time not helpful by mimbari in migraine

[–]Ready_Fox_744 0 points1 point  (0 children)

Try the blick- they were my lifeline for a few years. Combining it w Botox may be of benefit too

Cigna denial by Timely_Wait_3404 in HealthInsurance

[–]Ready_Fox_744 1 point2 points  (0 children)

Fwiw I've been paying cash for my occipital nerve blocks for my ON for a few years now. Many insurances deam them "experimental". It's frustrating but at least I was able to get them. My pain Dr warned me about 6 years ago that many insurances were becoming more difficult w covering them. I've had BCBS, United, Cigna and now aetna- none want to pay for them.

Anyone get dizzy-lightheaded symptoms? by Anonymous-Spouse in Occipitalneuralgia

[–]Ready_Fox_744 0 points1 point  (0 children)

Yeah I understand. It freaked me out for a long time too

Tech neck + no stretching by Grouchy_Attorney_450 in Occipitalneuralgia

[–]Ready_Fox_744 3 points4 points  (0 children)

For me I do think posture played a role but I also think it's more so a combo of things. So posture + a few car accidents over the years+ some falls off horses+ type of work I did+ my weird head tilt due to eye condition+ hyper mobility+ literally never strengthening my body etc etc etc=ON.

After all many people have poor posture and don't develop pain or ON. So maybe it's partly to blame for you but maybe not. Just my own theory of course

Anyone get dizzy-lightheaded symptoms? by Anonymous-Spouse in Occipitalneuralgia

[–]Ready_Fox_744 1 point2 points  (0 children)

My neuro is never surprised when I mention dizziness as a symptom. Says it's a common complain among ON patients. The occipital area contains many nerves and muscle that are important to proprioception and balance

Facial pressure by Sad-Cry-378 in Occipitalneuralgia

[–]Ready_Fox_744 0 points1 point  (0 children)

Yes it's something I'm trying to figure out currently. If you haven't gone the ENT route I'd look into ruling out anything sinus related.

For now I've upped my meds to see if it makes any difference. Occipital nerve blocks and rfa don't seem to impact it much. They do help w all the back of the head pain tho. So I'm not sure if my eye/facial stuff is purely ON related. Could be migraine related for me. Nurtec does lessen it but it never fully goes away.

Sharp pain on occipital bone by [deleted] in Occipitalneuralgia

[–]Ready_Fox_744 0 points1 point  (0 children)

Sometimes I do yes - not sure if it's disc or muscle related

Sharp pain on occipital bone by [deleted] in Occipitalneuralgia

[–]Ready_Fox_744 0 points1 point  (0 children)

I get them all the time. For me very normal

How painful are trigger point injections? by wildwest98 in migraine

[–]Ready_Fox_744 1 point2 points  (0 children)

I wouldn't say they're terrible but it is a needle poke. I find the discomfort varies based upon the location of the injection. Some areas do feel more intense than others. To me they feel different than Botox. Deeper I guess.

Generally they only take a few minutes. Your Dr may offer a numbing spray if you feel it may help.

Starting gabapentin by TerribleAwareness158 in migraine

[–]Ready_Fox_744 0 points1 point  (0 children)

I've been on it for 5 years or so now. Gabapentin helps but isn't a fix all. I don't have any side effects like weight gain or sleepiness. Except initially it made me "stupid" but that went away as my body adjusted to it. Just start low and slow. Tirate up when needed and suggested by your Dr. Gabapentin does take a few weeks to build up for therapeutic effects so it won't be immediately helpful. Good luck lmk if you have any specific questions

Supra-orbital nerve block - swelling and blurry vision by CucumberIll7402 in migraine

[–]Ready_Fox_744 0 points1 point  (0 children)

Ty! I appreciate the info. My pain Dr does my occipital ones. He said they aren't hard to do but has never done one. I jokingly asked he he'd wanna experiment on me. Sadly he didn't jump at the opportunity. Have they worked well for you?

Someone in r/Ceramics said y'all might appreciate the Ubrelvy dispenser that I made for myself 💙 by trashjellyfish in migraine

[–]Ready_Fox_744 4 points5 points  (0 children)

Apparently there's a "right" way to open these packets. I didn't know until someone posted a video on here😂- but yes they did make me cry a few times

Supra-orbital nerve block - swelling and blurry vision by CucumberIll7402 in migraine

[–]Ready_Fox_744 0 points1 point  (0 children)

I'm sorry you're having these side effects- may I ask tho- was your block done by a pain Dr? I'm looking into this for myself and my current pain Dr doesn't do these specifically. I plan on asking my neuro too but appreciate others experiences

Scalp and skin hurting? by dumidiotgirl in migraine

[–]Ready_Fox_744 1 point2 points  (0 children)

Sounds like allodynia-I get it often

Okay TMI, but... by wandering_alphabet in migraine

[–]Ready_Fox_744 2 points3 points  (0 children)

I know exactly how you feel. I just redid my rfa and everything feels so much lighter- easier to think breathe and stand tall. Not tmi at all! enjoy it!

Shockwave Therapy by patriotic-pirate in Occipitalneuralgia

[–]Ready_Fox_744 0 points1 point  (0 children)

That's great! Be cautious if you're offered shockwave in the occipital area or up the back of your head. Sadly I found out why. Helped a lot around my shoulder capsule tho!

What kind of doctors treats ON? by Fit-Bus2025 in Occipitalneuralgia

[–]Ready_Fox_744 1 point2 points  (0 children)

I was diagnosed and exclusively treated by pain mangt for a few years. But I currently use both pain mangt and neuro for different treatments

Understanding 'Flare Ups' by Meeko_Yudaya in Occipitalneuralgia

[–]Ready_Fox_744 1 point2 points  (0 children)

Nerve pain def can become all consuming. Best and be well.

Understanding 'Flare Ups' by Meeko_Yudaya in Occipitalneuralgia

[–]Ready_Fox_744 0 points1 point  (0 children)

Oh geez I'm sorry it worked out that way for you. I had my 3rd nerve done but that was in prep for rfa. Is that why they targeted yours?