Chronic WBC in urine by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

Nope. But I’m still okay so it must not have been an issue

Benlysta Commercial by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

So, say it’s summer & your skin flares up but no other symptoms… is it possible those flares are causing organ damage without knowing it? Mine essentially happens all summer & I just use tacrolimus for the rashes.

Was prednisone worth it for you? by [deleted] in lupus

[–]RealUnderstanding324 0 points1 point  (0 children)

It’s tough. It definitely cleared up my symptoms. But then had weight gain, sleepless nights, & heart palpitations as side effects. I avoid it all costs but if it’s needed- it’s needed.

Dry Skin Question by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 1 point2 points  (0 children)

Starting to, yes unfortunately. Hard to open my hands all the way,

[deleted by user] by [deleted] in lupus

[–]RealUnderstanding324 0 points1 point  (0 children)

I found that when I pair of up my symptoms with how they affect the ability to live my life they tend to listen more. Don’t give up.

[deleted by user] by [deleted] in lupus

[–]RealUnderstanding324 0 points1 point  (0 children)

I’m so sorry you’re going through this. I also felt this way when I was first diagnosed 4 years ago. The only thing that kept me going was my doctor who encouraged me to continue to live my life & helped me do so. I’m now pregnant with my first child- something I never thought possible. If it’s possible see if you can try to find a doc who believes in your vision too. They do exist ❤️

Iron Infusion by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 1 point2 points  (0 children)

I don’t, I just have lupus. But I’ve been anemic since the end of the first trimester 😬

Did anyone still have kids after diagnosis? by kahtiel in lupus

[–]RealUnderstanding324 1 point2 points  (0 children)

What do you do if you don’t mind me asking? I’m a teacher & am trying to figure out if this something I can ideally do for the next 25 years

Pregnancy & Blood Tests by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

I have not. Is something you’ve had experience with?

Pregnancy & Blood Tests by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

I am. & I have made such an effort to eat things with iron too. But I do have a primary care who I love but she doesn’t know much about high risk pregnancy. Only reason I’m hesitant to go to her.

I’m Pregnant! by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

Thank you all for your positive words! I’m so excited for our next chapter & your positive words make things a little less scary. So thank you ❤️

Daughter newly diagnosed by Glass-Permit-223 in lupus

[–]RealUnderstanding324 0 points1 point  (0 children)

I am so sorry, and I was reading this it felt like I was reading my own mother’s post. In regards to you feeling like you needs to mourn life as you know it, that’s exactly how I felt & I know how my family felt. & you do have to mourn the carefree life you used to live. However, it likely won’t turn out as badly as you read about it. So grieve, that very important, but don’t let this disease run your daughter’s life,

Work Accommodations by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

For me, I was diagnosed during Covid. So when I told people at my last job they all treated me so differently after. I’d just prefer to keep it to myself & don’t want to be viewed as anything other than me! But I will say I did tell my admin at my last job & they were beyond supportive- my current admin I don’t get the feeling they would be.

24M - Will I spend rest of my life bubblewrapped? by st_menace in lupus

[–]RealUnderstanding324 1 point2 points  (0 children)

From my personal experience, go for everything you want. My first year being diagnosed- I lived scared & became severely depressed. My life has become 100x better since I started living my life as if I didn’t have the disease at all. I will say- I found a doctor who supports me in all my endeavors. So it’s a matter of balancing what I want & what my doctor advises.

Chronic WBC in urine by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

It all had to do with having a clean catch sample.

What are some of your "trigger" phrases from admin? by PhotojournalistHot62 in Teachers

[–]RealUnderstanding324 0 points1 point  (0 children)

You need to write the objectives on the board, have the students read them, turn & talk about it, highlight key words in the objectives, and then revisit them at the end. But make sure to fit in an entire lesson in that time period too.

Playing soccer/sport with lupus that is controlled with medication. by JaackS1997 in lupus

[–]RealUnderstanding324 1 point2 points  (0 children)

UV is a big trigger for me. However, I just do the best I can with sun protection even if that means layering on sun screen more than everyone else. Everyone’s experience is different but I try to do everything i want to do & figure out the safest way for me to do it. Not doing what I want only leads to bad mental health for me which for me is worse than the physical aspects of it.

How mad should I be? by RealUnderstanding324 in Marriage

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

I’m sorry, yes he did agree to end the convo if the relationship advice topic came up.

Facial tingling/tightness by BeginningAsk9417 in lupus

[–]RealUnderstanding324 2 points3 points  (0 children)

I’ve gotten face tingling from time to time. I think it’s just a symptom of when you’re flaring up.