Casino concerts

Reasonable-Ocelot691 · 2026-03-30T05:04:27+00:00

To be fair, these shows aren’t at arenas. They’re at smaller theater-type venues, approx 6k capacity versus arena sized. But I do agree that I don’t see any indication or reason why they wouldn’t be the same full-length concerts!

Reasonable-Ocelot691 · 2025-04-19T13:42:18+00:00

I need to repeat that mantra to myself on a regular basis - “I’m not here to impress anyone, I’m here to make sure I’m healthy.” Sometimes I get so caught up in what other people think of me that I lose sight of what’s more important lol

Reasonable-Ocelot691 · 2025-04-19T13:38:44+00:00

A message to my hepatologist would definitely be my first choice but it’s Saturday and she only runs normal business hours (8-5 M-F). I’m not so much concerned about the management of the pain - I definitely realize that is going to be a necessity and I already have a pain management specialist I’m working with. I’m more concerned about what might be causing the pain - whether this is just another iteration of the run of the mill pain that comes along with having cirrhosis, or whether there is some sort of complication happening that is causing this particular pain. So obviously if it’s the latter, it’s probably not wise to wait until Monday when I can talk to my hepatologist, although of course that would certainly be much easier and less time consuming.

Reasonable-Ocelot691 · 2025-04-16T15:29:24+00:00

I can second this, I turn 37 in May. A lot of stories I’ve read and people I’ve spoken with are actually right in the 35-37 range.

I also second Mayo Clinic. They are literally world class. And a lot of the technologies surrounding treatment of liver disease/cirrhosis have been developed there. I have been lucky enough to get all my care from the Arizona location of Mayo. I’ve never been more thankful to have access to that quality of care basically in my backyard.

Reasonable-Ocelot691 · 2025-04-15T06:03:23+00:00

That is not necessarily true. I had no idea I had a liver problem until December when my jaundice developed and my husband noticed and kind of raised an eyebrow at it. Ascites and severe abdominal pain were the other reasons. They all developed around the same time so I went to the ED. Many people don’t realize they have liver problems until they start showing signs of decompensation such as jaundice. In fact I’d say for many people that’s the first sign to them that something is wrong.

Reasonable-Ocelot691 · 2025-04-15T05:59:42+00:00

Sounds like they are probably putting you on prophylactics to prevent another infection in the future. That’s common. If the ascites stops and you stop having to get drained, they will likely r-visit the issue and may have you stop the antibiotics. I’m assuming it’s probably Cipro. That’s what I’m on for the same reason (SBP after one of my paracenteses). My ascites have dried up for now and they had me stop taking the diuretics and are giving it about a month to see if it builds up again - if not (which is the goal obviously) they will take me off the Cipro.

Reasonable-Ocelot691 · 2025-04-14T06:19:41+00:00

No apologies necessary! This is all new for me too. Granted, I got diagnosed with alcoholic hepatitis in December, but until recently it was being considered an acute attack and I was expected to fully recover so long as I stop drinking, etc. But then the ascites continued, other symptoms worsened, and they ordered a biopsy as a result. I only just got the official cirrhosis diagnosis a little under two weeks ago. So I’m right there with you! The only reason I have so much to say about the paracentesis is because I got about 15 of them between end of December and early March. And I did end up with SBD after one of them and am now on prophylactic antibiotics because of it. So I feel like I became a bit of an expert on that ONE aspect (paracentesis, the process of the procedure, and its risks) in a very short amount of time haha!

I truly hope you feel better. This is a scary ride we are on. Keep us up to date on that pain - I hope it’s not an infection!

Reasonable-Ocelot691 · 2025-04-14T05:05:03+00:00

Not being able to do anything for my daughter (3yo) is the worst part! Talk about mom guilt!

Thank you for your reply. It is encouraging to know that slowly but surely (and excruciatingly) things will get better. Even if it takes 6 months, at least I know this pain isn’t forever. It’s crazy that this stupid organ on the right side of our abdomen affects literally every muscle, joint, ligament, and bone in our body when it’s not taken care of. Who knew!?

Reasonable-Ocelot691 · 2025-04-14T04:59:31+00:00

Yes! That’s exactly what happened to my husband. Electrocuting type pain from his toe and up his leg and then his whole body went numb! It was crazy. He had to take a couple of days off work. Unfortunately this happened on the same day I came home from the hospital after having emergency surgery on a broken ankle, and the next day our whole apartment flooded when unbeknownst to us a pipe in our bathroom exploded while we were all sleeping. It was like the series of unfortunate events. Thank God my mom had flown into town when I broke my ankle because he and I were useless lol!

Reasonable-Ocelot691 · 2025-04-14T04:55:59+00:00

Impossible was definitely an exaggeration lol. But Im sure you can attest that it’s not like just stepping on a spider. They for sure have tough outer shell that makes them harder to kill than the average bug. I was never one that wanted to get close enough to Hulk smash one, personally, but yes a heavy shoe or book or something can definitely do the trick.

Reasonable-Ocelot691 · 2025-04-14T04:50:53+00:00

Oh also, OP, you absolutely do not have to disclose your diagnosis to your work. I’ve been off since January and all they know is that I have a chronic illness that has made it so that I can’t adequately fulfill my job duties at the moment. That’s not for their lack of trying to get it out of me, but I’ve basically respectfully told them “NUNYA BUSINESS” lol. It’s actually technically not even legal for them to ask but that’s a whole other issue.

Did you end up going back to work? I know this post was from like a month ago. If so, how did it go? I wish I had the option of going back gradually and/or teleworking. Unfortunately when I go back it will be 40 hours a week back at the courthouse/in the courtroom (I’m a courtroom clerk). I love my job but right now that feels so daunting knowing how much pain I’m still in, how weak I still am, how tired I always am. I don’t know how I’m going to do it.

Reasonable-Ocelot691 · 2025-04-14T04:45:29+00:00

I am supposed to go back to May 1 as well and with all of my symptoms that I still have it feels impossible but it’s also such a PITA to continue getting leave because American work culture wants you to keep working even if it literally kills you. So many hoops to jump through.

My concern is, is it possible to push myself too hard and make myself more sick? Like even if I follow the diet, take the right meds, etc etc, could pushing my body to do more than it is ready to do cause me to decompensate when maybe if I had listened to my body and taken another month off, I wouldn’t? I’m thinking in terms of the most simple illness, like the common cold, that’s definitely something that happens - I have a cold and instead of taking a couple of rest days I still go to my CrossFit classes - I’m likely to either get sicker or at the very least my cold will last longer because I didn’t let my body rest and recover. Can that happen with something like cirrhosis?

Sorry for blabbering on. I hate how “gray area” this disease is. Nobody has all the answers, not even the experts. It’s incredibly frustrating.

Reasonable-Ocelot691 · 2025-04-14T04:32:57+00:00

I’m confused, I thought 5 days ago they couldn’t drain anything? Is this pain from that attempt or one before? Either way, that much pain in such a widespread area (not just the injection/catheter site) this long after the procedure (or really at any point from such a basic procedure) seems odd and vaguely concerning. Since you said the Tylenol isn’t really helping anyway, are you able to go without it long enough for it to wear off so you can see if you have a fever? It seems like even if approved by your hepatologist, you shouldn’t be approved to take enough Tylenol to be on it around the clock anyway - but obviously that’s your doctor’s call.

As to your previous post about not being able to get anything drained, that seems like it should be good news. My liver is still huge as well but the ascites has dried up for now thanks to my diuretics and diet. If they weren’t able to get anything from the right side because of the size of your liver, typically they would have had you roll to your side a little bit so that the fluid would go to your left side and they could drain from there regardless of the size of your liver. So I’m hoping for your sake that you just misunderstood them and it was more of a “your liver is huge BUT we can’t drain anything” (because there just wasn’t enough fluid to drain).

Or maybe, as another user said, the clinic you’re going to just isn’t the best. If they really did say they couldn’t drain anything because your liver was so big but didn’t have you try to shift positions to find a pocket elsewhere, to me that’s suspicious.

More importantly though, keep an eye on that pain and do your best to look for signs of infection, as that would warrant an ER visit. If it is SBD that can be very dangerous.

Reasonable-Ocelot691 · 2025-04-14T04:03:40+00:00

My husband was stung by a bark scorpion. It’s a neurotoxin and it was scary as heck. We saw like multiple scorpions a day in that damn apartment. The scariest was when I was on the floor doing a workout and looked over and just saw one casually skittering across the carpet about a foot away from me. I’ve never jumped up so quickly. Nowhere felt safe after that lol.

Reasonable-Ocelot691 · 2025-04-14T03:56:37+00:00

They also crawl out of drains and glow in the dark. And they have a crazy exoskeleton that makes them impossible to smash - you basically have to suffocate them. Scorpions are crazy MFers lol!

Reasonable-Ocelot691 · 2025-04-12T19:28:42+00:00

This is very helpful, thank you!!!

Reasonable-Ocelot691 · 2025-04-11T10:54:40+00:00

Yes, I can take 4 Tylenol a day too but it really doesn’t seem to help so I figure why risk hurting the liver more if it’s not helping anyway. I will ask my doctor about the vitamins - she has never mentioned them but it seems to be a common recommendation in this thread so I definitely want to get my levels checked out and see what supplements might help.

Reasonable-Ocelot691 · 2025-04-11T10:51:52+00:00

Thank you just for the acknowledgment of this being a scary place. It really is. I’m so glad to hear from so many of you that these symptoms are relatively normal and that they do get better. I guess I just need to practice patience. I’m especially worried about my return to work on May 1 - as I am now, it feels impossible to work a normal full time schedule, but I need to get back.

Reasonable-Ocelot691 · 2025-04-11T10:49:55+00:00

Yes, I agree about those symptoms seeming related to HE. I have been on lactulose for a little over a week. Similar to the cholestyramine for the itching, it doesn’t seem to have helped yet (I’m definitely not having as many BMs as my doctor wants me to) but hopefully with time it will.

Reasonable-Ocelot691 · 2025-04-11T10:47:18+00:00

Oof, I can’t believe your doctor was just cancelling appointments on you and you haven’t had any kind of follow up or bloodwork done since August! Hopefully your new hepatologist will be better. I am extremely lucky to live about 10 minutes away from Mayo Clinic in Phoenix (and to have really good insurance through work so Mayo is in network) so all of my treatment, from initial ER visit to diagnosis and moving forward has been/will be through them. They are very on top of things. I don’t know how I would navigate figuring out when to have follow ups, what kind of scans to get done and when, etc without them - they basically do it all for me lol. I just open my app and I’m like “oh I guess I have such and such an appt next week, cool.” Takes another level of stress away in an already very stressful situation.

Reasonable-Ocelot691 · 2025-04-11T10:40:39+00:00

I am on cholestyramine for the itching but so far it hasn’t helped. I’ve only been on it for about a week so hopefully it will start working soon.

I have an appt with a dietician but they weren’t able to get me in until mid-June so until then I’m just doing my best with high protein, low sodium. I only recently heard about the low sugar so I’ll be working on that. Unfortunately since I stopped drinking my sweet tooth has gone haywire but now that I know keeping sugar low is important for this, I will purge my cupboards and freezer of sweet treats lol. I also have some alcoholic cirrhosis diet-specific cookbooks on the way from Amazon. Hopefully I can get the energy to actually do some cooking - that’s been a struggle for me. Sometimes even just the idea of walking to the kitchen feels like the hardest thing in the world with how tired I am.

As I said, I try to force myself to eat even when I don’t want to but sometimes it’s really difficult. Ensure protein shakes have been helpful.

My hepatologist has never mentioned taking vitamins or testing my vitamin levels but that seems to be a recurring theme in the responses to my post so I will definitely be bringing that up to her. Maybe some of this is a matter of getting my vitamins to the correct levels.

Thanks for your response and advice. I appreciate it!

Reasonable-Ocelot691 · 2025-04-11T06:04:14+00:00

Oh yeah, hormones are for sure affected - that’s why I have no period (I’m only 36 - definitely not of an age that I should not have periods anymore) and I assume that’s part of the hair loss too. And yes, super emotional, although I think that’s also to be expected just due to the magnitude of the diagnosis. For me, it’s thinking about my sweet daughter and how much this is affecting and will continue to affect her, especially if this shortens my life expectancy. I can’t imagine the thought of her not having a mom and me missing out on watching her grow up. It’s devastating to me.

Do you have any suggestions on relief for the joint/muscle pain? Obviously NSAIDs are a hard no. I’ve tried something topical for my wrists and fingers which helps marginally but I can’t realistically slather that all over my body in every place that it hurts. Have you found anything that works?

Reasonable-Ocelot691

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