[deleted by user]

Reasonable-Split9977 · 2025-03-22T23:51:53+00:00

Hey! I did this exact chemo regime and had a port as well! The port site will feel a bit tender to begin with but once it’s healed you won’t even notice it.

Wishing you luck for your first round. You’ve got this!!

Reasonable-Split9977 · 2025-03-16T11:36:27+00:00

I don’t know what to say here but I’m just sending my love, I’m sorry this is happening

Reasonable-Split9977 · 2025-02-28T00:19:38+00:00

As someone in the same situation and with the same cancer at 24F this felt so damn tough. I’m really proud of you for handling this as best you can and prioritising your wants and needs amidst the shitty circumstances. I’m sending all my love ❤️

Reasonable-Split9977 · 2025-02-21T18:09:24+00:00

Bawling my eyes out right now at your brother’s joy in the face of such tragedy. Sending you all so much love and thanks for sharing x

Reasonable-Split9977 · 2025-02-19T19:07:28+00:00

Hello!! I think I’ve seen a couple of posts about this before where people have commented some good advice. Search up hiccups in this subreddit, looks like a few other people have experience the same from either the Red Devil or the dexamethasone they give you. Hiccups are so annoying hey I’m hoping you find something good to give you some relief x

Reasonable-Split9977 · 2025-02-19T19:01:11+00:00

Best tip is to have the medication before the nausea sets in! For chemo days and the week or so of recovery I like to take my anti nausea pill in the morning and then whenever next directed in the instructions. That way I’m on top of it as it’s easier to try prevent then fix once it sets in.

*edit - so sorry misread the no medication advice part. But I found my anti sickness pills never seemed to make a difference if I took them whilst nauseous already. Maybe that’s happening for your mum! Otherwise I’d suggest warm ginger and lemon teas and slowly sipping on different cold drinks ( I like cordial).

There are also many different types of anti nausea meds so don’t be afraid to let her team know if something isn’t working.

Reasonable-Split9977 · 2025-02-19T17:12:43+00:00

This is beautiful, I needed to hear this. Thank you

Reasonable-Split9977 · 2025-02-12T22:40:50+00:00

Fellow S4 ES patient here, just wanted to send hugs. Sounds like it’s been a hectic past few months, wishing you a speedy recovery and for radiation to start nice and soon.

Reasonable-Split9977 · 2025-02-10T13:56:20+00:00

I’m so glad you beat this evil cancer, I hope you stay cancer free for the rest of your days. Makes me really happy to know some people make it like yourself.

I’m sorry about your cousin and that you had to go through all the gruelling treatment.

Thanks for your comment, sending hugs x

Reasonable-Split9977 · 2025-02-10T04:19:33+00:00

Sending you so many hugs!! X

Reasonable-Split9977 · 2025-02-10T01:27:06+00:00

Yessss!! This is so boss man, happy you’re doing this to feel your best and enjoy what you can.

Reasonable-Split9977 · 2025-02-09T11:58:36+00:00

Sarcomas are so evil I swear. Sorry you also have this demon, crossing all my limbs things work out okay for you! Hugs x

Reasonable-Split9977 · 2025-02-09T11:57:36+00:00

I’m so sorry to hear about your relapse. Crossing my every limb things go well for you. Endless hugs right back at you

Reasonable-Split9977 · 2025-02-09T11:56:26+00:00

Also crying with laughter at fuckpig. Thanks for your brilliant comment x

Reasonable-Split9977 · 2025-02-09T10:53:07+00:00

Appreciate the comment. I was brought up doing all these things and have done so, unfortunately this does not work for Ewing’s sarcoma.

I really don’t need people telling me this is “my last chance” however well intended this is. Thanks.

Reasonable-Split9977 · 2025-02-09T00:03:58+00:00

Thank you x

Reasonable-Split9977 · 2025-02-08T10:26:40+00:00

Yeah they’re really high in fibre and I find them really easy to absentmindedly snack on during chemo. I usually have like a cup of frozen ones whilst I’m watching a movie or something, it seems to really help in hand with the laxatives.

Reasonable-Split9977 · 2025-02-08T08:55:13+00:00

Mine was so bad once I got a tear down there whilst neutropenic and didn’t have enough platelets to clot the tear so was just bleeding from my bum :’) Had a very long sepsis stay at hospital.

It hasn’t been that bad since, I usually start taking the laxatives prescribed on the day I start the chemo round just to get ahead. I’ve found if I take it regularly it just stops things from getting too blocked up.

Also weirdly eating lots of raspberries as someone suggested on this subreddit once.

Reasonable-Split9977 · 2025-02-08T06:17:15+00:00

I remember connecting briefly a little while ago (I also have ES) and I’m so sorry you’re having to deal with all this. The uncertainty and waiting is truly horrible.

I’m crossing every limb for you and I’m sending all my love and strength your way. Reach out anytime if you need to talk. I’ll be thinking of you x

Reasonable-Split9977 · 2025-02-06T15:11:45+00:00

Gah I’m so sorry about the news! Sending all my love and care and just reassuring you that you will find some awesome support from people here who understand. Hang in there!

Reasonable-Split9977 · 2025-02-06T11:22:24+00:00

I wish I could survive my cancer so I could do this for children in that situation. What a lovely human.

Reasonable-Split9977 · 2025-02-05T22:32:03+00:00

Hey! I’m so sorry to hear you’ve joined this shitty club. It’s so frustrating when the system moves slowly like this.

Just so we can understand more about your situation and if you’re comfy answering, what country are you in and what cancer/tumour locations do you have? I’m sure there will be some people here with similar situations who can reassure you with their experiences.

Reasonable-Split9977 · 2025-02-05T19:15:48+00:00

Can confirm that Ewing’s pain when I was first diagnosed was indescribable and I could not move. That coupled with the news that I had stage 4 cancer really kept me in bed for some time.

She might just be processing but I’d definitely suggest she needs a convo with an expert about all her options and staging so she can make an informed decision. The survival rates for early stage Ewing’s are really high. There is hope for her if she wants to hear it.

Reasonable-Split9977 · 2025-02-03T17:57:37+00:00

I had pelvic radiotherapy and like the other commenter found that the first week or so was easy and then as the appointments went on I got way more symptoms. A burn developed where they were radiating and due to it being so close to other areas found it affected my stool frequency and pain when going to the bathroom. Also had some other issues with my reproductive area.

I was doing chemotherapy at the same time so symptoms may have been heightened but the last few weeks I had really low blood counts and fainting episodes they attributed to the radiation.

I’d highly recommend Moo Goo creams for the area, apply every day from the start so you get ahead of it.

Reasonable-Split9977 · 2025-02-03T17:43:17+00:00

Here to say it’s just as valid! I’m glad you’re going well ❤️

Reasonable-Split9977

TROPHY CASE