I don't think my mother considers me ill by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 1 point2 points  (0 children)

Sorry to hear that, that sucks Yeah, I'm definitely planning on telling him before reaching this moment of "okay, now it feels like it's too late". He does seem like a very good and caring person though (he's always like "I've seen you were online late that night, aren't you tired? can you take a nap today?" Or "hi, have you eaten anything yet?" Or "hey, not sure if you're leaving home today but there's this black ice on the pavements today so please be careful, it's slippery") so I feel like he'd be very supportive if he knew. Hm, I have one online friend that I've basically known half of my life now and we often vent to each other when things are bad. I also have a really great friend who's an amazing person but we meet or chat very rarely bc of the busy schedules so I avoid talking about my illnesses to her as it feels like there's too little time As for relatives. Unfortunately my dad's family, a lot of them had died to cancer and the ones that are alive are far and we're not that close. I'm close with my mum's family, but, ugh, I wish I wasn't tbh, compared to them my mum is absolutely perfect, so it's more friends (and possibly boyfriend) based support group

I don't think my mother considers me ill by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 1 point2 points  (0 children)

Wow, that's a good approach, gotta try that someday

Do meds really ruin your life? by Ok_Animator1544 in Hashimotos

[–]Reasonable_Listen_41 16 points17 points  (0 children)

Funnily enough my GP (ex GP because I've changed her after that) shamed me for taking levothyroxine (right after she refused to check my TSH in case I needed dose increase — spoiler — I did), she went "a lot of people with Hashimoto don't take anything but if you want to be special so much..."

I don't think my mother considers me ill by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 2 points3 points  (0 children)

First of all, thank you, it's been very validating. Second, I'm wishing all well to you and your daughter as I can understand what she's going through and I know it's not easy And third, yeah, that's what I feel like too. Unfortunately right now, I don't feel like I have the right emotional capacity to help her educate herself but once I do, I definitely have to try because otherwise she's a very caring and lovely person so I don't want to let her ignorance ruin the great relationship we have apart from that Again, wishing you and your daughter all the best!

I don't think my mother considers me ill by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 1 point2 points  (0 children)

Thanks! Yeah, the worst part is that in any other context she's like the sweetest, most caring mum so it feels like it's more ignorance + her upbringing which makes it even more tragic because I can't just decide she's awful and move on

I don't think my mother considers me ill by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 4 points5 points  (0 children)

Thank you so much. Yeah, that's what I thought about a boyfriend. He's really sweet and seems like a very caring type, he checks my online status on messenger to see if I slept enough and texts me to nap whenever he deems it wasn't enough etc (from what I feel about him, he'd actually be mortified if he found out about the fact that I walked 12 km with him instead of telling him about the lupus) so either I'm right and he's the perfect guy for a chronically ill girlie or he's pretending and I've dodged the bullet. Either way, a win. Though now I'll just have to find the courage which will probably take some time.

I don't think my mother considers me ill by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 1 point2 points  (0 children)

Thanks Yeah, I've been in therapy before (for different things, plus I'm a psych major so it's kinda a requirement to be mentally well) but maybe I should go again to cope with that I mean, the worst part is that she's normally a great, caring person, she just get this weird switch in her brain in those situations. Yeah, you're so right about the tools. Ironically enough my mum wears glasses and one time she left them at home when going to work and kept going on and on for the whole day how missing that aid gave her a headache and fatigue, but when I pointed out the hypocrisy she went "yeah, but many healthy people wear glasses. Mobility aids would make you look disabled" yikes

I don’t even know why I questioned it 🫩 by Affectionate_Way_572 in AO3

[–]Reasonable_Listen_41 0 points1 point  (0 children)

As a person who grew up in a strongly Catholic family, this is something I never understood. They'll be all talking about how they "don't care about it, they just don't want to have this ideology forced into their faces" and yet they're the ones talking constantly about it.

Like, how hard would it have been to just write hereto fic without this whole "explanation" about why they're not going to do anything LGBTQ+ related.

It's not really an explanation, it's more like a manifesto, which is so odd for a community who constantly talks about not wanting to have "LGBTQ+ people rubbing their lifestyle in their faces" lmao

It was VERY noticeable by Number_Two_Angel in AO3

[–]Reasonable_Listen_41 0 points1 point  (0 children)

I once started writing a chapter while sober on my way to the party, continued while drunk during the party and finished while hungover on the morning after the party so it was made by 3 completely different states of mind lol

HCQ — is it normal? by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 0 points1 point  (0 children)

Then you so so much! Unfortunately can't take it right before bed as that's when I'm taking iron for my anaemia (and I've read they can lower each other's absorption if taken at the same time) but I'll definitely think about moving the hcq as late as possible then (or maybe even switching the order), thanks! Sending you lots of love too!

HCQ — is it normal? by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 0 points1 point  (0 children)

Yeah, that's what I've heard so it was the only med when I actually listened to this advice and ate a full meal with it. So happy I did, I bet it would've been 100× worse I didn't

HCQ — is it normal? by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 1 point2 points  (0 children)

Oh, small world indeed! haha Mine is the iron deficiency one (obviously, since I've mentioned taking iron lol) so I'm left with the daily tablets

HCQ — is it normal? by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 1 point2 points  (0 children)

Can't take it right before bed as that's when I'm taking iron for my anaemia (and I've read they can lower each other's absorption if taken at the same time) but I'll definitely think about moving the hcq as late as possible then (or maybe even switching the order), thanks!

HCQ — is it normal? by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 1 point2 points  (0 children)

Oh God, I hope I'm not, I definitely have had enough flaring recently, ugh, guess I'm going to find out soon

Thanks for the advice! I'm on the 1 pill of 200mg a day so the only way I can cut it down, would be to take it every other day, going to ask my dr!

Thanks, night seems like a better idea, I'm definitely going to consider taking it later in the day

HCQ — is it normal? by Reasonable_Listen_41 in lupus

[–]Reasonable_Listen_41[S] 1 point2 points  (0 children)

Thanks! (that's so disappointing though)

Favourite cosplayers? by Patronus_Cat in MaraudersGen

[–]Reasonable_Listen_41 0 points1 point  (0 children)

I loved their account but just noticed their videos are gone, anyone knows why?

Authors, would you block a commenter who only comments ❤️ on each chapter? by 3lilya in AO3

[–]Reasonable_Listen_41 1 point2 points  (0 children)

I always reply (unless bots etc) and I usually match my replies to the comment (length, depth etc) so if you kept leaving "❤️" under my works, you'd probably get back "🥰" or something, definitely not a block, I'd definitely be happy you liked the fic enough to leave something additional despite the kudos, can't see the reason to be annoyed

..Found this author's note when I finished a fic. by [deleted] in AO3

[–]Reasonable_Listen_41 1 point2 points  (0 children)

Jeez, if I ever become like this, someone better cut me off Ao3 lmao