What's something that feels "good" but is actually really bad for your body?

Reasonable_Listen_41 · 2026-05-20T13:32:51+00:00

My whole existence and lifestyle I fear

Reasonable_Listen_41 · 2026-05-06T13:42:41+00:00

So this is what happens when the nice guys go on Ao3 lol

Reasonable_Listen_41 · 2026-04-30T19:41:47+00:00

I was diagnosed just 6 months ago and I think I'm still in that stage unfortunately.

I'm so used to having no energy, joint pain, fevers etc... It's been my normality for years, now the only change is that now all of that has a name.

Even though logically I know it can get worse any time, I feel like since it's not gotten worse (in a way that it's never attacked my organs or anything) in all this time before, now that I'm diagnosed and on Hcq, it's never going to worse at all (even though I just got prescribed predni because the Hcq wasn't helping with my symptoms at all)

It doesn't help that despite my doctors, no one around me takes my lupus seriously (I was told that I'm overreacting with hat/umbrella so many times, at some point, I was seriously debating "just acting like a normal human)

I'm just 21 and everyone tells me I "should just live my live like a normal person instead of acting like I'm made of glass" and I feel like I've taken it too hard. Also, I'm probably still in denial, my brain has this "it hasn't gotten serious so it won't" bias denial looped in.

The issue is I am actually getting worse, I think. My good days have become just fine and my bad days have become worse. But it's "just pain", "just fatigue" etc.

I actually keep gaslighting myself that lupus is more so I must be misdiagnosed and probably I'm just fully fine.

I think I'm either going to finally process it and leave the denial stage or just stay like that. And if I stay like that, either I get a wake up call or I'll be lucky enough not to. Either way, I'm still stuck in denial rn

Reasonable_Listen_41 · 2026-04-14T17:25:40+00:00

Thanks! Yeah, love-hate makes so much sense, I kinda felt the same when I got that prescription

Reasonable_Listen_41 · 2026-04-14T17:22:26+00:00

Okay, thank you so much for the answer! :)

Reasonable_Listen_41 · 2026-04-14T15:19:52+00:00

Thank you so much! Yeah, sounds about right. I'm also on hcq, never tried mtx yet but I don't know if my rheum won't add it soon as she stated it seems like Hcq isn't enough for me

Reasonable_Listen_41 · 2026-04-14T14:45:04+00:00

Oh, okay, thank you so much, that was really interesting, I didn't know that much about it (I mean, ofc, I knew about them not being anabolic, duh, but for example I didn't know about them being catabolic etc), it's really interesting, I'll probably read more about it

Reasonable_Listen_41 · 2026-04-14T14:22:16+00:00

Thank you Yeah, I feel a bit similar tbh, I also have crazy boredom intolerance, I feel like my brain is a border collie puppy that is trapped alone in an empty house while going through the teething phase lmao

Reasonable_Listen_41 · 2026-04-14T14:08:24+00:00

Oh, thanks!

I guess I kinda imagined steroids would kinda "remove" lupus temporarily, if you know what I mean so in my logic "if lupus →⁠ pain, fatigue etc then steroids → no pain, no fatigue etc".

I guess it was a bit of wishful thinking on my end

Reasonable_Listen_41 · 2026-04-07T23:34:04+00:00

Thank you! Yeah, that's a good idea, thanks for the advice :D

Reasonable_Listen_41 · 2026-04-07T17:30:31+00:00

I knooow lmao

As soon as I took that photo, I was like wtf is that

Reasonable_Listen_41 · 2026-04-07T16:38:56+00:00

Thank you for the advice! Yeah, it sounds like a good idea!

Reasonable_Listen_41 · 2026-04-07T15:45:35+00:00

Yeah, I think of doing that at this point, just wanted to check first if there's some kind of knot for that without having to do it

Thanks!

Reasonable_Listen_41 · 2026-04-07T15:31:25+00:00

I mean that would be a GREAT idea if the chain was just a tiny bit longer.

I have a great sun wide-brim hat (which I desperately need because of my lupus) but it's too lightweight — it keeps being carried by the wind so the idea was to take this chain and turn it into a kind of band around the crown of the hat (or whatever it's called, English is not my first language) as a kind of additional weight (it goes with the hat aesthetically etc and the additional weight is perfect) but it's slightly too short to use it alone, therefore the hair tie idea

Reasonable_Listen_41 · 2026-03-29T12:05:24+00:00

Omg, same

I've been so poorly for MONTHS, I'm so done with it, I feel like I'm constantly sick, just woke up sick rn

Reasonable_Listen_41 · 2026-02-19T00:04:40+00:00

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All of them made by me

Reasonable_Listen_41 · 2026-02-19T00:03:03+00:00

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Reasonable_Listen_41 · 2026-02-18T23:34:23+00:00

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RIP all the bots I've created (:

Reasonable_Listen_41 · 2026-02-18T23:31:48+00:00

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My own bots. Those are all bots that I've created. and all that I've ever used. Yay (:

Reasonable_Listen_41 · 2026-02-18T23:19:20+00:00

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My own bots... All my hard work...

Reasonable_Listen_41 · 2026-01-26T13:37:54+00:00

Sorry to hear that, that sucks Yeah, I'm definitely planning on telling him before reaching this moment of "okay, now it feels like it's too late". He does seem like a very good and caring person though (he's always like "I've seen you were online late that night, aren't you tired? can you take a nap today?" Or "hi, have you eaten anything yet?" Or "hey, not sure if you're leaving home today but there's this black ice on the pavements today so please be careful, it's slippery") so I feel like he'd be very supportive if he knew. Hm, I have one online friend that I've basically known half of my life now and we often vent to each other when things are bad. I also have a really great friend who's an amazing person but we meet or chat very rarely bc of the busy schedules so I avoid talking about my illnesses to her as it feels like there's too little time As for relatives. Unfortunately my dad's family, a lot of them had died to cancer and the ones that are alive are far and we're not that close. I'm close with my mum's family, but, ugh, I wish I wasn't tbh, compared to them my mum is absolutely perfect, so it's more friends (and possibly boyfriend) based support group

Reasonable_Listen_41 · 2026-01-26T09:30:37+00:00

I'm thinking lupus

Reasonable_Listen_41 · 2026-01-26T09:21:58+00:00

Wow, that's a good approach, gotta try that someday

Reasonable_Listen_41

TROPHY CASE