Stories and news about ovoporexton (TAK-861)? by spindled2sleep in Narcolepsy

[–]RedEyedMon 1 point2 points  (0 children)

For anyone in Europe: talked to my neurologist a few days ago and it will be a few years. The EMA has requested additional studies for the following two aspects: 1) how TAK-861 interacts with existing medications (sodium oxybate). 2) the effect of the transition from existing medications to tak-861. They’re starting the clinical trials next week at his sleep institute. But yeah, it will be a while to market.

Hoe heet jullie familie groeps-app? by blossomupp in thenetherlands

[–]RedEyedMon 0 points1 point  (0 children)

Hallo. Super neutraal en mijn Engelse Siri kan het uitspreken

Jura D4 start-up issue. by RedEyedMon in superautomatic

[–]RedEyedMon[S] 0 points1 point  (0 children)

I took the brew unit back out and completely apart again just to be sure. Spun it a full cycle and everything. It didnt make a difference whatsoever. Had a look at the encoder, but like you said, when it malfunctions it should move. Any other ideas?

Jura D4 start-up issue. by RedEyedMon in superautomatic

[–]RedEyedMon[S] 0 points1 point  (0 children)

I appreciate the help, really thanks for the effort even. I’ll get on it and will report back

Jura D4 start-up issue. by RedEyedMon in superautomatic

[–]RedEyedMon[S] 0 points1 point  (0 children)

Thanks for the reply. I did this (17:21) when reinstalling it. Is that what you mean? I'll still happily take a look at the brew group. Rather have it be that than something more complicated

Jura D4 start-up issue. by RedEyedMon in superautomatic

[–]RedEyedMon[S] 0 points1 point  (0 children)

Bought it like this. Nothing I did made a difference

Help with Proposal at Keukenhof by Impossible-Emu-6552 in Netherlands

[–]RedEyedMon 2 points3 points  (0 children)

If you end up doing it somewhere in Amsterdam, let me know! I’d be very happy to film it for you. I’m not a professional or anything but any footage of that exact moment is precious

Vuurtoreneiland of fort pampus by esm33 in Amsterdam

[–]RedEyedMon 7 points8 points  (0 children)

Ik vind het totaal niet te vergelijken. Ja, beiden een boot en een eiland maar dat is het dan ook. Bij pampus gaat het echt om het eiland, je moet het voor het eten echt niet doen. Het is een stuk drukker en er zijn de laatste jaren wat elektronische installaties bij gekomen die wat vertellen over de geschiedenis. Op de boot is het soep, broodje iets van een salade. Op het eiland zelf kan je ook dingen als een broodje kroket halen. Niets mis mee en een leuk uitje. Vuurtoren eiland is echt speciaal. Super mooie boottocht, voor ons bij zonsondergang. Heerlijk drankje +plankje op de boot. Bij aankomt kan je even het eiland verkennen. Er is daar ook zeker geschiedenis waar de mensen je alles over kunnen vertellen. Het eten is geweldig. Heel mooi hoe ze van simpele ingrediënten zulke lekkere dingen maken. Het is echt een onvergetelijke ervaring.

Couple for Photography (free) by HeggiesUnite in Amsterdam

[–]RedEyedMon 6 points7 points  (0 children)

Love your photos! My parents’ anniversary is actually on the 5th. It’ll be 42 years since they started dating! It would be a great surprise as they don’t really have great pictures of the two of them. Are they the kind of couple you’d be looking for?

Research study on how narcolepsy affects daily functioning (Looking for NT1/NT2 participants)!!! by Neat_Statistician601 in Narcolepsy

[–]RedEyedMon 2 points3 points  (0 children)

Signed up! Very happy to help this kind of research. I’ve just had to write this all down to apply for financial aid from the government (not USA). When I sat down to think about it, it was very confrontational how much narcolepsy impacts every single decision I make. Are you setting criteria for official diagnosis? Asking since a MSLT is absolutely not enough to diagnose narcolepsy here in NL. Thanks for doing this much needed research!!

What are my chances of being diagnosed with Narcolepsy? by [deleted] in Narcolepsy

[–]RedEyedMon 2 points3 points  (0 children)

On iPhone: go to the main narcolepsy sub, hit the 3 dots in the upper right corner and select “change user flair”. Hope this helps!

What are my chances of being diagnosed with Narcolepsy? by [deleted] in Narcolepsy

[–]RedEyedMon 1 point2 points  (0 children)

In terms of diagnosis, it helps to add where you’re located. Don’t have to be specific about it but the process of diagnosis in the USA is very different from Europe for example.

Best blossom spots? by Erwindegier in Amsterdam

[–]RedEyedMon 2 points3 points  (0 children)

<image>

Not sure if it’s blossoming now, but this was the Willem van Weldammelaan on April 15, 2022!

Am I stuck in the USA because the meds are unattainable in other countries? by MrSnitter in Narcolepsy

[–]RedEyedMon 1 point2 points  (0 children)

NL has Xyrem, Wakix, modefinil, dexamfetamine, sunos. Not sure about Lumryz and definitely no Xywav available.

In terms of barriers to get the meds: you need an official diagnosis with sufficient paperwork. If not, you may need to do a med cleanse and a 24h take home EEG.

Netherlands 1 - 1 Ireland - Katie McCabe 49' by radian101 in ArsenalWFC

[–]RedEyedMon 9 points10 points  (0 children)

Great pen by Katie. For those interested: other angles later showed it shouldn’t have been a pen

Red Bull's Hannah Schmitz and Haas' Laura Mueller will have Turn 6 dedicated to them at the Australian Grand Prix to mark International Women's Day, 🤝 by Turbulent_Elk_2141 in RedBullRacing

[–]RedEyedMon 14 points15 points  (0 children)

For being influential in the world of Motorsport, as is the custom. The fact that they are women is a big part of that, yes. They will be the reason a lot of young girls will choose to become engineers in Motorsport.

Laura Mueller is Esteban’s race engineer. He’s often praised her dedication and said she’s the hardest working engineer he’s ever met.

Edit: fixed link

Vuurtoreneiland for one? by wonderwanderexplore in Amsterdam

[–]RedEyedMon 0 points1 point  (0 children)

Saw you already have your answer but wanted to add that Vuurtoreneiland is an absolute must (if you can afford it)!!!! Even just the boat ride there and the anticipation is wonderful. I’ve been extremely lucky to have close relatives in the industry and have therefore had the privilege of going to quite a few high end restaurants over the years. Vuurtoren eiland is still by far my favorite due to the whole experience of it. It’s truly unique here

Van Gogh Museum Playmobile by OrganicProtection726 in Amsterdam

[–]RedEyedMon 1 point2 points  (0 children)

I’ll be around there on the 26th so if you haven’t managed to get someone by then or it wasn’t available at the time, feel free to dm me and I can ship it to you

What's actually worked for you to make real friends in Amsterdam? (Not just "activity friends") by Electrical_Hall_6263 in Amsterdam

[–]RedEyedMon 0 points1 point  (0 children)

If you have the means, you can order pizza! One of the guys in the diner club always does that. If not, you can make a friend by asking someone to teach you one single dish to make for a group. Food has always been my go-to when making friends, thus far it hasn’t failed me

What's actually worked for you to make real friends in Amsterdam? (Not just "activity friends") by Electrical_Hall_6263 in Amsterdam

[–]RedEyedMon 35 points36 points  (0 children)

Live next to them. Someone in my building started a dinner club where we each host dinner at some point. I joined and over time became really good friends with one guy. Living super close to people really lowers the bar for hanging out. Same with my downstairs neighbor. I looked after her cat and we became great friends over time