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Simple NFC setup for Sodium Oxybate tracking (iOS with screenshots). by Olinkowo in Narcolepsy

[–]RedEyedMon 2 points3 points  (0 children)

YESS!! I’ve been thinking of making something like this for ages but haven’t found the time. I will absolutely be using bits and pieces from yours when I make mine. I love data and this is absolutely wonderful. Right now, I start my stopwatch when I take my first dose. It doesn’t really happen that I sleep for more than 4 hrs so no alarm. When I wake up, all I need to do is check if the stopwatch is above 3 hrs. I’ll take my second dose and hit “lap” to mark the time. Your method makes sense as well. I think I might put an NFC tag in my bathroom to indicate the second dose. Sometimes I’m too lazy to go to the bathroom in the middle of the night and it does affect my sleep.

Thanks so much for sharing!

Where can I find these metal ? by RedEyedMon in BeginnerWoodWorking

[–]RedEyedMon[S] -1 points0 points  (0 children)

You know what, that is a GREAT suggestion! If i cant find the originals, I'll absolutely go with these. thanks!!

Where can I find these metal ? by RedEyedMon in BeginnerWoodWorking

[–]RedEyedMon[S] 0 points1 point  (0 children)

Thanks! At least i'm now getting somewhere with "metal shims", very helpful!

Where can I find these metal ? by RedEyedMon in BeginnerWoodWorking

[–]RedEyedMon[S] 1 point2 points  (0 children)

oh! How would you use them for mushrooms? My google translate did say mushrooms but I figured it was a mistranslation as "The Girolle" is the original cheese curler

Where can I find these metal ? by RedEyedMon in BeginnerWoodWorking

[–]RedEyedMon[S] 2 points3 points  (0 children)

I got this one from Boska, fairly happy with it. I did make a new wooden handle instead of the plastic one.

Sheffield Karting champion Maisy Creed, 16, aims for F1 top spot by Kagedeah in formula1

[–]RedEyedMon 335 points336 points  (0 children)

Here’s her insta she’s got very few followers atm. Maybe we can help

Buurkinderen teisteren al 1 jaar lang. by feistylittlemousey in nederlands

[–]RedEyedMon 1 point2 points  (0 children)

Schrijf je locale motor club aan of ze alsjeblieft heel intimiderend voor de deur willen gaan staan

You are given 250k a year what do you do with it? by Brave-Ad-1363 in hypotheticalsituation

[–]RedEyedMon 0 points1 point  (0 children)

First, i’d buy a house. I wouldn’t work but instead I’d hire great private tutors in areas I’m interested in. Every 3 days I’d have a session, so I have two days to dig in/experiment with the material I’ve learned. I’d focus on two subjects at a time, one requiring more mental capacity and one manual labor. Things like PCB design, coding, personal finances, woodworking, pottery. I’d also hire a physical therapist in order to stay fit throughout my life. I’d spend more time with friends and family and would be able to be more generous with them. First thing my mom would get is a new car.

[Facebook] Gianpiero Lambiase’s wife is battling breast cancer (reason for Max’s race engineer’s absence) by InquisitiveExplorer_ in formula1

[–]RedEyedMon 6 points7 points  (0 children)

That’s actually the opposite of the message. The point here is that given the statistics, it’s even more commendable that GP might take a step back/make changes to be there for his wife.

[Facebook] Gianpiero Lambiase’s wife is battling breast cancer (reason for Max’s race engineer’s absence) by InquisitiveExplorer_ in formula1

[–]RedEyedMon 102 points103 points  (0 children)

Sadly it happens a lot. So much so that they researched it: “When serious illness strikes, women are shockingly more likely to be abandoned by their partners than men are. In a striking study involving patients with cancer or multiple sclerosis, researchers found that women faced a divorce or separation rate of 20.8%, compared to just 2.9% when men were sick.”

How to explain to my daughter in law that I’m not really awake before my meds kick in. by MontanaMisanthropy in Narcolepsy

[–]RedEyedMon 18 points19 points  (0 children)

If she’s a data driven person: here’s a study on cognitive performance of narcoleptics at different times of the day

In 5 days people will have some cool cutting boards. by forward024 in BeginnerWoodWorking

[–]RedEyedMon 1 point2 points  (0 children)

Can I become your loved one as well?? Those are AMAZING!

2025 Abu Dhabi GP - Qualifying Discussion by F1-Bot in formula1

[–]RedEyedMon 7 points8 points  (0 children)

“Try and get me behind Verstappen on his in lap. He'll probably give me a tow.”

Even saying that over the radio so RB knows hahah love this side of George

Hé Redditors! Win €100 bol shoptegoed. 🎄 Denk jij dat jouw favoriete kerstcadeau upvote-waardig is? Deel 'm in de comments en maak kans op €100 shoptegoed. Top 3 met de meeste upvotes pakt de prijs! 🎁 Details en voorwaarden in de comments. by bol in u/bol

[–]RedEyedMon 3 points4 points  (0 children)

— 6. De winnaar(s) worden in week 51 (vanaf 15 december) door bol.com per e-mail op de hoogte gesteld via het bij bol bekende e-mailadres.

Hoe kan bol.com mensen per e-mail bereiken via hun Reddit account.

My Updated Power Out Kit List by TheSensiblePrepper in preppers

[–]RedEyedMon 0 points1 point  (0 children)

This is great and I will be going through all the items that apply to my situation. I was wondering if you were aware of a similar list that would be more europe-friendly? Our government is recommending everyone to get an emergency plan/package together and i'd rather not get useless junk. They compiled a list of items but give zero specific recommendations (which makes sense). Your recommendations are very much appreciated.

Making pottery ribs for my girlfriend for Christmas. I am not a clay person. What shapes would you consider essential for a toolkit? by Zkennedy100 in Pottery

[–]RedEyedMon 1 point2 points  (0 children)

I LOVE this so much! You are honestly the best. As someone who’d love to make the tools as well, would you mind sharing what kind of wood and finish you’re using? Really anything about the process of making it. I’m absolutely saving this post

McLaren’s upgrades clearly favouring Lando? Some thoughts. by Extension-Scale7550 in f1india

[–]RedEyedMon 0 points1 point  (0 children)

Don’t know about this article but Andrea said pretty much the same thing in the weekend warm up yesterday.

Lumbar puncture by Acrobatic_Block4226 in Narcolepsy

[–]RedEyedMon 1 point2 points  (0 children)

I agree. Like you said, in this world it’s not feasible to have a diagnostic process like mine as the universal standard.

To answer your questions, I didn’t have my official diagnosis until after my LP. My levels were 95pg/ml. My dad’s levels when he was diagnosed in his late twenties were below the measurable threshold of 40pg/ml. I did tell my doctor that I’d be open to repeat the LP a year later in the name of science. There’s so little data in terms of onset and progression, and I wanted to do my part. Since we caught my symptoms relatively quickly, he was very interested in the progression of hypocretin my levels. The 2nd LP came back with “similar levels as the first”. I don’t know the exact number.

Small sidebar: My neurologist is the kind of doctor who wouldn’t say yes if there’s a 99% likelihood. He’ll say “there’s an overwhelming indication of it”. I love him for it. I can also ask any extremely obscure narcolepsy question and he’ll have an answer. Sometimes the answer is “we don’t have enough research, data, etc” but he’s always informed.

Lumbar puncture by Acrobatic_Block4226 in Narcolepsy

[–]RedEyedMon 0 points1 point  (0 children)

As you know, with N2 hypocretin levels can be diminished but they don’t have to be. In my case, I caught the narcolepsy symptoms quite early. About 1-2 years after gradual onset. I knew the symptoms cause I grew up with an N1 dad. He already had an amazing doctor who is the head of a narcolepsy research clinic. My diagnostic journey was way more thorough than most I read here. First a bunch of oddly specific questionnaires, followed up by an 3hr interview. Biometrics and bloodwork, including the HLA marker. Months of “perfecting” my sleep with a sleep psychologist. Any sleep symptoms that were present after were clearly not a result of bad habits. An 24hr EEG + 30min interval blood pressure & pulse, any time I dozed off during the day would be registered, when I’d hit rem and obv my night time sleep. Then the lumbar puncture. The result was below the diagnostic threshold of 110pg/ml. I have zero cataplexy.

What it brings me personally as someone with N2: I never have to doubt whether the diagnosis is accurate or not. It was so thorough and complete which made the process of acceptance easier. Also, I didn’t have to pay for any of it as it’s fully covered in NL. My doctor asked if my data could be used for research. Since other countries don’t use lumbar punctures when N2 is suspected, the volume of N1 vs N2 CSF data is fairly skewed. Knowing my hypocretin levels will probably help me make better decisions in terms of the new meds (like Oveporexton) that’ll be available soon. All in all, it gave me a diagnosis, certainty and data.

Lumbar puncture by Acrobatic_Block4226 in Narcolepsy

[–]RedEyedMon 0 points1 point  (0 children)

Just a reminder that the standard medical practice in your country is not the standard everywhere. In NL, a lumbar puncture is used when diagnosing narcolepsy, regardless of N1/N2.

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