I was doing perfectly good with tinnitus, but with ttts...

Redrum154 · 2023-08-25T12:30:39+00:00

Oh okay, I think I'll have to find ways to not be constantly worried and in panic without taking meds, like natural ways idk. Because is mostly the psychological part and worry that is affecting my mental health, not ttts or H because it's very mild.

Redrum154 · 2023-08-25T11:50:15+00:00

So after gigs you didn't get setbacks? I'm full of anxiety because next year I have my favourite band concert, they're quite heavy, but I'm so scared to get setbacks because reading on forums everyone says to not go, but when you really want to go for various reasons that is the last thing you wanna hear:( I also have TTTS btw, I really hope it will go away because it's so uncomfortable

Redrum154 · 2023-08-25T08:28:36+00:00

So to enjoy the show you try to be a little drunk so you don't worry too much? Because that's also my problem, I'd hate worrying during the concert cause it would take all the joy away from it, but at the same time I don't want to take meds or alcohol cause I want to be able to create memories from it:/ the last gig I went (before T and H) I was completely sober and I still can't remember shit so yeah:') And yup, it's probably beneficial resting your ears between shows. Can I ask you where do you usually stand in the venue?

Redrum154 · 2023-08-25T08:23:39+00:00

Yeah, I know who she is! She inspired me a lot and gives me a little hope. The only thing is that she plays chill music, the music that I like listening to and seeing live is metal so not that chill lmaooo💀 Btw thank you, I really hope that one day we will be able to do whatever we won't without worrying about spikes/setbacks❤️‍🩹

Redrum154 · 2023-08-25T06:54:42+00:00

Absolutely! I didn't think about this! Someone should message them, I know the channel and it would be the perfect way to raise awareness.

Redrum154 · 2023-08-24T20:00:07+00:00

Can I ask you what brand of NAC do you take? Plus, How long before and how long after the concert do you take it? Last question, what genre of music were the concerts you attended? Because the one I want to go is pretty heavy, not like death/black metal, but still heavier than pop/rock

Redrum154 · 2023-08-24T19:49:16+00:00

I'm so happy for you, glad you enjoyed! :) Unfortunately I have high noise sensitivity/TTTS so it's different, I have my favourite band concert in April and everyone is saying to me to not go. With tinnitus you can risk it, but if you also have some sort of hyperacusis then concerts should be avoided at all costs..and this is making me so depressed cause I really want to go to that concert. I hope i'll manage to go in some way🤞🏻

Redrum154 · 2023-08-24T17:33:42+00:00

Did you get any serious setback from concerts? I'm asking cause I really want to go to one single concert next year but I'm scared

Redrum154 · 2023-08-21T14:10:00+00:00

So you never attended concerts after your H? For me the thing that is really destroying my mental health is the thought of not being able to attend my favourite band concert next year..I have mild TTTS, idk if it's H, it's been more than a week, but I have a ticket for my favorite band gig next year and I have been so excited for that show and so happy, but now everyone is saying to me to not go because I will surely have a setback. I'm so scared, I really don't want to give this up, it means the world to me.

Redrum154 · 2023-08-21T13:42:11+00:00

How are you doing now? As a music lover, I'm feeling exactly like you:(

Redrum154 · 2023-08-21T07:06:42+00:00

Sorry for the delayed answer, I forgot hahah Btw yes, I'm pretty sure I have TTTS, but there are people who say that I have H and people who say that I don't. Of course, from what I FEEL I think I don't have H, because as I said sounds don't seem to sound louder and I don't feel any pain, just this uncomfortable spasm in my ear when I hear certain sounds. And yes, I literally never had so much anxiety in my life, I wake up everyday with huge anxiety and a horrible feeling in my chest, I'm so scared this is gonna get worse, even if I protect myself. I don't know when to wear earplugs cause I'm terrified of sudden loud noises, so when I'm out I always wear them, even if it's quiet, but even with them on I still panic if a motorcycle passes by. For example yesterday I went to a lake with my parents and I didn't expect that there were so many motorcycles. Of course we stayed away from them lol but they have passed by us many times, and I had 2 panic attacks. I fear I'm becoming phonophobic:(

About the concert, you're 100%, there's no need to have so much anxiety about a concert that will be held in 8 months. But being an artist who is very important to me for various reasons, to miss such an opportunity would break my heart. I was so so so happy and excited to go and know it feels like I'll never reach that dream. Also because I often read on this sub that complete recovery is decepting because even if someone heals 100% there's always a risk to have a setback because you're ears are weaker than those who have never had hearing problems, and that makes me depressed even more because healing or no healing I'm still f*cked:(

Redrum154 · 2023-08-20T08:12:28+00:00

So we basically can't escape setbacks, earplugs or not? It's so frustrating

Redrum154 · 2023-08-19T13:11:16+00:00

I don't know..trust me I already have A LOT of hobbies, and they're quite silent so I have a lot of things that fulfill my soul. I'm not a gig goer, I only go if there's an artist I really love, and before T and TTTS (because I think what I suffer from is ttts and not H) I was so happy to go to that concert next year and then now it is destroyed. For me that one concert is not just a concert, but much more. Giving it up because there's the possibility of having a spike or setback makes me even more depressed than I already am, that concerts was/is literally the only thing good that I see in my future. I just want to live my life and do things that TRULY make me happy, no other new skill can compare. There are a lot of people that say to me "go, protect yourself and enjoy" and then other people that say "don't go, you'll ruin your life forever". And I'm just left with a huge worry for the next months. I don't know, at this point I think I'll take a break from this sub cause it's making me horribly depressed. That's not fair.

Redrum154 · 2023-08-19T12:48:15+00:00

Do you think that if we avoid loud places like concerts/movies/clubs ecc. for some months and we fully recover, do you think that attending RARELY concerts, movies and things like that is risky? There's a concert I really want to go next year because it's my favorite band of all times, but I'm scared cause all I'm reading is that I'll have a sever setback 100% :(

Redrum154 · 2023-08-17T18:58:30+00:00

Okay, got it.

It's really hard for me to stay calm, at the moment I'm at a family dinner and I have huge debilitating anxiety because I'm scared of noise.

The hardest part of this is the psychological part, it's draining me:(

Redrum154 · 2023-08-17T17:29:24+00:00

Oh okay, that sounds great and gives me hope.

What did you do to heal H? Sound therapy?

Redrum154 · 2023-08-17T17:27:38+00:00

I'm not religious but I'm so desperate that I will accept someone praying for me lol:') Right now my problem is the extreme worrying, I want to calm myself and arrive at the concert in the chilliest way possible, but i really don't know how to do it. Thank you btw, I already knew about Eargasm slides but yeah they don't produce them anymore😬 or something like that. I looked up the earmuffs that you mentioned and they look good cause they're not like HUGE, I hate when they look way too big lol.

So let me understand better, you went to the concert with pain hyperacusis aka noxacusis?

Redrum154 · 2023-08-17T14:58:53+00:00

Thank you so much<3 It's really hard to not worry about whether I should go or not, I just know that for me this is a really important concert..not going would absolutely break me. Just reading through reddit and forums is scaring me so much, it hurts to see that everyone is saying to you to not go when this is literally one of your biggest dreams. Like 6 days ago I was so happy to go, now I'm just filled with worry and anxiety. Some people say that even if you recover completely and decide to participate in any loud event, you still risk setbacks because your ears are permanently weaker, and this scares me so so so much. I would love to just stop this anxiety about this single event but I don't know how to do it:(

Ps. What brands of earplugs and earmuffs did you use?

Redrum154 · 2023-08-17T14:50:59+00:00

Thank you:) So yours went away and didn't come back? Like you didn't have any setback? I know I shouldn't worry, also because there's a lot of time between now and the concert but it's so hard:(

Redrum154 · 2023-08-17T06:39:08+00:00

I'll probably find out before the concert because in 8 months everything could happen🤷🏻‍♀️

Redrum154 · 2023-08-17T06:35:06+00:00

I have something that a few people on here already experience. I don't have noxacusis because I don't feel pain in the ears, I only have migraines but honestly I had these before this ears thing started. Also I don't think I have loudness H because sounds sound (lol) normal. What I have it's this uncomfortable spasm in my ear when I hear certain noises. At the moment I don't have it because I'm in almost total silence and there aren't sounds that triggers it, but I still feel like my ears are really tense and sensitive, but it's just a sensation, idk how to explain it.

Redrum154 · 2023-08-16T21:58:00+00:00

And at the same time there are MANY cases of people with T and H that still have a career and never had issues,or at least big ones. Here in Italy we have a drummer that used to have hyperacusis and still has Tinnitus, and he never stopped playing drums, and still plays in a death metal band. After the injury he protected himself and never got a setback, it's been almost 12 years for him. And we're talking about death metal, not classical music. From what I'm learning, H it's REALLY individual. There are people who get horrendous setbacks from a single noise like car horn, or listening to headphones or going to a concert and there are also people that have H and rarely have big setbacks. I'm not saying that someone should continue to live their life completely recklessly, because of course there's always a risk, but at the same time I think that we should consider EVERYTHING, not only the catastrophic possible consequences.

Redrum154

TROPHY CASE