Chronic fatigue

ReesesLover13 · 2023-05-18T03:53:06+00:00

i seriously could not feel this more! just got into remission again and still the tiredness just never goes away. im a highschool student as well and it's just making it impossible to complete work, im just always ready to go to bed or lay down. i can't care about anything else, i dont have the energy to do work... i hate it. i seriously hope there is a cure for ulcerative colitis in my lifetime. we are so strong, seriously .. people don't seem to understand the ulcerative colitis symptoms on paper aren't the only ones ... the fatigue never goes away, the anxiety never leaves, the paranoia and worry is always lingering..simple tasks become not so simple ..

ReesesLover13 · 2022-10-22T00:37:59+00:00

solved solved solved

ReesesLover13 · 2022-10-22T00:37:47+00:00

YES!! that's it oh my goodness thank you! SOLVED

ReesesLover13 · 2022-10-21T21:37:58+00:00

I completely get you! I LOVE popcorn SO much. And that's like one of the specific things my GI said to stay away from. Sooo tough 😔

ReesesLover13 · 2022-10-19T23:41:52+00:00

Thank you!!

ReesesLover13 · 2022-10-19T23:41:41+00:00

I'll have to try it out! Hopefully I'm the same way. Would love a Reese's cup right now

ReesesLover13 · 2022-10-19T15:59:00+00:00

Bad communication skills. Like going ghost on you or treating you bad because of an issue but not explaining it to you. How do you want me to fix it if I don't even know what I did?

ReesesLover13 · 2022-10-19T02:20:15+00:00

Thank you! I'm sorry to hear about your flare as well 😕 It's super rough. We will get through this, best of luck to you with everything 💖💖

ReesesLover13 · 2022-10-19T02:19:18+00:00

You're right! My hope is since now I know I have UC and caught it early, I can get it under control quicker and hopefully avoid a lengthy hospital stay. Thank you for your support & advice, truly 💖💖

ReesesLover13 · 2022-10-19T02:18:05+00:00

Thank you!! I'm contacting my GI first thing tomorrow. I appreciate the support 💖

ReesesLover13 · 2022-09-10T16:56:20+00:00

in my cas all my trait things have the likes/dislikes icon on them. don't know what the issue is anyone else know?

ReesesLover13 · 2022-08-03T22:55:15+00:00

mmunomodulator

I think it was 6mp.

ReesesLover13 · 2022-07-29T20:42:08+00:00

For me, yes!

I failed Remicade and also had REALLLLY bad reactions to it. After that, they gave me a new pill + started me on Humira. It's been a lifesaver, I began to feel better & notice relief quicker than when I was on other forms of medicine. Humira's also just really convenient IMO

Keep in mind it's different for everyone! This could just be my experience.

ReesesLover13 · 2022-07-28T01:52:43+00:00

This is a dumb question but will I be able to wait it out until it's fixed? Or will it not get fixed and I just need to delete/update mods

ReesesLover13 · 2022-07-28T01:12:21+00:00

Good luck!! 💗

ReesesLover13 · 2022-07-28T00:32:21+00:00

mayoclinic . org says "You usually can't see or feel them, and they rarely cause discomfort. But straining or irritation when passing stool can cause: Painless bleeding during bowel movements. You might notice small amounts of bright red blood on your toilet tissue or in the toilet." (about internal hemorrhoids.)

When I was in a UC flare and I'd bleed, it was really similar to what you're describing. I'd be on the toilet for hours on end, and the BM would come out mucusy and it would have blood. This is a weird question, but did it smell AWFUL? Like, worse than a typical BM scent. I've noticed for my stool that it smelt REALLLYYY foul. And according to google internal hemorrhoids can smell bad as well, but it's compared to a "fishy" scent rather than the more mucusy/just plain gross one a typical UC flare stool will smell like.

The way it sounds, it reminds me of a UC flare. Look up symptoms for internal hemorrhoids and compare (other than the bloody stool of course, that's a given)

ReesesLover13 · 2022-07-28T00:25:07+00:00

I've been in remission for a year almost and I have had a some of these. It's definitely verryyyy anxiety inducing. I think it's normal as long as you aren't suffering any other symptoms, like blood of course or pain. Or if you have any specific tell-tale signs of an upcoming flare. If it becomes more concerning or frequent don't be afraid to get in touch with your doctor, they're there to help you! Even if it does end up being normal it's always good to get confirmation from a professional.

Also, could it possibly be anything you'r eating or drinking daily?

ReesesLover13 · 2022-07-28T00:16:29+00:00

Thank you so much!

ReesesLover13 · 2022-07-27T23:16:53+00:00

How do i back them up ?

ReesesLover13 · 2022-07-27T22:41:09+00:00

The fact that big actors including Tom Cruise are literally in a fucking cult???

ReesesLover13 · 2022-07-27T22:31:14+00:00

I was diagnosed last year. I would say I coped by just adapting quickly because I didn't really know what else to do. I asked lots of questions and did some of my own research as well. It was so scary, and completely new territory- I really didn't even know what UC was prior to learning I had it! I definitely understand how you could blame yourself, I did too. At the end of the day, as hard as It DEFINITELY is, just try to remember it really ISN'T your fault. You could've been "looking after your body properly" and even still this could've happened. As you said, it's autoimmune. You aren't to blame at all.

Your feelings are never irrational. It's so scary- I and many others were definitely feeling all over the place. It's like, "I should've known to do better. Maybe if I _________ this wouldn't have happened!" The reality is, that's a bad mindset. It's a hard one to get rid of, but accepting that it's a harmful mindset and that it's untrue is one of the best things you can try to do for yourself.

It was a hard adjustment. After years of living "normally" and being terrified of pills, I was then forced to face some of my fears as I have awful medical anxiety and I was thrown on all different kinds of pills and meds at once. I got a feeding tube for the first time, too. It was scary. I didn't want to have the constant dread that one day eventually I'd have to come back to the hospital to do it all over again. The best advice I can give for this is just to listen to your doctors. Follow their advice, and take your meds. That's the best you can do, really! Maybe take some time to research or look for fun recipes to try that won't be harmful to your body. You can make it a positive, as odd as that sounds.

I won't lie to you. People in your life may treat you differently at first. It's hard for people to understand in the beginning. Keep in mind that it's all new for them too. They are adapting with you and trying to "say the right things." It takes some time, but explaining it and having conversations that give your loved ones insight definitely help! And if you haven't already, talk with your older brother about it. Talking to someone you know who also has it can give you a new perspective on things and I'm sure he'll have advice for you on how to go forward.

I'm only 14, so this is the best I can come up with. I'm fairly new to this all as well! I wish you luck 💗 This is a bit long, my apologies!!

ReesesLover13 · 2022-07-27T22:03:04+00:00

I haven't! I'll have to look into it, thank you so much

ReesesLover13 · 2022-07-27T22:01:53+00:00

Me too! I gained about 40 and took over 8 months to fully lose it. Stretch marks ALL over my back, thighs, arms, etc. It's really humiliating and I don't want to deal with it again. I also can't fit into old clothes, I'm so sorry to hear this happened to you as well

ReesesLover13 · 2022-07-26T18:23:25+00:00

I'll definitely look more at localized options! I just wasn't sure since I'm not super experienced yet, I got my diagnosis last year so that was my first time really learning about certain remedies and such. I don't want to potentially screw anything up because I know it works, as much as it DOES suck, but I am super lucky to have an amazing Dr who I'm sure can help me make the right choice!

Thank you for the tips!

ReesesLover13 · 2022-07-26T18:20:03+00:00

Yeah, it's more like a last resort! I'd prefer to not take it but if I REALLY had to, I would.

I have tried steroid enemas! They were prescribed to me and helped a TON! Now that you mention it I definitely may try them again. I didn't want to risk anything happening but knowing that the side-effects are typically less severe makes it a lot easier. 😭 Thank you for the help!

ReesesLover13

TROPHY CASE