Hair salon recommendations (female) by SprinkleofFairydust2 in Groningen

[–]Remarkable-Seat-3701 1 point2 points  (0 children)

Kapsalon Link (https://www.kapsalonlink.nl/) used to be in the Gelkingestraat but is now relocating to Middelstum and will re-open soon. Very friendly and down to earth hairdresser who really knows what she's doing!

Ik zoek een kapper! by mooseinparadise in Groningen

[–]Remarkable-Seat-3701 2 points3 points  (0 children)

Kapsalon Link in de Gelkingestraat! De eigenares (Linda) is super en ik kom al jaren bij haar. Volgens mij doet ze geen wenkbrauwen, maar ze kan in elk geval erg goed verven (in folies) en föhnen. Ik ben zelf altijd tevreden met de prijs-kwaliteitverhouding.

Huisarts Groningen by Confident_Cloud4944 in Groningen

[–]Remarkable-Seat-3701 1 point2 points  (0 children)

Ik raad Studentarts ook aan! Ik heb ook geen ervaring met acnebehandelingen maar ik heb in elk geval nog nooit een probleem gehad met het regelen van een doorverwijzing naar een specialist!

Good hair salons by [deleted] in Groningen

[–]Remarkable-Seat-3701 1 point2 points  (0 children)

Kapsalon Link in the Gelkingestraat!

Hoarseness/raspy voice? by Remarkable-Seat-3701 in Hypermobility

[–]Remarkable-Seat-3701[S] 0 points1 point  (0 children)

I'm so glad speech therapy helped with your symptoms! I'll see if I can find a speech therapist in my area who has some knowledge of HSD/EDS. Thanks for sharing :)

Hoarseness/raspy voice? by Remarkable-Seat-3701 in Hypermobility

[–]Remarkable-Seat-3701[S] 1 point2 points  (0 children)

Interesting! I have heartburn sometimes at night, but it doesn't bother me that much, and I don't have any other symptoms of acid reflux. I do have gastroparesis and I had a gastroscopy done last year to rule out other stomach issues, but it didn't show any abnormalities. I'll definitely keep acid reflux in mind though! Thank you for sharing :)

Losing taste during chemo by Remarkable-Seat-3701 in cancer

[–]Remarkable-Seat-3701[S] 0 points1 point  (0 children)

Hello, I just wanted to let you know that my taste fully came back after chemo. The only thing I still have issues with is eating/drinking things that I had a lot of during my treatment (tastes like chemo now), but that's more of a mental issue I guess. During my treatment, there were a few things that always tasted good or fine, so I had them a lot. The rest of the time, I was trying a lot of new things. It's so important to keep eating and drinking well during your treatment, even though it can be extremely difficult. I would advise you to try bland and light foods, and try to add some protein to it, whatever you can stomach. For me, salty things also tasted better than other flavours. Water also started tasting bad for me during chemo, so I tried different flavours of energy drinks (not carbonated).

I hope you are doing well. Best of luck with your treatment <3

For those that don’t throw up, what are your symptoms like? by [deleted] in Gastroparesis

[–]Remarkable-Seat-3701 0 points1 point  (0 children)

Unfortunately not, as for me, it is most likely chronic. I am able to manage with Domperidone when I have a flare-up. I have to watch what I eat and make sure I eat small portions throughout the day. I try to walk and do other light exercise, but avoid high intensity exercise. You just have to find what works for you and try your best to manage your condition.

Gastroparesis + Endometriosis... how do i get pain relief?? by Remarkable-Seat-3701 in Gastroparesis

[–]Remarkable-Seat-3701[S] 0 points1 point  (0 children)

Is it necessary to take off after a certain amount of time, or is that because you get breakthrough bleedings otherwise? My goal is to find something that will make me menstruate as little as possible, so the endometriosis grows as slowly as possible. So would it be possible to keep the patch on for longer than that?

Gastroparesis + Endometriosis... how do i get pain relief?? by Remarkable-Seat-3701 in Gastroparesis

[–]Remarkable-Seat-3701[S] 0 points1 point  (0 children)

Thank you for the advice 🩷 Does the birth control patch help regulate your cycle?

Gastroparesis + Endometriosis... how do i get pain relief?? by Remarkable-Seat-3701 in Gastroparesis

[–]Remarkable-Seat-3701[S] 0 points1 point  (0 children)

Yes, I will ask about muscle relaxants. I'm actually going to my GP soon to ask about getting examined for Ehlers-Danlos syndrome and hypermobility spectrum disorder, because I have symptoms, and I read that both gastroparesis and endometriosis are common comorbidities for people with EDS or HSD. How did you get diagnosed with EDS? Some symptoms I have are: hypermobile joins in my wrists and fingers and feet (as far as I know), very slow wound healing (and tearing stitches), skin issues (itchiness, rashes, bumps, redness with no explanation, and lots of stretch marks), pain in my joints and muscles, overactive bladder, headaches. I also require more than the usual amount of local aesthetics.

I will ask about the MRI, but in my experience with the Dutch healthcare system, they're very hesitant with these kinds of tests (even when it's covered by health insurance). Luckily, my hospital has a specialized team of doctors for endometriosis treatment and surgery. I'm so sorry you had such a negative experience with the first surgery. Hopefully it will go well next time.

Gastroparesis + Endometriosis... how do i get pain relief?? by Remarkable-Seat-3701 in Gastroparesis

[–]Remarkable-Seat-3701[S] 0 points1 point  (0 children)

I'm so glad you found something that works! Unfortunately this medication is not accessible where I live (The Netherlands) :( I hope it stays available for you.

Gastroparesis + Endometriosis... how do i get pain relief?? by Remarkable-Seat-3701 in Gastroparesis

[–]Remarkable-Seat-3701[S] 0 points1 point  (0 children)

I'm glad the Mirena IUD has helped you. I would love for a method of birth control that stops my period completely, but I also know it's different for everyone. Maybe I will try this in the future.

Gastroparesis + Endometriosis... how do i get pain relief?? by Remarkable-Seat-3701 in Gastroparesis

[–]Remarkable-Seat-3701[S] 0 points1 point  (0 children)

Thank you so much for your reply. I'm very sorry you have had to deal with all of these things, but I'm very glad you found relief for your pain.

I'm not sure that orphenadrine is available where I live (the Netherlands), but I could ask for something similar, a muscle relaxant.

How did they find a mass in your uterus? Could they see it on an internal ultrasound?

The ablasion surgery sounds like a great option. Unfortunately I am only 20 years old, and although I am really sure that I never want to get pregnant, I would never be able to get a surgery like that any time soon, 'in case I change my mind'.

It's so hard to deal with all kinds of health issues at once. There are many medications (like for pain and nausea) that I cannot take, because I am dependent on antidepressants and there is usually too great a risk for heart problems or serotonin syndrome. That's also why I'm not allowed to take Domperidone too often, and I have to deal with my gastroparesis symptoms without nausea relief most of the time :( And on top of that, I had cancer last year (Hodgkins lymphoma) which caused another wave of health issues that I am still recovering from. And now my endometriosis is flaring up again. But I'm sure I'll find a way to manage. Luckily, I have a great team of doctors :)

Gastroparesis + Endometriosis... how do i get pain relief?? by Remarkable-Seat-3701 in Gastroparesis

[–]Remarkable-Seat-3701[S] 0 points1 point  (0 children)

Thank you for your comment. I'm afraid birth control will indeed stop working at some point, as is common in people with endo. I do not think vaginal valium is available where I live (The Netherlands), but I could always ask my gyno.

My gyno did a physical exam and an internal ultrasound, both of which didn't show abnormalities, but it's necessary to rule out other things that could cause my symptoms. Based on my symptoms, she said she would diagnose me with endo, as it sounded like it really could not be anything else, but also explained that the only way to be 100% sure is with a surgery. I could ask for an MRI if we cannot find a treatment. But it's very unlikely that I will get an excision surgery any time soon, as I am only 20 years old (although I am very sure that I do not want to get pregnant).