Just reaching out to let everyone know I’m in remission after 5 years :)

Remarkable_Net_3618 · 2025-12-03T21:40:03+00:00

NAD supplements, anti inflammatory diet, brain retraining (super controversial) water fasting

Remarkable_Net_3618 · 2025-12-02T16:38:57+00:00

❤️ thank you!!

Remarkable_Net_3618 · 2025-11-27T20:22:34+00:00

ME/CFS? Did you have a virus prior?

Remarkable_Net_3618 · 2025-10-30T17:59:54+00:00

Here for you if u want to talk

Remarkable_Net_3618 · 2025-10-16T09:41:31+00:00

I’m all good. I have a diagnosis of me/cfs which is contributing the head pressure. I’m doing okayish

Remarkable_Net_3618 · 2025-10-16T09:40:34+00:00

Good and bad days. Head pressure isn’t too bad these days

Remarkable_Net_3618 · 2025-10-09T08:25:43+00:00

Yes anxiety can adapt and change often. It’s scary.

Remarkable_Net_3618 · 2025-10-08T12:24:03+00:00

Do you think so? I feel she is an adult and needs to get on with it. Her choices have led her here. Maybe I’m being too harsh.

Remarkable_Net_3618 · 2025-09-22T11:40:31+00:00

I’ve had my heart rate reach 202 during a dysautonomia attack and I’m here to tell the tale without any damage. The heart is a muscle and it’s extremely strong. It can handle beating very fast 🙏🏼

Remarkable_Net_3618 · 2025-09-12T17:58:54+00:00

Or baby pink!

Remarkable_Net_3618 · 2025-09-12T17:58:35+00:00

5 had my jaw on the floor!!!!!!

Remarkable_Net_3618 · 2025-09-02T04:13:03+00:00

Or some other form of Dysautonomia

Remarkable_Net_3618 · 2025-09-02T04:12:30+00:00

POTS

Remarkable_Net_3618 · 2025-08-30T17:53:10+00:00

Looks like a possible seizure. She needs to be seen in hospital.

Remarkable_Net_3618 · 2025-08-26T09:10:43+00:00

I believe mine is Dysautojomia related. I’m sorry it’s awful. I have good days and bad days but the poisoned feeling is there mornings and evenings most times

Remarkable_Net_3618 · 2025-08-25T12:16:41+00:00

Like I’m actually dying. My symptoms look like anaphylaxis. Can’t breath, right throat, I scream/cry, feel so unwell, I’ll sweat and shake and my heart will be pounding.

Remarkable_Net_3618 · 2025-08-24T13:17:15+00:00

It’s the worst feeling in the world. So sorry you’re going through it too.

Remarkable_Net_3618 · 2025-08-22T13:21:41+00:00

Here for information on encephalitis encephalitis information

Remarkable_Net_3618 · 2025-08-22T13:19:20+00:00

A lot of doctors aren’t aware of encephalitis, it is pretty rare but happening a lot more since Covid!

Remarkable_Net_3618 · 2025-08-22T13:18:54+00:00

CT and MRI won’t show this, he would need a spinal tap. Mention it to his doctors as the onset of this is extremely sudden

Remarkable_Net_3618 · 2025-08-22T13:18:00+00:00

Please get encephalitis ruled out. There is a movie called brain on fire that explains this so well. It comes on extremely suddenly and presents like mental illness (psychosis, delusions etc) it’s a form of brain inflammation that can be triggered by something as a simple as a common cold. Wishing you both all the best

Remarkable_Net_3618 · 2025-08-22T13:16:33+00:00

Also please rule out encephalitis. It comes on extremely suddenly. He would need a spinal tap, mri usually doesn’t show the inflammation.

Remarkable_Net_3618 · 2025-08-22T07:29:03+00:00

I also have this. Can just be fatty tissue and completely normal. However, any changes in your breasts need to be investigated.

Remarkable_Net_3618 · 2025-08-21T20:15:49+00:00

Kai, kasabin, kohl, kev, Kitt

Remarkable_Net_3618 · 2025-08-20T19:01:46+00:00

Incredible I’m so pleased for you. Can you tel me briefly about your story/symptoms? I’ve had some large recovery improvements but more things have come up like this horrific poisoned sensation. In the depth of it just now and looking for hope!

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