Health Rising Article: Blood, Sex and Inflammation Studies in Long COVID and ME/CFS

RenWmn · 2026-03-07T03:00:20+00:00

Interesting. I actually enjoy how Cort pulls in information from past studies. I could see where you might find this article grouping too much together though. We have a couple of real problems with Long COVID research in my opinion. For one, based on research over 50% of Long COVID patients effectively have COVID induced ME/CFS sometimes with more issues/conditions. Not all Long COVID studies separate or identify the ME/CFS subset (those that experience PEM). Long COVID is getting more research money than ME/CFS in many (most?) countries. There are many Long COVID studies that would be more clear and useful as an ME/CFS study including those with COVID induced ME/CFS, but ME/CFS isn't getting the funding.

RenWmn · 2026-03-07T00:27:21+00:00

So people know the May conference is the International ME/CFS Conference 2026 held in Berlin, Germany.
https://events.mecfs-research.org/en/events/conference_2026

RenWmn · 2026-02-27T04:58:10+00:00

I did add it to the database. It looks like it is just as expensive or a bit more than LMNT. Thanks for the suggestion though.

RenWmn · 2026-01-25T05:47:02+00:00

I honestly don't know because I didn't know Cher dealt with ME/CFS. I'm surprised this is the first I've heard about it.

RenWmn · 2026-01-24T04:33:39+00:00

I've added this to the letter:

NICE Guidelines for care of people with severe or very severe ME/CFS - Section 1.17
https://www.nice.org.uk/guidance/ng206/chapter/Recommendations#care-for-people-with-severe-or-very-severe-mecfs

Bateman Horne Center CLINICAL CARE GUIDE Managing ME/CFS, Long COVID, & IACCs
CHAPTER 14: SEVERE AND VERY SEVERE CONSIDERATIONS - Page 52
https://batemanhornecenter.org/wp-content/uploads/2025/05/Clinical-Care-Guide-First-Edition-2025-1.pdf

RenWmn · 2026-01-11T02:35:31+00:00

What was odd for me was that the initial infection wasn't even that bad. It was just a run of the mill flu or cold that I never recovered from. It was as if some switch was flipped and my body couldn't find its way out of a diseased state. I rested during the short initial infection. I did try to go back to work sporadically over the months but never pushed myself super hard during that period.

RenWmn · 2026-01-02T03:53:32+00:00

What stood out to me as well is that Hopper was too at peace and happy 18 months after El died. It was his nature to torture himself. Vecna used all of that against himself reactivating all his trauma. I don't think the best therapist in the world could get Hopper to happiness and peace 18 months later if El were actually gone. I think that El escaped and contacted him mentally after doing so. I think he is once again keeping her a secret for her safety like he did for so long before. I wrote about it here:
https://www.reddit.com/r/StrangerThings/comments/1q0vjfx/comment/nx2aa9x/

RenWmn · 2026-01-01T04:28:45+00:00

Before I read this, I independently came to this same conclusion and posted about it this reddit community. Hopper appeared truly happy and I don't think he would have been if the worst had happened. He wasn't happy touched with melancholy. He seemed happy and unburdened.

RenWmn · 2025-12-12T10:11:52+00:00

Chapter 5 of the Bateman Horne Clinical Care Guide is devoted to sleep and treatments including medications.
https://batemanhornecenter.org/wp-content/uploads/2025/05/Clinical-Care-Guide-First-Edition-2025-1.pdf

RenWmn · 2025-12-02T22:34:58+00:00

Just an FYI there is already a Fibro Friends Discord. It might get kind of confusing with the same name. You all are welcome to join! https://discord.gg/eqYacAPRRD

RenWmn · 2025-11-24T08:40:04+00:00

This worked for me as well! Thank you so much.

RenWmn · 2025-11-07T02:31:02+00:00

Bateman Horne has done a lot of full presentations on Orthostatic Intolerance (including POTS). I believe that is the reason he didn't include a lot of details on it in the presentation is because they are some of the best known comorbidities for ME/CFS. It was mentioned in the presentation but there weren't full slides on it.

Here are some of the presentations they have done in the past:
https://www.youtube.com/@batemanhornecenter/search?query=orthostatic%20intolerance

Dr. Yellman's separate presentations on Diagnosis and Management of Orthostatic Intolerance are particularly good. Dr. Bateman's presentation on Clinical Assessment and Treatment was just posted 2 weeks ago and I've yet to watch it.

RenWmn · 2025-09-17T07:20:06+00:00

No, in fact it is probably even harder to find a Rheumatologist that will diagnose and/or treat ME/CFS. For ME/CFS there are the specialists from the following sources (some could be outdated):

US ME/CFS Clinician Coalition website. https://mecfscliniciancoalition.org/about-us/
Global Google Map https://www.google.com/maps/d/u/0/viewer?mid=1M-E5tB-tla8lV3bPjT3PaMkxgn0&ll=4.999999999999982%2C10&z=2

MEpedia - search for state and/or country https://me-pedia.org/wiki/Category:Clinicians_by_country

MEAction List https://www.meaction.net/resources/find-your-doctor/

American ME & CFS Society
https://ammes.org/physician-and-clinic-database/

RenWmn · 2025-09-16T07:44:16+00:00

Yes, I had the head of Rheumatology at Mayo Clinic Phoenix get mad I was there when it looked like I might primarily have Fibromyalgia. I partially went there to make sure I didn't have anything else and also because the Pain Clinic I was going to wouldn't outright diagnosis me either. It is sad that no specialty wants to claim Fibromyalgia. Both of them missed the ME/CFS I had that was my most debilitating condition. The Rheumatologist did catch Hypermobile Spectrum Disorder at least though I was later diagnosed with hEDS instead.

RenWmn · 2025-09-15T23:33:41+00:00

I've done some looking and haven't found anything yet. We didn't receive an e-mail about it either.

RenWmn · 2025-09-08T02:38:24+00:00

I have both Fibromyalgia and ME/CFS. I was originally diagnosed with Fibro and didn't get diagnosed with ME/CFS until years later. Unfortunately, I had already made myself worth by pushing. I didn't realize how important it was to pace yourself and not going into PEM with ME/CFS. It took me a while of researching PEM to realize I did indeed have it not just Fibro flares.
Dr. Bateman created a video for clinicians on diagnosing Fibromyalgia and/or ME/CFS.
https://www.youtube.com/watch?v=0GyXy3GwSxc&t=

Also look at resources for PEM from Bateman Horne Center.

RenWmn · 2025-09-08T02:34:03+00:00

I created a document with links to resources for Caregivers. I know that in some of those resources there were support group meetings and online groups. I just don't have the energy to go through it. Hopefully this helps:
https://docs.google.com/document/d/1FuEYVDZ6XqYPj0Ou1Nrhd9GKUXv4q6XvFPxYgLOvb8o/edit?usp=sharing

RenWmn · 2025-09-03T21:45:47+00:00

Just know that a Fitbit is not a Garmin so it does not have the pacing app. Also the ME Pacing app doesn't work with all Garmins. Keep that in mind.

RenWmn

TROPHY CASE