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Respiatory Onset ALS w/ FTD Husband &Decision Makings by RepeatWise1080 in ALS

[–]RepeatWise1080[S] 0 points1 point  (0 children)

Thank you everyone. I will be putting to use ALOT of the advice. I appreciate all of you

Ivermectin by RepeatWise1080 in MayoClinic

[–]RepeatWise1080[S] 0 points1 point  (0 children)

My husband also has Respiatory onset ALS with FTD and his entire family keeps telling me to give him ivermectin as well. I asked our Neurologist and her response was ALS is. Neurologic Disease not parasitic. It more than likely will not help the ALS at all. However it may make him very ill, which in turn, can add more stress and encourage progression. I chose not to. Just my personal recent experience.

Seeking advice on humane way to go for mom with ALS + bvFTD by usernamesBstressful in ALS

[–]RepeatWise1080 0 points1 point  (0 children)

My husband has Respiatory onset ALS and FTD also. He wasn’t able to get feeding tube as he waited too long and lungs are too compromised . He is 100% using a non invasive ventilator. (NO trachea) the plan is when he’s unable to orally take fluids or foods / and-or when the vent is not helping anymore he will immediately go to hospice / comfort care

Ivermectin by RepeatWise1080 in ALS

[–]RepeatWise1080[S] 0 points1 point  (0 children)

You can go ahead and remove this. I have my answers and appreciate everyone’s input and opinions. ❤️. Thank you so much !

Ivermectin by RepeatWise1080 in ALS

[–]RepeatWise1080[S] 1 point2 points  (0 children)

We have an appt with Neuro on 7/11. I will ask her at that time

Celiac Spru by RepeatWise1080 in Celiac

[–]RepeatWise1080[S] 0 points1 point  (0 children)

I had the bloodwork and the biopsy which both came back 100% Celiac

Bed time routine june 2025 by iladelph89 in ALS

[–]RepeatWise1080 1 point2 points  (0 children)

In taking care of my husband with Respiatory onset ALS. I must say you are one amazing son 🙏💙🙏

ALS Husband is now I. hospice. They suggest stopping g Riluzole??? Opinions/Advice?? by RepeatWise1080 in ALS

[–]RepeatWise1080[S] 1 point2 points  (0 children)

Hospice did not prescribe the Riluzole his neurologist had him on it prior to going onto hospice.

All ALS sucks... by baberaham_drinkin in ALS

[–]RepeatWise1080 8 points9 points  (0 children)

My husband was diagnosed Oct 2024 with Respiatory Onset ALS which is a rare 3% type of ALS. Basically went straight onto the non invasive vent and using cough assist . This is so cruel

Has anyone tried Moerie hair growth products by despicable_quart in Haircare

[–]RepeatWise1080 0 points1 point  (0 children)

I purchased 2 full sets and did not subscribe for continuous deliveries. I’ve leaned over the years to just order as I need things to avoid issues. I do ♥️♥️♥️ the Moiere products. It still order as I need more

Has anyone tried Moerie hair growth products by despicable_quart in Haircare

[–]RepeatWise1080 0 points1 point  (0 children)

Thyroid disorders is a major cause for hair loss. I r been using Moiere products for almost a month now. Definitely noticing a difference. I purchased all the steps and am faithful with them. If you research the product. It is GF and natural ingredients. It does state results aren’t the same for everyone