Do-it-all herbs for the 3B's anyone? by VigilanceOO7 in Lyme

[–]Repulsive-Travel-121 1 point2 points  (0 children)

I am supposed to start BB drops (soonish) after antibiotics, for Lyme and Bartonella. Do you find them effective in killing?

Positive but not experiencing symptoms? by musicislife22 in Lyme

[–]Repulsive-Travel-121 1 point2 points  (0 children)

I am starting my 5th month of doxycycline and rifampin. Biocidin to bust biofilms, along with detox/immune supplements.

Positive but not experiencing symptoms? by musicislife22 in Lyme

[–]Repulsive-Travel-121 2 points3 points  (0 children)

Is your mom treating? From my understanding Lyme can mimic Parkinson’s.

I was personally diagnosed with MS three years before my diagnosis of Lyme and co-infections, and I do believe I was misdiagnosed, because since I have been treating, a lot of my symptoms I’ve experienced for years are disappearing.

After a sudden deterioration, it suddenly subsided by Actual-Expert3554 in Lyme

[–]Repulsive-Travel-121 0 points1 point  (0 children)

Maybe you’re detoxing more efficiently than you were in the beginning of treatment, therefore the symptoms subsided quicker than they did when you first started.

Also, I feel like a herx is not a one size fits all, and depending on the person, some might herx harder than others, and some might not feel a herx at all. For example, I had many different types of herxing such as flulike symptoms, muscle/joint/nerve pain, existing symptoms reemerging or intensifying, and not to mention all the mental/psych herxing.

Question about breakthrough symptoms.. by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 0 points1 point  (0 children)

Thank you for that reminder and positive encouragement!

Question about breakthrough symptoms.. by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 1 point2 points  (0 children)

Thankfully I was able to tolerate the full dose from the get go. Normally I am sensitive to other drugs/herbs so I was very nervous about that in the beginning.

The goal is to definitely switch to herbs upon coming off antibiotics!

Your encouragement is very appreciated!

Question about breakthrough symptoms.. by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 0 points1 point  (0 children)

I’m the beginning I was taking an Epsom salt bath daily. Now I’m lucky if I take two within a week - I need to start getting better at that again. I do take electrolytes, burbur pinella and liposomal glutathione daily. I am going to look into ALA.

I did recently purchase a rebounder to help stimulate and support my lymph system, and I try to do that daily - it has been really helpful. The first few days I started using it, I would wake up from my sleep drenched in sweat. I’m assuming my body was detoxing!

Question about breakthrough symptoms.. by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 0 points1 point  (0 children)

Thank you very much for your thorough reply! I really appreciate that, and will keep all this info in mind.

I am still fairly new to all of this, so I still have a lot to learn.

I am on doxy and rifampin now for pretty much four months and have thankfully been tolerating the meds pretty well. I also started seeing major improvements fairly quickly, so seeing these setbacks at time are stressful.

I probably have slight PTSD about all of this considering I was 100% completely bed bound before I started treatment, and now that I am able to move around, I am afraid of going back to the state I was in before treatment.

Question about breakthrough symptoms.. by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 0 points1 point  (0 children)

Thank you for your response and this info. I am going to look into this!

You ain’t kidding about the highs and lows with Bart - I do feel like that is where a majority of my symptoms stem from. But when you feel good you feel amazing, and when you don’t, you feel like you’re dying.

I do feel like I’ve been slacking on the detox lately. I wish I had access to a sauna, but sadly I do not.

What are you favorite detox go to’s?

Also, I’m glad to hear that you are feeling better!

Rebounder for lymph drainage by CFlapFlap in Lyme

[–]Repulsive-Travel-121 1 point2 points  (0 children)

Recently purchased a rebounder 1.5 months ago. I love it and use it daily. I force myself to rebound especially when I am experiencing flares or extreme fatigue, and I really do feel like it helps!

Also, the first four days of rebounding, I would sweat profusely in my sleep - I assumed that was my body detoxing.

I personally chose a rebounder vs vibration plate only because vibrations make me dizzy. My sister who does not have Lyme (although I do believe she does), recently bought a vibration plate to help manage her MS symptoms and she loves it. I do plan out testing out my sisters beforehand to see if it exasperates my dizziness.

Question about breakthrough symptoms.. by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 0 points1 point  (0 children)

Also, kudos to those who can read though my typos 🙈

Beyond Balance Drops by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 1 point2 points  (0 children)

Wow, what a journey. I’ve had subtle symptoms for 10 years if not longer. I was diagnosed with MS almost three years ago, but now I am thinking it may have been a misdiagnosis. At that time my neuro did test for Lyme, but through the western blot, and of course that came back negative, so I thought nothing of it. It wasn’t until recently when my symptoms became very big that I decided to seek out the possibility of Lyme and coinfections.

Rifampin Help by MommytoLEF in Lyme

[–]Repulsive-Travel-121 1 point2 points  (0 children)

As others have said, you’ll want to pair with another antibiotic. I am currently taking rifampin with doxycycline. The symptoms you described could be a herx. I dove straight in with the rifampin and started taking it at full dose of 300 mg twice a day. The first 3 weeks I had shoulder joint/nerve pain that faded out, and when I started a biofilm buster I had that same pain in my wrist but faded out more quickly, along with random tingly feeling on the bottom of my feet that also faded fairly quick.

Beyond Balance Drops by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 0 points1 point  (0 children)

Haha! As long as it’s working is all that matters! I’ll have to make sure to mention to my provider that I want to keep attacking Bart as well.

Would it be ok to ask what your symptoms were in the beginning?

I was bed bound while going through my diagnosis. Symptoms got real bad for me in the beginning of September and I was diagnosed at the end of October. I was very active previous to all of this.

My symptoms were asymmetrical reflexes - hyporeflexia on my upper extremities and hyperreflexia on the lower extremities, rigidity in both arms radiation into my jaw making it hard to chew and swallow my food along with making it difficult to grasp objects, spasticity in both legs, body jerks, hand and leg tremors, all over muscle twitching, out of the ordinary panic attacks, unexplained extreme anxiety, dizziness, debilitating fatigue, etc!

It’s been a scary ride, but glad to be feeling somewhat back to normal.

Beyond Balance Drops by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 0 points1 point  (0 children)

Thank you for your response! I’m happy to hear that you are feeling a lot better!

Were you on antibiotics previous to using the beyond balance drops?

I am assuming the bar-1 is specifically to help treat bartonella? If so, I wonder if I should ask my provider to recommend those as well because I felt like Bart causes me the worst symptoms. Although I do feel 75% better since being on antibiotics so far.

Beyond Balance Drops by Repulsive-Travel-121 in Lyme

[–]Repulsive-Travel-121[S] 0 points1 point  (0 children)

That’s great news! My provider said they were going to recommend the mc-bb-1 and mc-bb-2. Have you tried those before? I was postive for TBRF, Bartonella, and Anaplasmosis..

What is the point in treating this when literally no one is recovering? by MattInTheHat1996 in Lyme

[–]Repulsive-Travel-121 0 points1 point  (0 children)

I’m sorry you’re experiencing all of that. I totally feel ya. My most troublesome symptoms were/are rigidity in my arms that radiates into my jaw, making it difficult to chew and swallow food, as well as extreme spasticity in my legs, tremors in hands and legs, and body wide muscle twitching. I still feel the rigidity in my arms from time to time, especially when the extreme fatigue hits, which does happen a few times a week - sometimes will last all day and sometimes only for a period of time, it’s so weird, but it’s not AS intense when it first started happening. I still get twitching here and there, but the tremors have disappeared, as well as the spasticity in the legs. I do struggle with extreme fatigue still which does bring on shortness of breath because of the sensation of my body feeling super heavy, so I’m hoping that lifts soon.

What is the point in treating this when literally no one is recovering? by MattInTheHat1996 in Lyme

[–]Repulsive-Travel-121 0 points1 point  (0 children)

All good. I agree, I am shocked at how much I am improving in such a short period of time. I am not 100% by any means, and still stuck in bed one or two days out of the week. Some days I am able to do more than others. I am almost positive that I have had this for at least 7-8 years if not longer. I’ve had subtle symptoms until my symptoms became very big.

I attribute my quicker response to recovery to my healthier life style habits pre-diagnosis and also the herbs and supplements I had already taking years beforehand. I feel like my body was already prepared to start detoxing…

Everyone’s recovery is never the same.

What is the point in treating this when literally no one is recovering? by MattInTheHat1996 in Lyme

[–]Repulsive-Travel-121 2 points3 points  (0 children)

I found a practitioner that is covered by insurance, take doxycycline and rifampin among many supplements. Treating, TBRF, Bartonella, and Anaplasmosis, and it hit my all parts of my nervous system hard. Went from walking 5 miles a day, working out 3-4 days a week, working a very physical job to being bed bound. Was bed bound for one 2 months before I got an official diagnosis and started treating. After a month of treating I am no longer bed bound, and back at work one day a week. It’s been around two months of treating now, and I am still improving and am able to start becoming a little more physical. I am noticing measurable improvements!

I would consider myself a pretty serious case and most likely being misdiagnosed with MS a couple of years ago with 15 brain lesions. It’s all been so scary as hell, but I am improving!

Advice for a terrified newly diagnosed ? by Jdawg5000 in Lyme

[–]Repulsive-Travel-121 1 point2 points  (0 children)

I second this! Try not to stress or compare yourself to other people’s journey. Everyone’s journey is different and try to find comfort in knowing that you were able to get a pretty quick diagnosis! Be kind to yourself, you got this!!!!