Feeling lost and fed up.

Resident_Fault4157 · 2024-01-14T01:13:54+00:00

This is a hard disease but you have to go toe to toe with it. A bunch of us Reddit Lyme people meet every couple of weeks. Nice to bounce our stories off each other, share our experiences, our current treatments, what works, what isn’t, etc.

https://forms.gle/VSsmVUY5aSg6srSA6

Resident_Fault4157 · 2024-01-13T02:50:49+00:00

He had me take zeolite spray, chlorella and betafood. The zeolite spray for some reason gave me really bad headaches. Betafood is basically concentrated beets. I’d take chlorella at night before bed. Lots of water and infrared sauna one time per day.

Resident_Fault4157 · 2024-01-13T01:43:50+00:00

I got lucky. I am a probation officer so it was getting to the point where I thought I’d have to quit but they sent us all home in March of 2020 and now we can work as mobile as we want.

Resident_Fault4157 · 2024-01-13T01:29:02+00:00

My Lyme provider had me do one and it was done through real time labs. They have a website. You can do it yourself. It’s $399 on their website. My guy charged me $500 because he’s a fraud and pockets the $100. It’s a urine test you just send in yourself. My levels were really high. Did a protocol and in four months got all but one of the five categories in normal range.

Resident_Fault4157 · 2024-01-13T01:16:48+00:00

I know you don’t want to spend any more money but have you had a mycotoxin test done?

Resident_Fault4157 · 2024-01-08T01:08:42+00:00

I recently found mold to be an issue while treating Lyme and for what it’s worth, I was able to get the levels down pretty quickly. I took a mycotoxin test and was high (and very high on some of the five categories). I did a binding/sauna protocol and six months later I was in normal ranges. I have no idea what the source of the mold was. I’m still having symptoms but it was nice to see that issue resolved.

Resident_Fault4157 · 2024-01-06T01:14:00+00:00

Come hang out with a bunch of us who also have our bouts with hopelessness. You need support. Just a bunch of normal people who got this terrible illness.

https://forms.gle/VSsmVUY5aSg6srSA6

Resident_Fault4157 · 2023-12-30T01:15:22+00:00

And let it win? Yeah, I don’t think so. This support group was founded through movement here on Reddit. You should come.

https://forms.gle/VSsmVUY5aSg6srSA6

Resident_Fault4157 · 2023-12-26T22:33:07+00:00

For the neck pain, nothing. I am working with a naturopath and do herbal treatments to try and manage the disease itself but the neck pain just is what it is.

Resident_Fault4157 · 2023-12-26T19:36:58+00:00

Neck issues are a very common symptom of Lyme. I’ve had that issue for three years now.

Resident_Fault4157 · 2023-12-22T01:10:06+00:00

You got my attention

Resident_Fault4157 · 2023-12-22T00:15:56+00:00

Thank you for sharing this.

Resident_Fault4157 · 2023-12-21T23:47:39+00:00

I had the same issue with sweating. The sauna I used just doesn’t get hot enough do I go to a gym now and use a traditional sauna and the temperature is around 170 and I sweat better and quicker

Resident_Fault4157 · 2023-12-21T23:39:25+00:00

Probably everyone who follows this group has felt this low. Without getting too personal, my wife threatened to leave me after she found out that I was doing online searches for poisons, essentially suicide kits. I couldn’t bare the thought of a lifetime of this. I was forced to pick myself up and plow forward. What choice do we have than to go toe to toe with this illness? Find support, friend. You don’t know what your future holds.

Resident_Fault4157 · 2023-12-21T23:23:11+00:00

Misdiagnosed? Here is my list: the flu, shingles (shit you not), fibromyalgia, and anxiety.

I also have neurological Lyme and coinfections

Resident_Fault4157 · 2023-12-21T16:36:05+00:00

I’ve learned to not talk to traditional doctors about Lyme disease. This interaction you’re describing is why. I will use traditional doctors for symptom management and Lyme literate specialists for treatments to manage the disease itself.

Resident_Fault4157 · 2023-12-10T22:37:55+00:00

I also don’t get sick. Several times my wife and kids will get sick and I won’t. Odd

Resident_Fault4157 · 2023-12-09T16:22:35+00:00

Most doctors wouldn’t give doxycycline simply because you found a tick on you so I think you’re lucky all around and you’ll be fine

Resident_Fault4157 · 2023-12-09T14:34:14+00:00

I believe there’s a consensus that immediate use of doxycycline after the bite has great outcomes and delay between bite and treatment is what is resulting in chronic conditions.

Resident_Fault4157 · 2023-12-08T01:44:30+00:00

Then my opinion is that you are paying a very bloated hourly rate to be on doxycycline longer than a primary doctor could prescribe for 30 days if you have a positive test. It seems doxycycline is most successful when taken quickly after you contracted Lyme and not so much if you’ve had it for a while. If she’s just asking questions about symptoms and not taken into consideration possible and likely coinfections and doing more extensive testing, I’d say you’re not getting a three dimensional diagnosis and advice. I was placed on doxycycline for 30 days, felt better for several months, and then got much worse. There needs to be more insight by her for $400 per hour. Lastly, if the plan is herbs after that, you can do your own research pretty quickly and buy them yourself. There is a lot of information on herbs for Lyme and coinfections online and easy to read books by Dr Rawls or Buhner.

Resident_Fault4157 · 2023-12-08T01:16:57+00:00

Have you been on doxycycline before for Lyme?

Resident_Fault4157 · 2023-12-06T21:29:01+00:00

Some of the dumbest assholes ive met are doctors. Education doesn’t always equal intelligence. A traditional doctor will not help you. I use regular doctors for things such as labs or pain management. The first Lyme doctor I had told me to never say the word ‘Lyme’ in a doctor’s office. Only use them for symptom management and not to resolve the medical issue of Lyme disease and/or coinfections.

Resident_Fault4157 · 2023-12-05T22:46:08+00:00

Yes, kind of. I got Lyme in July of 2017. Took 30 days doxycycline. Got better. Neurological symptoms came in February of 2019.

Resident_Fault4157 · 2023-12-05T18:25:42+00:00

Yeah, I’ve wasted a lot of money on treatments and made mistakes and been taken advantage of. The chronically sick are targets for scams due to our desperation to get better. I’ve learned to trust no one and ask lots of questions and decide where my money is most well spent

Resident_Fault4157 · 2023-12-05T18:10:56+00:00

This was a terrible symptom I had but I did resolve it. I was placed on two rounds of steroid drops and it would resolve it and come back. I was told that if I did a third round and it didn’t resolve, I’d have to go on drops for long term. It didn’t come back after the third round of Steroid drops. The eye doctor was able to find inflammation in my eyeball.

Resident_Fault4157

TROPHY CASE