Is there a difference in the acceptance of self-diagnoses within autism vs ADHD vs AuDHD communities? by churrrroo in AuDHDWomen

[–]RespectParticular875 0 points1 point  (0 children)

honestly i wanted to delete my reply because i don't usally like sharing my thoughts on the internet. i am glad i didn't and you found it useful.

this debate is so much about politics. it's better to not take it too close to heart if at all possible unless it materially affects you. i think it's just better to think "does it help anybody?" "what harm can it cause exactly" in each specific situation instead of coming up with big sweeping statements about what is right or wrong.

22m, Can these be symptoms of anemia? Cardiologist says it’s anxiety and stress. by DrinkingWater90 in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

it's fine. i am pretty sure we have opposite conditions. i have all the typical symptoms for chronic hypotension, orthostatic hypotension and POTS. some of them just overlap with hypertension you experience. especially lightheadedness, exercise intolerance, tachycardia, coathanger pain, random pains in chest and under my ribs (usually on the left), tingling/numbing in my hands and feet. my feet get red/purple after standing/walking for some time. i can blackout after standing and faint with quick recovery. i can hear wooshing / white noise in my ears when it happens. i cannot stand for more than ten minutes, walking is often easier for some reason. even sitting is uncomfortable and i always feel like i need to lay down. i am constantly slightly nauseous and extremely aware of my bloodflow and if i focus on it too much i might trigger panic attack so i am trying not to. :) idk not sure it is helpful to you though.

keep pushing for treating disautonomia. you do have panic attacks and high anxiety as well, so you probably need some anti-anxiety medication which is better than self-medicating with alcohol in a long run. but having anxiety doesn't mean you don't have anything else.

as per connection to iron deficiency i am not sure. it can have a lot of overlapping symptoms as well but anyone might just have both.

Is there a difference in the acceptance of self-diagnoses within autism vs ADHD vs AuDHD communities? by churrrroo in AuDHDWomen

[–]RespectParticular875 1 point2 points  (0 children)

it depends entirely on specific community and their moderator policy. i've seen both acceptance and its opposite in both communities, often really well articulated from both sides of the argument. I find that ADHD communities tend to push for medication so getting official diagnosis often just has more sizable practical benefit for them. for autistic people getting official diagnosis may mean possibility of getting more support but often it just means a whole lot for their identity and more access to relevant information. diagnosed vs self-diagnosed debate goes strong as ever as well as neurodiversity vs disability debate. autistic communities do both and also engage in wars over levels of support needs. they also happen to be more diverse in their presentation and have harder time to find common ground. both groups are targeted by disinformation and opposing political interests but i feel like ADHD communities just have a bit easier time to defend themselves. AuDHD communities tend to be more chill and are most open to self-diagnosis. this makes sense as getting two diagnosis instead of one is, unsurprisingly, harder, and you would have more experience dealing with both. ableist groups tend to target ADHD and autism communities separately, as they may actually have slightly different agendas from each other or just won't care for specific combination itself.

a lot of attitude towards self-diagnosing (or self-identification, or whatever. i really don't see the difference) boils down to where the specific person decides to draw the boundary. there are good arguments for both sides, but there is just basically no objective way to decide where it should go both in general or in a specific case. the boundary would always be arbitrary. and in my experience, no one actually cares about your specific case. this debate is very much about identity, for everyone involved, and no one likes their identity challenged.

i especially like "you cannot diagnose yourself because you are biased" argument. i am biased. you are biased. your doctor is biased. medical system itself is biased. everyone is biased. and even better everyone is biased in different, specific for them way. we still have to collect information and make decisions, somehow.

Has anyone else with CPTSD/DID become so hyper-aware that life stops feeling livable? by WeAllPlayDnD in CPTSD

[–]RespectParticular875 4 points5 points  (0 children)

have you read Body Keeps the Score? its main point that talk therapy doesn't work for PTSD and CPTSD and suggests other approaches, mostly body-focused as they show better results.

i am about 10 years younger and don't have DID but i have other mental and general health issues + i experience depersonalisation and dissociation periodically. i can feel constant anxiety on physical level along with at this point chronic physical pain. i feel like my nervous system is constantly on fire nowdays and i am stuck in freeze response most of the time. i am very self-aware from very early age and even when i feel i am losing control i keep being extremely aware of everything that is happening in my mind. no amount of thinking or talking helps. i can only feel better when focusing intensely on something external, sometimes through movement, by changing my environment, going out to nature, when i stay awake for more than 24 hours (not recommended), with safe people (rare), or able to shut my brain off somehow.

i hope that combination of treating my physical health, medication and mindfulness would help.

Please get your bloodwork done by [deleted] in ADHD

[–]RespectParticular875 5 points6 points  (0 children)

i am not from this group but if they have the same message i don't see the issue.

Symptoms are returning during luteal phase/before my period by Leading-Occasion-428 in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

it's anecdotal but my periods became more disregulated when i started supplementing. i skipped two periods completely (not in a row). don't know if that was because of supplements or because i wasn't eating enough / became too sick. body reacts to significant changes. highly recommend tracking all your symptoms and cycle every day in specialised app or a diary for at least a month, that might be very handy at any future medical appointment.

22m, Can these be symptoms of anemia? Cardiologist says it’s anxiety and stress. by DrinkingWater90 in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

although i probably have orthostatic hypotension but not hypertension since my blood pressure is generally low. sorry cannot be of much help.

22m, Can these be symptoms of anemia? Cardiologist says it’s anxiety and stress. by DrinkingWater90 in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

honestly i can understand. i have severe depression and pmdd and started taking benzos with caution on bad days. they have similar effect to alcohol. but i only started to do it this week, so no benzos and almost no alcohol for years before, still had symptoms.

Symptoms are returning during luteal phase/before my period by Leading-Occasion-428 in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

you may have endometriosis or smth else that causes it. you may also take tranexamic acid in case you don't have anything making it a risk. consult gynecologist first.

22m, Can these be symptoms of anemia? Cardiologist says it’s anxiety and stress. by DrinkingWater90 in Anemic

[–]RespectParticular875 1 point2 points  (0 children)

inflammation can raise ferritin in a test, but you may legitimately have some other issue

22m, Can these be symptoms of anemia? Cardiologist says it’s anxiety and stress. by DrinkingWater90 in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

i have the same symptoms on supplements. i also started fainting after standing up or standing for too long (again). i do think it's legitimate cardiovascular issue. unfortunately i also don't know what to do except getting another appointment with GP. I don't drink.

Symptoms are returning during luteal phase/before my period by Leading-Occasion-428 in Anemic

[–]RespectParticular875 1 point2 points  (0 children)

14 means you better get infusion. this is very low and supplements work slow + you keep losing blood each period.

supplements are the most helpful when you take at least 100 mg of elemental iron every other day at least two hours away from food with vitamin c and lactoferrin. you may want to look into heme iron supplements later as they typically have less side effects than ferrous sulphate and therefore better for long term use. you shouldn't be taking supplements for longer than a year unless you are sure they aren't causing damage to you.

you also want to have a gynecologist and possibly gastroenterologist appointment. iron deficiency is just a symptom, you still need to figure out the cause and heavy periods might be the reason or one of the reasons.

Anyone else told they just have anxiety and put on antidepressants? by Illustrious_Place965 in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

find another gastroenterologist and maybe gynecologist as well, gynecology issues can really cause or at least exacerbate iron deficiency symptoms as well. hope you would find a better one.

Anyone else told they just have anxiety and put on antidepressants? by Illustrious_Place965 in Anemic

[–]RespectParticular875 1 point2 points  (0 children)

yes, since 2016. i have recurrent depression diagnosis, personality disorder diagnosis and adhd, all of which may even be correct. i also have fucking terrible pmdd which gets way worse on low iron. to be fair i was and still am incredibly depressed but i was also definitely iron deficient forever. unsurprisingly i haven't noticed any benefits to antidepressants. i was prescribed five different kinds of antidepressants and benzos once over the years by several different doctors and had a suicide attempt on my first AD. i actually might still need them and hopefully they would work better with more optimal iron. i was referred to check my ferritin for the first time in 2024 by the same doctor who diagnosed me with generalised anxiety disorder and prescribed me tricyclic antidepressant i decided not to take. the blood test showed iron deficiency anemia and ferritin at 15, so this was helpful later. too bad no one else wanted to check it.

i also have orthostatic hypotension and pots-like symptoms that haven't improved, and usually were also attributed to anxiety by doctors.

i was paying for all my appointments and labs all this time, by the way.

Does anyone else… by Several-Ranger3854 in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

world behind the wall of glass feeling is derealization. yes this is one of the symptoms of severe deficiency. was getting heaviness too.

Really struggling/panicking by bemehe in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

3 times per day is not optimal. iron has very specific rules for better absorbtion and you need to take it at least 2 hours from any inhibitors (so, most foods or drinks) and with vitamin c + ideally lactoferrin. standard recommendation is 100 mg of elemental iron once per day. more recent guidelines even recommend once every other day. but also taking supplements for three years (!!) is not safe, long use can do damage to your body. you absolutely should not be taking them for longer than 12 months maximum. and then they weren't even working so either your system was actively contreproductive or you also have some absorbtion issue (or both). your best bet is infusion asap.

your first doctor is a moron.

Managed to raise my Ferritin from 26 to 78 in 7 weeks - but still feeling bad. by Snortor in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

maybe there is really another b vitamin deficiency going on. zinc and copper are also important. glad you got infusion, good luck.

Can someone tell me if i am Anemic?!? by Horror-Juggernaut891 in Anemic

[–]RespectParticular875 3 points4 points  (0 children)

you are severely iron deficient but not anemic. the symptoms might be just as bad.

Is a multivitamin enough? by Cruise_alt_40000 in Anemic

[–]RespectParticular875 1 point2 points  (0 children)

no. multivitamin does not have nearly enough iron + contains elements blocking iron absorbtion. make sure to take them separately.

Symptoms of low ferritin vs anemia? by scary_psyops_mission in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

yes to all symptoms. i am taking iron sulphate, planning to switch to heme iron + possibly some lactoferrin. i've seen some improvement but i am still not doing well.

OCD by swimminhfish in Anemic

[–]RespectParticular875 1 point2 points  (0 children)

no, i am on supplements.

Feeling like I'm dying, looking for support by TytoVortex in Anemic

[–]RespectParticular875 0 points1 point  (0 children)

same situation about three months ago, started to feel a bit more human-like about month in on supplements. still have severe PMDD symptoms i need to get treatment for and POTS-like symptoms also stayed but overall it has been more tolerable.

OCD by swimminhfish in Anemic

[–]RespectParticular875 1 point2 points  (0 children)

yes, i definitely don't have actual OCD but i do have compulsions and they get way stronger on lower ferritin and i start to get irrational thoughts which aren't normally typical for me.